The Independent Life

Center for Independent Living of North Central Florida

The Independent Life is a podcast where we explore the services, issues, ideas, and people who will empower you to become the best version of yourself imaginable, attain your goals for Living Independently, and to serve others to your fullest potential. read less
Society & CultureSociety & Culture

Episodes

Empowering Independence Through Assistive Technologies: A Conversation with Kailey Medlock and Eric Reed from FAAST
Apr 11 2024
Empowering Independence Through Assistive Technologies: A Conversation with Kailey Medlock and Eric Reed from FAAST
In this episode of The Independent Life Podcast, we delve into the world of assistive technologies and their profound impact on enabling independence for individuals with disabilities. Our guests, Eric Reed, Executive Director of FAAST (Florida Alliance For Assistive Services and Technologies), and Kailey Medlock, FAAST's Training & Community Development Director, join us to share their insights and experiences. We explore the diverse range of assistive technologies available, catering to individuals of all ages and disabilities. Discover how FAAST has evolved under Eric's leadership, expanding its reach through regional distribution centers like The Center For Independent Living of North Central Florida. Learn about the innovations revolutionizing assistive technologies, including SMART homes designed to enhance accessibility and autonomy for people with disabilities. Eric sheds light on the intersection of assistive technologies and agriculture, discussing the role of FAAST in supporting farmers with disabilities through the Florida AgrAbility Project Advisory Board. We also delve into the importance of reaching rural communities and ensuring access to repair services for existing assistive technologies. Discover how FAAST's partnership with The Center For Independent Living has empowered hundreds more individuals each year, promoting independence and enriching lives within our community. Tune in to gain valuable insights into the ever-evolving world of assistive technologies and their profound impact on independence and quality of life. Don't forget to subscribe to The Independent Life Podcast for more inspiring stories and resources for people with disabilities! Episode Resources: Florida Alliance of Assistive Services and Technology: https://faast.org/ National Assistive Technology Act Technical Assistance and Training (AT3) Center - to find a state's AT program (outside of Florida): https://at3center.net/state-at-programs/ April 17th - AT Awareness Day (by ATAP): https://ataporg.org/policy-and-advocacy/national-at-awareness-day/ June 14-16, Family Cafe: https://familycafe.net/
From Service to Leadership: A Conversation with Victoria Giatanis
Apr 4 2024
From Service to Leadership: A Conversation with Victoria Giatanis
In this compelling episode, we are joined by Victoria Giatanis, the Acting Director for Vocational Rehabilitation for the Florida Department of Education. Victoria's journey to this esteemed position is marked by her dedication to service and her role as a public servant. From her early days in teaching, where she championed exceptional student education, particularly for those with visual impairments, to her current role shaping policies and initiatives, Victoria's impact is profound. As a mother to Mira Gaitanis, whose success as a young adult with a disability is credited to Victoria and her husband, our conversation begins with the impact of disability on family life, especially as the daughter of a veteran with service-connected disabilities. Throughout the episode, Victoria shares valuable advice for parents of children with disabilities, drawing from her own experiences and emphasizing the importance of advocacy and navigating the education system effectively. We explore the qualities of a good educator for students with disabilities and delve into what it takes to be successful in Victoria's position as a servant of our state, focusing on collaboration, leadership, and service. Victoria's journey is one of humility and service, driven by a deep-rooted motivation to make a positive impact in the lives of individuals with disabilities. Join us as we uncover the driving forces behind Victoria's career choices and gain insights into her role as a leader and advocate in the disability community. Episode Resources: Universal Design and Growth Mindset with Mira GaitanisSelf-Advocacy and Vulnerability with Mira Gaitanis Resources for parents of students with disabilities I’ve found helpful below: Parent Help - FDLRSStaff Contacts (fldoe.org)Parent Information (fldoe.org)   For parents of students 14 and up: Project 10: Transition Education NetworkContact the Florida Division of Blind Services (fldoe.org)Customers Contact Us | Vocational Rehabilitation | Florida Department of Education (rehabworks.org)
Empowering Independence: CIL Day 2024
Feb 8 2024
Empowering Independence: CIL Day 2024
In this episode, we dive deep into the heart of CIL Day 2024, a pivotal event where Centers For Independent Living convene at the Capitol in Tallahassee to advocate for the rights and needs of individuals with disabilities. Tony, reflects on this year's remarkable success, marked by increased engagement with senators and representatives, signaling a growing momentum for the cause. Joining the conversation are esteemed guests who played vital roles in this year's event, as well as, in their every day role serving and advocating for our consumers. Jane Johnson, Executive Director of The Florida Association of Centers For Independent Living (FACIL), representing all 15 centers in Florida, provides insights into the collaborative efforts that make CIL Day possible. Brian Johnson, Chief Program Officer at the Center for Independent Living of Broward and Gold Coast, shares his perspectives on the impact of CIL Day on the local community. A highlight of this episode is Ken Kerstetter's firsthand account of attending CIL Day for the first time. As the Associate Director at Resource Center Disability Solutions, serving Brevard and Indian River Counties, Ken offers a fresh perspective on the significance of meeting with legislators and sharing stories of empowerment. We explore the year-round dedication that culminates in CIL Day, from grassroots advocacy to strategic planning by the FACIL legislative committee. The importance of securing funding to support independent living services is emphasized, with concrete examples illustrating the impact on individuals' lives. Our guests delve into their sources of inspiration and the values that drive their commitment to this critical work. From a shared dedication to promoting independence to a passion for fostering inclusive communities, their insights shed light on the enduring significance of CIL Day and the ongoing fight for disability rights. Tune in to gain a deeper understanding of the tireless advocacy efforts behind CIL Day and the transformative impact on individuals striving to live independently within their communities.
Empowering Voices: Navigating Disability Culture and Leadership with Christina Mills
Jan 18 2024
Empowering Voices: Navigating Disability Culture and Leadership with Christina Mills
In this compelling episode, we sit down with Christina Mills, the Senior Director of Inclusive Policy & Advocacy for Elevance Health, who has just returned from a transformative trip to Japan with JIL (Japan Independent Living). Christina shares her insights into disability history, paying tribute to the influential figure, Justin Dart, and exploring the impact of his advocacy. Delving into her personal journey, Christina opens up about her upbringing with Osteogenesis imperfecta, a genetic disorder that shaped her resilience. From navigating the challenges of growing up with a disability to being invited to the Youth Leadership Forum in California, her story is one of empowerment and determination. Drawing from her extensive experience with the California Independent Living Council and active involvement in the state association, Christina discusses her advocacy work within sectors such as emergency management and digital access for people with disabilities. Tony and Christina engage in a rich conversation, exploring the intricate nuances of disability identity and culture. They tackle the paradox of cultivating a distinct disability culture while advocating for inclusion. The dialogue extends to strategies on how advocates can work in unity to achieve independent living and leadership. Join us for an enlightening conversation as Christina Mills and Tony unravel the complexities of disability advocacy, paving the way for a more inclusive and empowered future.
Bridges of Unity: Reflections on Independence and Collective Growth with Tony Delisle
Jan 4 2024
Bridges of Unity: Reflections on Independence and Collective Growth with Tony Delisle
In this reflective episode, Tony shares his thoughts on the past year, expressing gratitude for the milestones achieved by CILNCF and its role in fostering independence. But Tony, ever the visionary, isn't one to rest on laurels. He shares his philosophy of being pleased with where we are but never satisfied, always hungry for improvement—a sentiment that echoes the spirit of the entire independent living network. The episode unfolds with Tony exploring the profound connection between the independent living philosophy and the broader state of humanity. For Tony, it's more than just an organizational goal; it's a commitment to nurturing the collective spirit of humanity, encouraging people to embrace change and strive towards becoming the best versions of themselves. With the new year, Tony looks optimistically at the challenges that lie ahead, recognizing them as opportunities for growth—emphasizing that CILNCF is in the business of receiving people going through challenges. Disability, for Tony, is not a barrier but a thread that weaves through the fabric of the human experience, connecting us all. He shares his vision for disability to be a force that brings people together, a unifying element that transcends societal divisions. In a world that sometimes seems determined to tear us apart, Tony urges us to let disability be the bridge that brings us together. Tony's hope and wish for the future resonate throughout the episode—to see humanity come together more and more. Join us in this inspiring journey of reflection, unity, and the unwavering pursuit of a world where everyone, irrespective of ability, is embraced, valued, and celebrated.
A Visionary Dialogue on Adaptability, Advocacy, and Leadership with David Farm
Dec 21 2023
A Visionary Dialogue on Adaptability, Advocacy, and Leadership with David Farm
Welcome to another empowering episode of The Independent Life Podcast! In this episode, Tony engages in a refreshing conversation with David, the Executive Director of the Commission for the Transportation Disadvantaged. What makes this episode particularly special is the shared journey of Tony and David, both navigating the world with low vision and overcoming similar challenges in education, thanks to the support of their parents. From the challenges faced in navigating the education system to the importance of resiliency and adaptability, this episode unveils the personal stories and shared experiences that have shaped both Tony and David. Together, they dive into David's multifaceted experiences, spanning health and humane services, employment, and transportation. Listeners will gain insights into the challenges of being a student with a disability, the importance of assistive technologies, and the need for accommodations in education. The episode delves into personal growth, emphasizing the significance of adaptability and resiliency. The conversation unfolds into a rich exploration of disability as an asset rather than a liability, as they exchange thoughts on not succumbing to society's preconceived notions about disability. Leadership takes center stage as they dissect its true essence. It's not just about holding a position of authority but involves teamwork and taking ownership of decisions. David shares his journey in political science, public policy, and disability advocacy as he reflects on what is effective in destigmatizing disability.
Lobbying Beyond Politics: A Faithful Journey with Darrick McGhee
Dec 1 2023
Lobbying Beyond Politics: A Faithful Journey with Darrick McGhee
In this enlightening conversation, our guest, Darrick McGhee, a seasoned lobbyist for the Florida Association Center for Independent Living, unveils the the diverse facets of his life. Beyond the realms of political influence, Darrick is also a Pastor and a man of unwavering faith. Together, Tony and Darrick embark on an exploration of the distinctive intersectionality of lobbying, spirituality, and personal development. Darrick's experiences in both the public and private sectors provide a fresh perspective on what this role can truly embody. In this episode, Darrick lays bare the challenges faced by the disability community, drawing on his own experiences to create a narrative that resonates with authenticity. The conversation delves into the transformative power of education, dismantling social and cultural stigmas, and breaking free from limiting beliefs that hinder personal and collective progress. Darrick shares his formula for triumphing over adversity, inspiring all who tune in to believe in their own capacity to overcome. Tony and Darrick engage in a discourse on profound topics such as self-discovery, examining the question, "Who am I?" to unlock a deeper understanding of life's purpose. They explore the significance of facing challenges head-on and emerging stronger, using Darrick's life circumstances as a powerful testament to resilience. This conversation goes beyond the surface, exploring the heart of advocacy, faith, and the transformative journey of a lobbyist who is not only making a difference in the political landscape but also in the lives of those he serves. This episode is a beacon of empowerment, urging us all to reflect on our own paths and the potential for growth that lies within. Episode Resources: About Darrick McGheeFlorida Commission on Human Relations For More Information about the Center for Independent Living of North Central Florida, please visit http://www.cilncf.org/ Contact Us: cilncf.org@gmail.comGainesville office: (352) 378-7474 Ocala Office: (352) 368-3788
Leadership, Advocacy, and the Power of Utility: A Conversation with Commissioner Gabriella Passidomo
Nov 9 2023
Leadership, Advocacy, and the Power of Utility: A Conversation with Commissioner Gabriella Passidomo
Join us as we sit down with Commissioner Gabriella Passidomo, recently reappointed to the Florida Public Service Commission by Governor Ron DeSantis. Commissioner Passidomo, a dedicated public servant, takes us through her journey from serving in the FPSC’s Office of General Counsel to becoming a crucial figure in ensuring Floridians have access to essential utilities. A member of the National Association of Regulatory Utility Commissioners (NARUC), Gabby sheds light on her involvement in NARUC committees and task forces, emphasizing the significance of planning and safety in the realm of gas utilities. Delve into her advocacy for the Florida Telecommunications Relay Incorporated (FTRI), a service vital for those with hearing impairments, and discover her commitment to continual improvement in this crucial program. The conversation takes a personal turn as Gabby shares insights into her experiences with disability, drawing inspiration from her grandfather's journey towards independence with the support of personal care attendants/home-aids. She discusses the importance of equity in utility services, particularly for those with lower incomes. Tony engages Commissioner Passidomo in a candid discussion on leadership philosophy, emphasizing the values of connection, communication, and collaboration. Gain valuable insights on handling unconstructive criticism, a lesson applicable to leaders and individuals alike. Gabby's unique perspective as an ultra-athlete adds an intriguing layer to the conversation, exploring the parallels between the discipline required in athletics and its impact on one's approach to life. Tune in for a thought-provoking exploration of leadership, advocacy, and the diverse roles Commissioner Gabriella Passidomo plays in shaping the landscape of public service and utilities in Florida. Episode Resources: PSC Website: https://www.floridapsc.com/ Book Recommendations: The River of Doubt: Theodore Roosevelt's Darkest Journey, by: Candice MallardAlexander Hamilton, by Ron ChernowThe Sympathizer, by Viet Thanh NguyenThe Roosevelts by Ken Burns on PBS
Navigating Florida's Legislative Landscape with Jane Johnson
Oct 26 2023
Navigating Florida's Legislative Landscape with Jane Johnson
In this episode, we sit down with Jane Johnson, the dedicated CEO of the Florida Association of Centers For Independent Living (FACIL), representing all 15 centers across the Sunshine State. As Florida gears up for its upcoming legislative season, Jane takes us on a journey through the world of advocacy, legislation, and the power of collaboration. Jane begins by providing an insightful introduction to FACIL, shedding light on the organization's mission and its crucial role in supporting people with disabilities in Florida. Join us as she delves into the intricate details of the legislative season, giving us a glimpse of the cultural and political climate in the state. The heart of the discussion revolves around the legislative agenda FACIL is championing. With unwavering dedication, Jane shares valuable information for those involved in public entities, shedding light on the intricacies of the advocacy process. One key aspect that Jane and Tony explore is the importance of networking with other organizations. They emphasize the need to work closely with agencies like the Agency for Persons with Disabilities (APD) and the Department of Child and Family Services to create a more inclusive and supportive environment for individuals with disabilities. Tune in to this episode to gain a deep understanding of the vital work FACIL is doing, the legislative season ahead, and the passion that drives the leaders in the field of independent living. It's a journey that promises to inspire and inform.
Empowering Change: Systems, Leadership, and Unity with Mary Mayhew
Oct 12 2023
Empowering Change: Systems, Leadership, and Unity with Mary Mayhew
In this episode, we explore the vital systems that primarily serve vulnerable communities. We delve into the intricacies of these systems, from Medicaid and child protective services to housing and transportation. Our guest, Mary Mayhew, is tasked with overseeing these massive systems that impact the lives of hundreds of thousands, if not millions, of individuals. Her role is not just about maintaining the status quo; it's about finding ways to make these systems better and more responsive to the needs of the most vulnerable members of our society, many of whom are people with disabilities. Tony and Mary engage in a dynamic discussion about the inherent purpose and essence of these systems, aimed at extending a helping hand to those in need. Together, they explore the strategies and opportunities for improvement within these systems, dissecting the "why" behind their existence and their fundamental mission. Mary shares invaluable insights about leadership, the importance of a guiding "north star," cultivating self-confidence and self-worth, and embracing humility. Through personal anecdotes and experiences, they tackle the challenges we all face in life and how we can approach them with resilience and determination. This episode isn't just about systems and leadership; it's also about personal growth and self-care. Discover the significance of building a strong social support system and the importance of dedicating time to be of service to others. In an increasingly divisive world, they also explore ways to foster unity and bridge the gaps that separate us.
A Journey of Resilience and Purpose with Cammeron Smith
Sep 28 2023
A Journey of Resilience and Purpose with Cammeron Smith
Join Tony Delisle on this inspiring episode as he sits down with Cammeron Smith, a dedicated professional working at the CILNCF Gainesville office, focusing on paratransit services. Cammeron's remarkable work involves reaching out to the consumers to determine their need for paratransit services, breaking down the transportation barriers that hinder individuals from accessing education, employment, and full community inclusion. In this deeply moving conversation, Cammeron shares his personal journey into the world of disability, a journey that began with a traumatic accident that should have taken his life but didn't. He delves into the physical, mental, emotional, and spiritual challenges he faced in the aftermath of the accident and how these experiences transformed his life. Cammeron and Tony explore the higher purpose and calling that emerged from Cammeron's circumstances. They discuss the struggles he faced while recovering and the ongoing transformation he continues to undergo. Together, they dive deep into the world of post-traumatic stress disorder (PTSD), shedding light on what it's like to be triggered into a PTSD episode and how Cammeron employs techniques to manage and overcome these distressing situations. The conversation also touches on the crucial topic of mental health, with Cammeron candidly sharing his struggles and how he's working towards overcoming the challenges. He emphasizes the importance of establishing a daily routine as a foundation for mental well-being. Cammeron's story is not only one of resilience but also a testament to the significance of fellowship and unity among individuals. He passionately discusses the importance of finding and creating our life's purpose, showcasing his commitment to helping others overcome their obstacles and lead independent lives. About Cammeron: Cammeron Smith, originally from Williston, FL, relocated to Gainesville during 7th grade, attending Fort Clarke Middle School and Buchholz High School. In high school, they studied Italian for four years, participated in marching band, and played lacrosse. His college journey began as a nursing major at Santa Fe College, simultaneously contributing to the Gator Band's drumline for two years. However, a life-altering car accident prompted a change in direction. Cammeron transitioned to IT-Security Risk Management, earning their A.S. degree in Spring 2022. Currently pursuing a Bachelor's in IST-Security, Cammeron anticipates graduating in Spring 2025. He is passionate about philosophical conversations, Star Wars, Marvel, DC, and sports. Future aspirations include living abroad to broaden their cultural horizons and fulfilling their dream of creating a comic. Episode Resources: CIL Services: https://www.cilncf.org/services/CIL Contact: https://www.cilncf.org/contact-us/
Equity at the Heart of Retail: Serving the Community With Monica Simmonds
Sep 14 2023
Equity at the Heart of Retail: Serving the Community With Monica Simmonds
In this episode, we sit down with a true champion of health equity, Monica Simmonds, the Director of Health Equity Program Implementation for Walmart. But before we dive into the incredible work Walmart is doing, we rewind to a chance encounter that set the stage for a transformative partnership. Tony and Monica, who share a unique journey that began during Tony's first semester of his doctoral program at the University of Florida. Little did he know that teaching a class would lead to a powerful partnership focused on serving marginalized communities, particularly people with disabilities. Together, they embarked on service-based projects that harnessed evidence-based approaches to better understand how to support those in need. Monica joins us to shed light on the incredible work Walmart is doing to promote health and wellness within communities, especially for those facing health inequities. They delve into discussions on disability, attitudes, beliefs, and the importance of serving people with disabilities in society. The conversation takes a deep dive into vital topics such as social determinants of health, health disparities, and health inequities. Discover why Walmart has made it their mission to address these issues and how it's fundamentally ingrained in their values and goals. Monica also shares her insights on solving complex issues affecting marginalized communities and the innovative approaches required to make a lasting impact. Community emerges as a central theme, highlighting the pivotal role played by community-based organizations in this mission. Throughout the episode, we explore the core values and virtues that drive Monica's dedication to this work. Learn what motivates her every day and why she finds inspiration in serving others. Join us for a thought-provoking conversation that uncovers the intersection of retail, health, and community, and how a giant like Walmart is making a meaningful difference in people's lives. Episode Resources: Connect with Monica Simmonds: https://www.linkedin.com/in/monica-simmonds-msph-10268221b/About Monica Simmonds: https://monicasimmonds.com/
Connecting Needs to Resources with Mark Fafard
Aug 31 2023
Connecting Needs to Resources with Mark Fafard
Are you or someone you know in search of essential resources and services within your community to meet unique needs? If you're seeking affordable housing, medical assistance, transportation, social support, or ways to become more involved in your community, this episode is a must-listen! In this informative episode, we're delving into a remarkable solution for a pervasive challenge faced by many individuals and families in search of specialized resources and services within their communities. Mark Fafard has dedicated his efforts to creating a revolutionary web-based tool, "My Needs Network," an interactive platform has emerged as a beacon of hope for those grappling with finding the right resources to meet their specific needs. Tony and Mark's discussion navigates the genesis of My Needs Network and how it has evolved into an indispensable resource for individuals and families, especially those living with disabilities. The real magic lies in the fact that the platform is built with the intention to be continuosly improved and innovated by the very people it serves. Feedback, insights, and experiences from users will shape the platform into a robust network brimming with diverse resources and services across various categories. But My Needs Network isn't just about locating services; it's a dynamic hub fostering connections, relationships, and empowerment. This episode unravels the platform's unique features that empower users to not only access resources but also to connect with one another, forming a supportive community that transcends the virtual realm. As Tony and Mark delve into the platform's current status and its immense potential, it's clear that the future is a tapestry woven by the community it serves. The platform's growth, evolution, and impact are intrinsically tied to the contributions of the individuals and families it caters to. Through sharing their stories, expertise, and support, users can transform into invaluable resources for others, creating a self-sustaining cycle of empowerment. "My Needs Network" is a testament to the strength of collaboration, empathy, and technology. With countless individuals seeking assistance yet unsure where to turn, this episode shines a light on the transformative power of My Needs Network in illuminating the path towards necessary resources. Tune in to uncover the captivating journey of its creation, its present impact, and the boundless possibilities it holds for a more connected and supported future. Whether you're someone in need or someone who knows someone in need, this episode hopes to help you navigate towards connecting with the necessary resources. My Needs Network Mission: Designed for and driven by families and caretakers, My Needs Network is a special needs specific, community-based resource platform. We provide easy to use networking tools for special needs families and organizations to connect, share and find resources. My Needs Network’s abilities and content is solely dependent on the valuable information and expertise provided by the special needs community. My Needs Network Message: Dear Special Needs Community: Please note, this is YOUR platform so if you have any suggestions, edits, ideas, or comments that will lead to My Needs Network working for you, please let us know. This includes but not limited to: Resources that need to be added to the databaseEdits to preexisting resourcesIdeas for additional tools to be added to My Needs NetworkIdeas to improve existing My Needs Network toolsGeneral thoughts on improving My Needs Network overall Contact Mark: mark@myneedsnetwork.com Episode Resources: My Needs Network: https://www.myneedsnetwork.com/homeConnect with Mark Fafard: https://www.myneedsnetwork.com/about/contact
Building Inclusive Communities with Ashlyn Michael
Aug 17 2023
Building Inclusive Communities with Ashlyn Michael
In this captivating episode, we're joined by an inspiring individual who is making waves in the world of community engagement and empowerment. Ashlyn Michael, our Community Health Worker at The Center For Independent Living of North Central Florida, sits down with us to share her remarkable journey and shed light on the invaluable work she's been doing to foster a sense of belonging and visibility within the community. In this candid conversation, we delve deep into Ashlyn's personal journey, navigating life with a low vision disability. Through her own experiences, she brings an unparalleled perspective on the challenges and triumphs faced by those who often go unseen. We'll learn how Ashlyn's unique insight serves as a driving force behind her passion for making a real difference. Together, Ashlyn and Tony dive into the heart of the matter—what does "community" truly mean? Through a thought-provoking conversation, they dissect how to authentically connect, ensuring every individual feels not just included, but celebrated. And it starts with one fundamental principle: asking and understanding what people what they truly need. Disability identity comes to the forefront as Ashlyn eloquently articulates the complexities of defining oneself within the context of disabilities. The conversation delves into the intrinsic drive to serve others and the core values that fuel Ashlyn's dedication to her work. From adaptability to social fluency, and from empathy to the innate desire to make a positive impact, listeners gain insight into the qualities that make Ashlyn's approach so effective and inspiring. Episode Resources: School Outreach Efforts with Emily, Ashlyn, and Alex: https://open.spotify.com/episode/6sWqWNATodvumpI44mYxbE?si=7SWx7YanQqiF9RVBxf6oqwBridging The Gap Between Clinic and Community, with Dr. Nancy Hardt: https://open.spotify.com/episode/464ZxjFSJVLPwoxJyA1yR6?si=8xzMte6gQWuCf9fImQyYqA
Triumph Over Adversity: Embodying Positivity and Advocating For Disability Rights
Aug 3 2023
Triumph Over Adversity: Embodying Positivity and Advocating For Disability Rights
Join us for an inspiring episode as we sit down with Sean, whose life changed dramatically when he was diagnosed with Multiple Sclerosis (MS) in 2003. From facing initial misdiagnosis to navigating insurance denials, Sean's journey sheds light on the harsh realities individuals with disabilities endure. Discover how he embraced optimism and empowered himself with a positive mindset, leading to remarkable transformations. Sean's passion for writing led him to explore the legacy of Justin Dart, the Father of the Americans with Disabilities Act, and delve into the rich history of the disability rights movement. Tune in for an eye-opening conversation on courage, resilience, and the power of positivity in the face of adversity. Meet Sean Spence, a visionary leader with an unwavering commitment to community service, organizational development, and fundraising. Throughout his career, Sean has honed his expertise in various domains, including marketing, event production, and business management, amassing an impressive track record of raising over $20 million to support critical causes. Sean's entrepreneurial spirit has driven him to found and successfully run two ventures: The Sunrise Agency, a thriving marketing firm, and Community Events, a renowned event production company. Additionally, he contributed significantly to a $700 million e-commerce company, serving on its esteemed leadership team. With a keen understanding of marketing and organizational building, Sean has traversed diverse roles, gaining invaluable insights along the way. Today, he channels his passion and skills to collaborate with The Salvation Army, where he actively raises funds and awareness to empower those living in poverty and facing the aftermath of disasters. Sean Spence's journey is a testament to his dedication to making a positive impact in the world, and his determination to build a more compassionate and inclusive society. Episode Resources: Breaking Barriers: Disability History in the United States
Helping Children With Special Needs Be Their Best, with Jeanetta Bryant
Jul 20 2023
Helping Children With Special Needs Be Their Best, with Jeanetta Bryant
On this episode, Tony is joined by Founder and CEO of Abilities Workshop, Jeanetta Bryant. Abilities Workshop is dedicated to serving families and caregivers to those with special needs so that they can be their best. If you have a child that has been diagnosed with Autism or another Special Needs Diagnosis, Abilities Workshop is here to help. They offer a variety of programs and workshops to help you and your family navigate this process. They also have series that have been designed for the newly diagnosed family's all the way through to families looking for ways to find success as an adult.  Jeanetta Bryant is a dynamic and compassionate leader in the special needs community. With over 10 years of experience in the industry and 3 years with Abilities Workshop, Inc., she has dedicated her career to restoring hope and encouragement to families with children who have special needs. Her journey into this field began when her daughter was diagnosed with a medical condition. Over the last decade, Jeanetta has witnessed her child defy the odds and overcome their diagnoses, inspiring her to become an advocate, author, and speaker. She has written books, developed learning apps, and founded a non-profit organization to provide resources and support to families in need. Prior to starting her non-profit, Jeanetta had a diverse background in entrepreneurship and corporate sales, managing national accounts in a business-to-business environment. With a Bachelor's degree in Interdisciplinary Information Technology - Digital Media, she is skilled in programming, graphic design, advertising, and marketing. Jeanetta is a dreamer who believes in hard work and never giving up on a project. She is known for her honesty, thoughtfulness, compassion, quick decision-making abilities, and her willingness to constantly learn and adapt to different audiences. At Abilities Workshop, Inc, Jeanetta works with parents, pastors, and teachers to help children with special needs reach their full potential. She provides workshops, podcasts, live events, and publications to help families access the resources they need. The organization also participates in local resource fairs, events, and walks, and provides materials for other events. In her personal life, Jeanetta is a big fan of chocolate, romantic comedies, and college football (Go Noles!). But her true pride and joy is her family - her husband Matt Bryant and their two children, Jackson and Lindsey. Together, they love making memories at theme parks and simply laughing and talking in the kitchen. Overall, Jeanetta Bryant is a dedicated advocate for families with special needs and an inspiring leader in the community. She is committed to working together with others to provide support, resources, and hope to those who need it most. (407) 951-6117Autism Treatment Evaluation Checklist (ATEC): https://autism.org/autism-treatment-evaluation-checklist/
Promoting Health and Empowering Communities with Sarah Catalanotto
Jul 6 2023
Promoting Health and Empowering Communities with Sarah Catalanotto
In this thought-provoking episode, we are joined by Sarah Catalanotto, as we delve into the remarkable work of Area Health Education Centers (AHEC) in the state of Florida. Join us as we explore the extensive programming AHEC offers to promote health and facilitate the learning of pre-health professionals, including medical doctors, nurses, occupational therapists, physician assistants, and physical therapists. AHEC goes beyond traditional classroom education, providing invaluable hands-on experiences that bridge the gap between theory and practice. By working with individuals facing health disparities, AHEC nurtures essential skills such as health literacy, cultural competencies, and an understanding of social determinants of health. Our guest, Sarah, shares her personal experiences with disability and how she has channeled her knowledge and passion into serving people with disabilities through AHEC. Together, we explore the challenges faced by individuals with disabilities in navigating the healthcare system and discuss the significance of addressing these issues head-on. As an adjunct professor at the University of Florida in the College of Public Health and Health Professions, Sarah teaches a course called Community-Based Participatory Research. At the heart of this course is discovering how to engage communities, gain their trust, and empower them to identify their needs. We explore the development of programs and policies that address these needs and discuss sustainable approaches to community health initiatives. Throughout the conversation, we emphasize the importance of mobilizing communities to improve the health of individuals with disabilities. By empowering communities, we can tackle the root causes of preventable diseases and work towards a future where everyone can lead longer, healthier lives. Join us for this enlightening episode as Sarah shares her insights and advice on how to navigate the healthcare system, mobilize communities, and champion the health and well-being of individuals with disabilities. Together, we can foster positive change and build a healthier, more inclusive society. Sarah Catalanotto, MPH, CTTS, is the Executive Director at Suwannee River Area Health Education Center. Sarah has been with Suwannee River AHEC since 2011. In this role, she plans, organizes, directs, and evaluates the center’s programming and day-to-day operations. In addition, Sarah assists with grant writing and the development and management of the organization’s budgets, along with coordination of two statewide and two national associations. Prior to working at Suwannee River AHEC, she was a Tobacco Prevention Specialist within the Alachua County Health Department’s Tobacco Prevention and Control Program, and served as a Community Coordinator for the Chronic Disease Program. Sarah received her Bachelor of Art in Political Science and Sociology from Flagler College. Following her passion in healthcare and access to care, she pursed a degree in Public Health from the University of Florida College of Public Health and Health Professions. Episode Resources Suwannee River AHEC: https://srahec.org/Suwannee River AHEC LinkedIn: https://www.linkedin.com/company/srahec/⁠Suwannee River Area Health Education Center: p: (386) 462-1551Connect with Sarah: https://www.linkedin.com/in/sarah-catalanotto-mph-ctts-0b35a31a/Smoking Cessation In Populations With Disabilities with Sarah Catalanotto and Tobacco Free Florida: https://open.spotify.com/episode/0nGPRDGUV1nYsTZFuVjPb4
Disability: It's Not What You Think
Jun 22 2023
Disability: It's Not What You Think
In this thought-provoking podcast episode, join hosts Tony Delisle and Vanessa Spero as they delve into the multifaceted world of disability. In their engaging webinar, they unravel the intricacies of disability - exploring the definition, synonyms, and positive language associated with the term "disability." Tony and Vanessa go beyond mere definitions to discuss the concept of independent living and the vibrant culture surrounding it. They explore the attitudes and beliefs that shape our understanding of disability, addressing the pervasive issue of stigma within society. Together, they provide a comprehensive view by discussing the perspectives of individuals working within the disability community, as well as sharing insights from those with personal experiences of disability. Through their conversations, they hope listeners gain a broader understanding of the diverse range of experiences and perspectives within the disability community. Understanding the lexicon, laws, and cultural aspects surrounding disability can be daunting for those with limited exposure. Drawing from their own personal and professional experiences, Tony and Vanessa offer listeners an intimate glimpse into the world of disability, with the intentions of shedding light on the challenges faced by individuals with disabilities, while also highlighting the incredible resilience and strength within the community. Stereotypes and stigmas are confronted head-on in this enlightening conversation. Tony and Vanessa debunk common misconceptions and provide invaluable insights to improve communication and foster inclusivity when interacting with people with disabilities. Additionally, they touch upon important legislation and laws pertaining to disability rights, empowering listeners to advocate for equality and accessibility. Join us in this engaging and heartfelt discussion, as we challenge preconceived notions, and inspire listeners to embrace diversity and inclusion. Note: This podcast episode is intended for informational purposes only and should not be taken as legal or medical advice.
Mobilizing and Engaging the Disability Community: A Path to Inclusion and Empowerment with Dr. Mark Salzer, PhD
Jun 8 2023
Mobilizing and Engaging the Disability Community: A Path to Inclusion and Empowerment with Dr. Mark Salzer, PhD
Join us on a thought-provoking journey as we delve into the world of community psychology and the significance of mobilizing and engaging the disability community. In this captivating podcast, we sit down with Dr. Mark Salzer, a renowned licensed clinical community psychologist and professor in the College of Public Health at Temple University. Dr. Salzer shares his personal experiences and insights that led him to the field of mental health and his unwavering commitment to fostering community inclusion. Through engaging conversations, we explore the fundamental questions: What is community participation, and why is it crucial? Dr. Salzer guides us in understanding the transformative power of creating environments that not only tolerate but genuinely welcome individuals with disabilities. Discover the profound impact that active involvement and inclusion can have on people's lives, enabling them to experience a true sense of belonging, unity, and harmony within their communities. With a mission to connect, engage, and empower individuals, Dr. Mark Salzer shares valuable strategies for increasing community participation and fostering inclusivity. Drawing from his extensive expertise, he provides practical insights on how we can create stronger, more supportive communities that value the unique contributions and perspectives of all their members. Tune in to this enlightening podcast, as we uncover the importance of community engagement, the power of inclusion, and the transformative potential within each of us to create a society that celebrates diversity and strengthens through unity. Dr. Mark Salzer, PhD, is a distinguished professor at Temple University's College of Public Health. He has served as the principal investigator and director of the Temple University RRTC on Community Living and Participation for People with Serious Mental Illnesses since 2003. With over $30 million in federally funded research grants, Dr. Salzer has made substantial contributions to effective community mental health and rehabilitation services. He has published extensively, delivered over 450 presentations worldwide, and received prestigious awards for his impactful work. As a department chair, Dr. Salzer led significant achievements in student enrollment, faculty recruitment, and research funding. He has played pivotal roles in various committees, accreditation efforts, and grant review panels. Dr. Salzer's collaboration with government and community agencies has resulted in millions of dollars in new service grants, solidifying his commitment to improving mental health support. Episode Resources: The Temple University Collaborative on Community Inclusion: https://www.tucollaborative.org/