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This week's episode is with Carter Hemion, a public speaker, legislative advocate, and fighter of EDS. Carter shares his long journey with EDS and all the painful experiences and uncertainties he endured before and after diagnosis. We also explore the range of symptoms accompanying EDS, specifically focusing on the neurological symptoms that Carter experiences. Carter is also a dedicated legislative advocate and frequently meets with government officials to raise support and awareness for EDS--we discuss how he recently got May to be EDS and HSD awareness month in Washington state! He is currently advocating for the HELP Copays Act, and we talk about why it is necessary for this bill to be passed.

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Links Carter mentioned:

• https://clinicaltrials.gov/
• https://www.ehlers-danlos.com/
• https://rarediseases.org/
• https://www.edsers.com/