Sarah Warden knew that her son, Callum wasn’t progressing as he should, but she could never have predicted what was causing the delays. Callum’s final diagnosis was Sanfilippo Syndrome, a rare genetic condition described as ‘childhood dementia’. This week, Sarah talks about how she had to persevere to get the right diagnosis, and what this rare condition means for her life and her family.

LINKS Check out the Sanfilippo Children’s Foundation on Instagram https://www.instagram.com/sanfilippochildrensfoundation/ To visit the Sanfilippo Children’s Foundation website click HERE To donate to Sarah’s fundraiser click HERE

See omnystudio.com/listener for privacy information.