Lisa Patterson: Raising a SKDEAS teenager and the importance of self-care

Do you ever wonder about the future of our recently diagnosed kids?  Or what it what like for the parents that came before us that didn't have the benefit of a diagnosis for most of their child's life?   Me too!  Lisa Patterson is the mom to a 17-year-old daughter with Skraban-Deardoff Syndrome and she talks about what it was like to raise her daughter pre-diagnosis and the life of her daughter now, as well as where she sees her daughter in the future.  She tells us some great stories and gives great advice - including the importance of caring for ourselves so we can better advocate for our children.

Skraban-Deardoff Syndrome is a mouthful!  The Skraban-Deardoff Syndrome Foundation has developed the acronym of "SKDEAS"...making it a bit easier the talk about the syndrome.

Thank you for listening and for supporting the passion project to drive awareness for SKDEAS.

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Please visit SKDEAS.org for more information about Skraban-Deardorff and how you can support our superheroes.