What does it take to achieve a more promising future for children born with life-threatening genetic skin disorders? You’ll learn how an organization founded with support of Jill and Eddie Vedder, the lead singer of Pearl Jam took on a unique journey of philanthropy and healthcare technology in an enlightening discussion between host Sara Armstrong, Michael Hund of EB Research, and Ryan Jancaitis, Global Product Management Leader for the Envision Engineering Prototyping team at AWS.