The Guilbault Girls Show

Karen Guilbault

“It takes a village to raise a child” ~African Proverb ~

Welcome to the Guilbault Girls Show where you will have the opportunity to hear from mothers, fathers, siblings, and individuals themselves about their journey of living with a disability.  We also have special guests on to share the many resources that are available to those living with a disability and their families.  So, get ready to laugh, smile, cry, maybe even get a little angry when you hear some of these stories of their day-to-day struggles, but let’s not forget their many triumphs.

I know when I was a new mom, and my child was diagnosed with a disability I felt lost and alone and wondered what comes next. I learned from the ones that came before me and I want to be able to continue to share that knowledge and support to others.

As they say it takes a village, and if it weren’t for our village we wouldn’t be where we are today. So, will you help be that village, help us spread awareness, help us change mindsets, help us teach other's to be kind to one another…. well you can do that by simply sharing our show to the masses.

If you would like to support the Guilbault Girls on another level, consider becoming a Supporter of the Show! Your Funds will allow us to keep sharing valuable, heartfelt stories and resources! https://www.buzzsprout.com/1827471/supporters/new

If you would like to be on our show, be sure to contact us today and don’t forget to subscribe to our Guilbault Girls Podcast and YouTube show, and make sure to follow us on Facebook and Instagram at Guilbault Girls!

Facebook: @Guilbault Girls, Instagram: @GuilbaultGirls, YouTube: @Guilbault Girls, Email: GuilbaultGirls@gmail.com, and www.GuilbaultGirls.com.

We’d also like share our story on a deeper level with you. Our daughter, Faith Guilbault directed a documentary with BYkids, about her journey of living with a disability. You can view "Faith's World", which aired on PBS April of 2020 on the following link: https://www.pbs.org/video/faiths-world-ozblht/

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Episodes

Paul Vecchione, Founder and CEO of Long Island P.R.E.P. on Providing Proactive Addiction Solutions
May 7 2024
Paul Vecchione, Founder and CEO of Long Island P.R.E.P. on Providing Proactive Addiction Solutions
Welcome to the Guilbault Girls Show where you will have the opportunity to hear from mothers, fathers, siblings, and individuals themselves about their journey of living with a disability.In this episode I had the pleasure of interviewing Paul Vecchione, founder and CEO of Long Island P.R.E.P.Paul was born and raised in Suffolk County Long Island and has called it home for the past 40 years where he and his wife are raising their two children. Paul has been an educator on Long Island since 2004 and holds two master’s degrees from Long Island colleges. With so much vested in this region, Paul has taken a keen interest in what has become one of Long Island’s most devastating realities; substance abuse and addiction. Having worked with teenagers his entire professional career, Paul offers a unique perspective into the mitigating factors that drive adolescent behaviors, particularly those which can lead to destructive decisions. Substance abuse and its ensuing crippling effects on the lives of people and their families has Paul’s attention and it is for these reasons Paul is the CEO of Long Island P.R.E.P. Long Island P.R.E.P. provides proactive addiction solutions by hosting substance abuse prevention education to schools, teachers, parents and families. For more information go to:www.longislandprep.orgwww.theprepacademy.org www.missionzpodcast.comhttps://www.youtube.com/ @paulvecchione2513  As they say it takes a village, and you can help be a part of that village, simply sharing our show to the masses to spread awareness, change mindsets, and help teach other's to be kind to one another.You can become a Supporter of the Show by clicking on the link below. Your Funds will allow us to keep sharing these valuable, heartfelt stories and resources!https://www.buzzsprout.com/1827471/supportIf you would like to order a token with your word hand stamped and inked email me at GuilbaultGirls@gmail.com  Bracelets are $15 and Keychains are $10. That includes tax & shipping in the US.Want to be a guest on the show?!  Then be sure to contact us today and don’t forget to subscribe to our Guilbault Girls Podcast and YouTube show, and make sure to follow us on Facebook and Instagram at Guilbault Girls.Facebook: @Guilbault Girls, Instagram: @GuilbaultGirls, YouTube: @Guilbault Girls, Email: GuilbaultGirls@gmail.com, and Website: www.GuilbaultGirls.com. Our daughter, Faith Guilbault directed a documentary called Faith’s World about her journey of living with a disability which aired on PBS in April of 2020. You can watch the documentary in full at the following link the link: https://www.pbs.org/video/faiths-world-ozblht/Support the Show.
Awarding-Winning Children’s Book Author and Wordsmith Maggie van Galen on her King's Day Out Series
Apr 23 2024
Awarding-Winning Children’s Book Author and Wordsmith Maggie van Galen on her King's Day Out Series
Welcome to the Guilbault Girls Show where you will have the opportunity to hear from mothers, fathers, siblings, and individuals themselves about their journey of living with a disability.In this episode we had the pleasure of interviewing Maggie van Galen.Maggie is the author of two children’s book series -- The Adventures of Keeno & Ernest and King’s Day Out. All three books in the Keeno & Ernest series have received the nationally acclaimed Mom’s Choice Awards® among other individual awards. Her latest series, King’s Day Out, is co-written with a doctor of pediatric occupational therapy, and together they have broadened their scope to form a business with a mission of empowering children as they navigate life’s adventures. King’s Day Out LLC will incorporate books, resources and activities.Maggie’s favorite thing about being a children’s author is reading to children. She has read to more than 4,000 kids and “hasn’t lost one yet!” (Her personal claim to fame) Maggie also offers classroom and private sessions on writing which can tie in with a lesson plan and/or a specific theme.Maggie grew up in northern Michigan. She graduated from Michigan State University with a BA in Advertising and a minor in creative writing. After spending more than 10 years climbing the corporate ladder, Maggie decided to put her passion for writing to the forefront. She began writing for local newspapers and published a book of poetry. In 2000, Maggie and her husband moved to London where she worked at The Economist. After starting her family a few years later, the children’s stories began to flow and her new career began.Maggie lives in a small town north of Boston with her husband, two sons, a cat and their Bernese Mountain Dog, Koning (Dutch for King!).For more information please visit:www.kingsdayout.comhttps://www.maggievangalen.com/Travel along with King, a Bernese Mountain Dog puppy, and his friends as they experience, observe, and grow through new experiences together. Each story introduces a new adventure, the sensory challenges that can be associated with it, and some tools to help overcome any fears and anxieties. Whether a child benefits from OT-specific strategies or from learning by successfully regulating unfamiliar experiences, these books can support all children as they navigate new adventures.As they say it takes a village, and you can help be a part of that village, simply sharing our show to the masses to spread awareness, change mindsets, and help teach other's to be kind to one another.You can become a Supporter of the Show by clicking on the link below. Your Funds will allow us to keep sharing these valuable, heartfelt stories and resources!https://www.buzzsprout.com/1827471/supportIf you would like to order a token with your word hand stamped and inked email me at GuilbaultGirls@gmail.com  Bracelets are $15 and Keychains are $10. That includes tax & shipping in the US.Support the Show.
Brilliant Semenov a fierce advocate who draws on her own experiences of living with Cerebral Palsy
Apr 9 2024
Brilliant Semenov a fierce advocate who draws on her own experiences of living with Cerebral Palsy
Welcome to the Guilbault Girls Show where you will have the opportunity to hear from mothers, fathers, siblings, and individuals themselves about their journey of living with a disability.In this episode we had the pleasure of interviewing Brilliant Semenov.Since 2004, Brilly has been a fierce advocate for individuals with disabilities, drawing from her own personal experiences as someone with Cerebral Palsy. With a Master’s Degree in Organizational Leadership Development and Non-Profit Management, Brilly strives to raise awareness about the essential services available to those in need. As a disability self-advocate, special education consultant, and public speaker on disability services, she is on a mission to empower struggling families and help individuals achieve their goals and advocate for themselves.As they say it takes a village, and you can help be a part of that village, simply sharing our show to the masses to spread awareness, change mindsets, and help teach other's to be kind to one another.If you would like to order a token with your word hand stamped and inked email me at GuilbaultGirls@gmail.com  Bracelets are $15 and Keychains are $10. That includes tax & shipping in the US.Want to be a guest on the show?!  Then be sure to contact us today and don’t forget to subscribe to our Guilbault Girls Podcast and YouTube show, and make sure to follow us on Facebook and Instagram at Guilbault Girls.Facebook: @Guilbault Girls, Instagram: @GuilbaultGirls, YouTube: @Guilbault Girls, Email: GuilbaultGirls@gmail.com, and Website: www.GuilbaultGirls.com. Our daughter, Faith Guilbault directed a documentary called Faith’s World about her journey of living with a disability which aired on PBS in April of 2020. You can watch the documentary in full at the following link the link: https://www.pbs.org/video/faiths-world-ozblht/Support the Show.
Jacqueline & Alexa Child of Dateabilty. Dateability is the only dating app designed for the disabled and chronically ill communities.
Mar 26 2024
Jacqueline & Alexa Child of Dateabilty. Dateability is the only dating app designed for the disabled and chronically ill communities.
Welcome to the Guilbault Girls Show where you will have the opportunity to hear from mothers, fathers, siblings, and individuals themselves about their journey of living with a disability.In this episode we had the pleasure of interviewing Jacqueline and Alexa Child, founders of Dateabilty. Dateability is a dating app designed for people with disabilities and chronic illnesses.After becoming disabled due to chronic illnesses as a teenager, Jacqueline’s life was forever changed. She was quickly exposed to the ableist behaviors and expectations perpetuated by society. She found dating challenging and would always fear disclosing her disability. She constantly wished she could meet someone else who understood life with chronic illness and disabilities. Since there wasn’t an app to do that, Jacqueline and Alexa decided they would make one.Jacqueline graduated from Colorado College in 2016 with a degree in Psychology and received her master’s degree in Family and Human Development in 2017. She spends her free time playing music, volunteering at the local animal shelter, and hanging with family and her dog, Luna.Alexa graduated from College of the Holy Cross in 2012 and Georgetown University Law Center in 2015.  After law school, she began her career in public service and is currently a public interest attorney. She enjoys all the typical Colorado things—hiking and skiing—but also loves to cook and binge watch TV.For more information go to: https://info.dateabilityapp.com/As they say it takes a village, and you can help be a part of that village, simply sharing our show to the masses to spread awareness, change mindsets, and help teach other's to be kind to one another.You can become a Supporter of the Show by clicking on the link below. Your Funds will allow us to keep sharing these valuable, heartfelt stories and resources!https://www.buzzsprout.com/1827471/supportIf you would like to order a token with your word hand stamped and inked email me at GuilbaultGirls@gmail.com  Bracelets are $15 and Keychains are $10. That includes tax & shipping in the US.Want to be a guest on the show?!  Then be sure to contact us today and don’t forget to subscribe to our Guilbault Girls Podcast and YouTube show, and make sure to follow us on Facebook and Instagram at Guilbault Girls.Facebook: @Guilbault Girls, Instagram: @GuilbaultGirls, YouTube: @Guilbault Girls, Email: GuilbaultGirls@gmail.com, and Website: www.GuilbaultGirls.com. Our daughter, Faith Guilbault directed a documentary called Faith’s World about her journey of living with a disability which aired on PBS in April of 2020. You can watch the documentary in full at the following link the link: https://www.pbs.org/video/faiths-world-ozblhtSupport the Show.
Dr. Edward Kuwera, Assistant Professor of Ophthalmology and Fellowship Program Director in the Division of Pediatrics and Adult Strabismus at The Wilmer Eye Institute of The Johns Hopkins University discusses Cortical Vision Impairment
Mar 12 2024
Dr. Edward Kuwera, Assistant Professor of Ophthalmology and Fellowship Program Director in the Division of Pediatrics and Adult Strabismus at The Wilmer Eye Institute of The Johns Hopkins University discusses Cortical Vision Impairment
Welcome to the Guilbault Girls Show where you will have the opportunity to hear from mothers, fathers, siblings, and individuals themselves about their journey of living with a disability. I am your host Karen Guilbault and today’s guest is Dr. Edward Kuwera.Dr. Edward Kuwera is an Assistant Professor of Ophthalmology and FellowshipProgram Director in the Division of Pediatrics and Adult Strabismus at The Wilmer EyeInstitute of The Johns Hopkins University. His primary focus involves managing complex forms of strabismus, including the surgical management of cyclovertical diplopia, reoperations, and strabismus from thyroid eye disease. He is one of very few surgeons in the world who performs adjustable strabismus surgery for both adults AND children, done on the same day of the procedure.He is an award-winning educator and a member of the Pediatric Eye DiseaseInvestigator Group (PEDIG), a multi-center network of providers who implement clinical trials to optimize pediatric eye care. He is the Wilmer residency program’s Co-Division Education Champion in ophthalmic optics, and Division Education Champion in pediatric ophthalmology – providing instruction on clinical skills, surgical techniques,and review of the basic sciences.Dr. Kuwera has expertise and interest in other areas of ophthalmology includingnystagmus, amblyopia, and cortical visual impairment. He is working with a neurologistand several biomedical engineers on augmented reality and virtual reality technologiesto help better diagnose and treat these problems in the future.Disentangling How the Brain is "Wired" in Cortical (Cerebral) Visual Impairmenthttps://pubmed.ncbi.nlm.nih.gov/28941531/Pediatric Eye Care Educational Videoshttps://www.hopkinsmedicine.org/wilmer/education/videosAs they say it takes a village, and you can help be a part of that village, simply sharing our show to the masses to spread awareness, change mindsets, and help teach other's to be kind to one another.If you would like to order a token with your word hand stamped and inked email me at GuilbaultGirls@gmail.com  Bracelets are $15 and Keychains are $10. That includes tax & shipping in the US.Want to be a guest on the show?!  Then be sure to contact us today and don’t forget to subscribe to our Guilbault Girls Podcast and YouTube show, and make sure to follow us on Facebook and Instagram at Guilbault Girls.Facebook: @Guilbault Girls, Instagram: @GuilbaultGirls, YouTube: @Guilbault Girls, Email: GuilbaultGirls@gmail.com, and Website: www.GuilbaultGirls.com. Our daughter, Faith Guilbault directed a documentary called Faith’s World about her journey of living with a disability which aired on PBS in April of 2020. You can watch the documentary in full at the following link the link: https://www.pbs.org/video/faiths-world-ozblht/ Support the Show.
Rachel Mast Shares Her Story of Living with Down Syndrome
Feb 27 2024
Rachel Mast Shares Her Story of Living with Down Syndrome
Welcome to the Guilbault Girls Show where you will have the opportunity to hear from mothers, fathers, siblings, and individuals themselves about their journey of living with a disability.In this episode I had the pleasure of interviewing Rachel Mast. Rachel Mast is 24 years old and a graduate of Olathe South High School and Project SEARCH and attended Missouri State University. Rachel is active in her local church, a local theatre program, and Improvaneers online. She has been in 26 plays and has spoken at many conferences. Rachel worked to pass the federal ABLE Act and went on to open the first Kansas ABLE account. She is a member of the National Down Syndrome Congress Policy and Advocacy Coalition and a past ABLE National Resource Center Advisor.  Rachel received the 2019 Laura Lee Self-Advocate Leadership Award for her leadership and advocacy activities. Rachel works for the University of Kansas Hospital as a patient greeter in the patient transport department. Rachel. who is passionate about advocating for people with Down syndrome, says she loves her life and hopes to get married and live in a pink house someday. As they say it takes a village, and you can help be a part of that village, simply sharing our show to the masses to spread awareness, change mindsets, and help teach other's to be kind to one another.You can become a Supporter of the Show by clicking on the link below. Your Funds will allow us to keep sharing these valuable, heartfelt stories and resources!https://www.buzzsprout.com/1827471/supportIf you would like to order a token with your word hand stamped and inked email me at GuilbaultGirls@gmail.com  Bracelets are $15 and Keychains are $10. That includes tax & shipping in the US.Want to be a guest on the show?!  Then be sure to contact us today and don’t forget to subscribe to our Guilbault Girls Podcast and YouTube show, and make sure to follow us on Facebook and Instagram at Guilbault Girls.Facebook: @Guilbault Girls, Instagram: @GuilbaultGirls, YouTube: @Guilbault Girls, Email: GuilbaultGirls@gmail.com, and Website: www.GuilbaultGirls.com. Our daughter, Faith Guilbault directed a documentary called Faith’s World about her journey of living with a disability which aired on PBS in April of 2020. You can watch the documentary in full at the following link the link: https://www.pbs.org/video/faiths-world-ozblht/Support the Show.
Jawanda Mast, Wife, Mom and Grassroots Advocacy Manager of National Down Syndrome Congress
Feb 13 2024
Jawanda Mast, Wife, Mom and Grassroots Advocacy Manager of National Down Syndrome Congress
Welcome to the Guilbault Girls Show where you will have the opportunity to hear from mothers, fathers, siblings, and individuals themselves about their journey of living with a disability.In this episode I had the pleasure of interviewing Jawanda Mast. Jawanda is the National Down Syndrome Congress (NDSC) Grassroots Advocacy Manager. She has been involved in disability policy advocacy since her daughter Rachel was born with Down syndrome over 24 years ago. Jawanda has graduate and undergraduate degrees from the University of Arkansas and was honored with the 2017 Alumni Community Service Award for her body of advocacy work.  She spent eight years advocating for the passage of the federal ABLE Act. She has provided written and oral testimony on a variety of federal and state policy issues and has served on many state-appointed committees.  Jawanda believes we all have a story, and we can use those stories to impact change at all levels. She is passionate about the meaningful inclusion of individuals with Down syndrome and other intellectual disabilities in all aspects of the community and has presented at many conferences.  Jawanda says her work is a #laborofloveandconviction. To learn more about NDSC got to: https://www.ndsccenter.org/As they say it takes a village, and you can help be a part of that village, simply sharing our show to the masses to spread awareness, change mindsets, and help teach other's to be kind to one another.You can become a Supporter of the Show by clicking on the link below. Your Funds will allow us to keep sharing these valuable, heartfelt stories and resources!https://www.buzzsprout.com/1827471/supportIf you would like to order a token with your word hand stamped and inked email me at GuilbaultGirls@gmail.com  Bracelets are $15 and Keychains are $10. That includes tax & shipping in the US.Want to be a guest on the show?!  Then be sure to contact us today and don’t forget to subscribe to our Guilbault Girls Podcast and YouTube show, and make sure to follow us on Facebook and Instagram at Guilbault Girls.Facebook: @Guilbault Girls, Instagram: @GuilbaultGirls, YouTube: @Guilbault Girls, Email: GuilbaultGirls@gmail.com, and Website: www.GuilbaultGirls.com. Our daughter, Faith Guilbault directed a documentary called Faith’s World about her journey of living with a disability which aired on PBS in April of 2020. You can watch the documentary in full at the following link the link: https://www.pbs.org/video/faiths-world-ozblht/Support the Show.
To Educate, Empower & Encourage people with & without disabilities with Michelle Steiner
Jan 30 2024
To Educate, Empower & Encourage people with & without disabilities with Michelle Steiner
Welcome to the Guilbault Girls Show where you will have the opportunity to hear from mothers, fathers, siblings, and individuals themselves about their journey of living with a disability.In this episode we had the pleasure of interviewing Michelle Steiner. Michelle is a disability, writer, advocate, and paraeducator. She has published articles on The Mighty, Non-Verbal Learning Project, Dyscalculia Blog, The Reluctant Spoonie, Imagine the World as One Magazine, and Word Gathering. Recently she began a blog called Michelle’s Mission where she blogs about disability and shares her love for photography.  Her photographs were featured in Word Gathering and Independent and Work Ready. She works as a paraeducator in a school with students with disabilities and currently resides in Pennsylvania with her husband and two cats.To learn more about Michelle, be sure to check out her website at:https://www.michellesmission.net/As they say it takes a village, and you can help be a part of that village, simply sharing our show to the masses to spread awareness, change mindsets, and help teach other's to be kind to one another.You can become a Supporter of the Show by clicking on the link below. Your Funds will allow us to keep sharing these valuable, heartfelt stories and resources!https://www.buzzsprout.com/1827471/supportIf you would like to order a token with your word hand stamped and inked email me at GuilbaultGirls@gmail.com  Bracelets are $15 and Keychains are $10. That includes tax & shipping in the US.Want to be a guest on the show?!  Then be sure to contact us today and don’t forget to subscribe to our Guilbault Girls Podcast and YouTube show, and make sure to follow us on Facebook and Instagram at Guilbault Girls.Facebook: @Guilbault Girls, Instagram: @GuilbaultGirls, YouTube: @Guilbault Girls, Email: GuilbaultGirls@gmail.com, and Website: www.GuilbaultGirls.com. Our daughter, Faith Guilbault directed a documentary called Faith’s World about her journey of living with a disability which aired on PBS in April of 2020. You can watch the documentary in full at the following link the link: https://www.pbs.org/video/faiths-world-ozblht/ Support the Show.
Lauren Neubauer, BCBA Part 2 Positive Behavior Supports
Jan 16 2024
Lauren Neubauer, BCBA Part 2 Positive Behavior Supports
Welcome to the Guilbault Girls Show where you will have the opportunity to hear from mothers, fathers, siblings, and individuals themselves about their journey of living with a disability.In this episode we had the pleasure of interviewing Lauren Neubauer.Lauren is a mom & board-certified behavior analyst, who has 15+ years of professional experience in Human services.  She has passion for expanding her knowledge, personally and professionally, and she is proud to say she is one of the few BCBA’s who has supported people through the lifespan. Most recently, she’s been using her education and experience to spread the use of positive behavior supports through the workplace, community, and home. She is a member of the Association of Positive Behavior Support and Home & Community Positive Behavior Support committees.As they say it takes a village, and you can help be a part of that village, simply sharing our show to the masses to spread awareness, change mindsets, and help teach other's to be kind to one another.You can become a Supporter of the Show by clicking on the link below. Your Funds will allow us to keep sharing these valuable, heartfelt stories and resources!https://www.buzzsprout.com/1827471/supportIf you would like to order a token with your word hand stamped and inked email me at GuilbaultGirls@gmail.com  Bracelets are $15 and Keychains are $10. That includes tax & shipping in the US.Want to be a guest on the show?!  Then be sure to contact us today and don’t forget to subscribe to our Guilbault Girls Podcast and YouTube show, and make sure to follow us on Facebook and Instagram at Guilbault Girls.Facebook: @Guilbault Girls, Instagram: @GuilbaultGirls, YouTube: @Guilbault Girls, Email: GuilbaultGirls@gmail.com, and Website: www.GuilbaultGirls.com. Our daughter, Faith Guilbault directed a documentary called Faith’s World about her journey of living with a disability which aired on PBS in April of 2020. You can watch the documentary in full at the following link the link: https://www.pbs.org/video/faiths-world-ozblht/Support the Show.
Lauren Neubauer, BCBA Part 1 Self-Care
Jan 9 2024
Lauren Neubauer, BCBA Part 1 Self-Care
Welcome to the Guilbault Girls Show where you will have the opportunity to hear from mothers, fathers, siblings, and individuals themselves about their journey of living with a disability.I’m your host Karen Guilbault, and today’s guest is Lauren Neubauer.Lauren is a mom & board-certified behavior analyst, who has 15+ years of professional experience in Human services.  She has passion for expanding her knowledge, personally and professionally, and she is proud to say she is one of the few BCBA’s who has supported people through the lifespan. Most recently, she’s been using her education and experience to spread the use of positive behavior supports through the workplace, community, and home. She is a member of the Association of Positive Behavior Support and Home & Community Positive Behavior Support committees.I wanted to kick off the new year with one of the most important topics, which is self-care and mental well-being! I have known Lauren for several years from when I used to work at The Arc NCR. I also wanted to note that there will be a follow-up episode where we will dive deeper into Positive Behavior Supports so stay tuned!As they say it takes a village, and you can help be a part of that village, simply sharing our show to the masses to spread awareness, change mindsets, and help teach other's to be kind to one another.You can become a Supporter of the Show by clicking on the link below. Your Funds will allow us to keep sharing these valuable, heartfelt stories and resources!https://www.buzzsprout.com/1827471/supportIf you would like to order a token with your word hand stamped and inked email me at GuilbaultGirls@gmail.com  Bracelets are $15 and Keychains are $10. That includes tax & shipping in the US.Want to be a guest on the show?!  Then be sure to contact us today and don’t forget to subscribe to our Guilbault Girls Podcast and YouTube show, and make sure to follow us on Facebook and Instagram at Guilbault Girls.Facebook: @Guilbault Girls, Instagram: @GuilbaultGirls, YouTube: @Guilbault Girls, Email: GuilbaultGirls@gmail.com, and Website: www.GuilbaultGirls.com. Our daughter, Faith Guilbault directed a documentary called Faith’s World about her journey of living with a disability which aired on PBS in April of 2020. You can watch the documentary in full at the following link the link: https://www.pbs.org/video/faiths-world-ozblht/Support the Show.