This Thing Called Life

LifeCenter

This Thing Called Life is a podcast about acts of giving, kindness, compassion, and humanity. Host Andi Johnson, will introduce you to powerful stories about organ, eye, and tissue donation from individuals, families and front-line health care teams, whose experiences will hopefully inspire you and remind you, that while life is hard and unpredictable, it’s also beautiful. We hope this podcast serves as a catalyst for you to register to become an organ, eye, and tissue donor. read less
Society & CultureSociety & Culture

Episodes

EP 87: Coach Darryn Chenault's Kidney Transplant Journey
Apr 9 2024
EP 87: Coach Darryn Chenault's Kidney Transplant Journey
Coach Darryn Chenault's Kidney Transplant Journey   It's April so it's time to celebrate the tremendous generosity of those who have saved and healed others as organ eye and tissue donors. Today we introduce Coach Darryn Chenault, to share his Transplant Journey and discuss how he broke the cycle of not communicating about Kidney Disease in his family.  Episode Highlights: Andi introduces Coach Darryn Chenault and how she heard his story on TV Darryn shares with us his love for being on the field coaching and how one day there was a change in how his body responded to high-energy activities.Darryn explains how he thought it was a hereditary disease, ignoring the risk and thinking he was young and healthy.  Darryn eventually figured he would have to take meds like he had witnessed with his dad, but when he got COVID, it took his Kidney Issues from Stage 2 to Stage 5.Darryn shares that since he was “That Guy” a police officer, a hero to his family, and someone who works out every morning, he didn’t want to feel like he was not in control.Going through the struggles of his disease, Darryn had a hard time adjusting to not being “Out and about”, that’s when he decided that he needed a Kidney.Darryn shared how he was saved by a friend who advertised to the community that he needed a kidney transplant.Darryn’s nephew, Arryn, called and said he was a match and wanted to donate his kidney.Darryn’s family encouraged him to receive this gift.Andi and Darryn discuss the issue that Black families have with higher rates of kidney disease and diabetes, which can lead to the need for dialysis and transplants.Darryn suggests a lack of education, on the topic, prevents black families from stepping up at the same rate to be living donors.Darryn's actual birthday is April 9 but now he tells people that his new birthday is June 6, his Transplant Date, because he got more time.Darryn and Arryn have a unique bond after sharing this kidney transplant experience, inspiring others at family gatherings.Darryn extends gratitude for his ability to spend time with family and enjoy activities they couldn't do before, while also acknowledging the importance of self-care and education for transplant recipients. 3 Key Points: Coach Darryn was always there for his players and the community, he was someone everyone looked up to. Being on the receiving side was an adjustment requiring him to have new routines and acceptance of the gift of life.Coach Darryn shares his wonderful gift of receiving the Kidney Transplant from his nephew Arryn on June 6, and how their bond got even stronger and inspired other people in their family.Darryn shares gratitude for being able to spend time with family and enjoy activities they couldn't do before, while also acknowledging the importance of self-care and education for transplant recipients. Tweetable Quotes: “ Because here I am thinking I'm the guy like I work out in the morning. Good kids are looking up to me. I'm a police officer. I'm a superhero to my kids and my family. so to speak. I just wanted to be that guy.” - Darryn Chenault“And that's what I learned throughout this whole process that I needed to lean on my family.“ - Darryn Chenault“I mean, it was it was a tough ride, but we did it.” - Darryn Chenault“Black families have higher rates of kidney disease and diabetes, which many times lead to needing dialysis and a transplant yet we do not as a community… as a race, we don't step up at the same rate to be living donors as white people” - Andi Johnson"We gotta open up our heart and let them help us." - Darryn Johnson Resources: https://lifepassiton.org/ https://lifepassiton.org/board-of-directors-leadership/ https://www.facebook.com/LifeCenterOH https://www.youtube.com/user/LifeCenterOH https://aopo.org/
EP 85: From Transplant to Triumph: A Nurse's Journey of Healing, Giving Back and Finding Love
Mar 26 2024
EP 85: From Transplant to Triumph: A Nurse's Journey of Healing, Giving Back and Finding Love
From Transplant to Triumph: A Nurse's Journey of Healing, Giving Back and Finding Love   Today we introduce Asia Werner, a transplant recipient and nurse with UC Health. Tune in to hear Asia's incredible story of receiving her heart transplant as an infant, her decision to become a nurse, and her advice for young people who might have to go through an organ transplant journey.    Episode Highlights: Andi introduces our guest, Asia Werner.Asia shares that she received her heart transplant on her 1st birthdayAndi asks Asia how she felt after receiving media attention as she grew upAsia tells us that when she received her heart, it was around Christmas, and that made her story more interesting to the publicAndi asks Asia about her nursing career decisionAsia's love of taking care of others and making people feel betterAsia worked with many spinal cord injury patients, which she sees as a sign of the universe guiding her toward this role.Andi asks about Asia’s participation in the Transplant GamesThe Transplant Games are the Olympics but for the transplant team, so recipients, donors, and even some medical professionals participate.Asia tells us that everybody who participates in the games goes through the same situations and they can all relate to each other and agree that they shouldn’t take life for granted.Andi asks Asia what her advice would be for young people going through the same situation as she didAsia advises people who will go through the transplant journey that they can still do what normal people do but with caution.  The most important thing is to make sure that they maintain follow-up doctor visits for check-ups and listen to their doctor's recommendationsAsia reflects on her transplant experience, which provided her the freedom to pursue a normal life, and the importance of donorsAsia expresses gratitude to their donor's family, acknowledging their life-saving decision 3 Key Points: Asia tells her amazing story about receiving her heart on her 1st birthday, which was close to Christmas, and how it got media attentionAsia explains what got her into nursing. She tells us that at first, she thought she wanted to be a doctor but when she witnessed the difference between the direct impact of patient care nurses provided, it made it more clear what her choice would be.Asia shares her experience in the Transplant games and how the people participating relate to each other. Tweetable Quotes: “So it was really nice having somebody that I knew and was comfortable with because I was able to kind of open up a little more with him.” - Asia Werner“I know what it's like to have good nurses and I know what kind of a difference a good nurse can make.” - Asia Werner“Basically, it is the Olympics but for transplant people, so recipients, donors, and even some medical professionals are there.” - Asia Werner“Everybody is kind of in a similar situation.  My theory is that everybody knows how precious life is there and they understand, kind of, just how precious it is and how they don't take life for granted. They don't use their life to be mean to people.” - Asia Werner Resources: https://lifepassiton.org/ https://lifepassiton.org/board-of-directors-leadership/ https://www.facebook.com/LifeCenterOH https://www.youtube.com/user/LifeCenterOH https://aopo.org/
EP 82: Heartbeat Chronicles - Pioneering Heart Transplant at Christ Hospital With Guest Terri and George Cecere
Feb 13 2024
EP 82: Heartbeat Chronicles - Pioneering Heart Transplant at Christ Hospital With Guest Terri and George Cecere
Heartbeat Chronicles - Pioneering Heart Transplant at Christ Hospital With Guest Terri and George Cecere   February is American Heart Month, where women are encouraged to focus on their cardiovascular health. In today’s episode, we want to introduce you to George and Terri Cecere. Tune in and hear about their journey together managing heart disease and ultimately a heart transplant as Husband and Wife.    Episode Highlights: Andi introduces George and Terri CecereGeorge and Terri tell the story of how they met and Terri being diagnosed with Hodgkin's Lymphoma early in their relationshipIn 2002, Terri was diagnosed with Cardiomyopathy at 43 years oldTerri found a cardiologist with experience in heart failure treatment, which helped manage her condition until the time she needed a heart transplant at age 62Andi asks about the symptoms of CardiomyopathyTerri explains her symptoms and relates them to common heart failure Terri lived with cardiomyopathy for 17 years, receiving treatment and care from Dr. O'Brien and the advanced heart failure teamHer condition gradually worsened over time, leading to the recommendation of a heart transplantTerri received a heart transplant at Christ Hospital Health Network, becoming the first recipient of the programAndi asks Terri about how she feels about all the media attentionTerri shares her story and advocates for heart health awareness with the help of her husband George and Life CenterTerri expresses gratitude to the donor family for giving her the gift of life, acknowledging their difficult decision to donateTerri also talks about how the reality of having to care for someone with heart disease is challenging and the gift George has been through this journey 3 Key Points: Terri and George talk about how they thrived through 17 years of Heart DiseaseThey share their experiences for 17 years leading up to the heart transplant and express gratitude for how they were cared for by their doctor(s) and hospitalTerri now advocates for heart health awareness with the help of her husband George and Life Center  Tweetable Quotes: “Heart disease is the leading cause of death for women.” - Andi Johnson“I decided I needed a cardiologist who had experience with heart failure in particular, because it makes a huge difference.” - Terri Cecere“But I do think that intellectually we knew that at the end of the journey, the heart transplant was possible.” - George Cecere“Since Terri's transplant, which was, you know, only about 15 months ago, they've completed 19 heart transplants, which is an astounding number considering you know, how new the program is.” - George Cecere“And there's not a better person to have as your caregiver than George. I mean, he's, he was amazing.” - Terri Cecere Resources: https://lifepassiton.org/ https://lifepassiton.org/board-of-directors-leadership/ https://www.facebook.com/LifeCenterOH https://www.youtube.com/user/LifeCenterOH https://aopo.org/
EP 80: A Guide Through Loss And Transformation, With Kelly Gunnels Valines
Jan 30 2024
EP 80: A Guide Through Loss And Transformation, With Kelly Gunnels Valines
A Guide Through Loss And Transformation, With Kelly Gunnels Valines   In today’s episode, we want to introduce you to Kelly Gunnels aka author K.R.V. Gunnels as she discusses her story of advocacy and activism following the murder of a family member in 2017. Through the passing of her brother, she shares the importance of addressing systemic issues affecting black communities and how you can help others through organ donation. Kelly also talks about her book “A Widows Guide” and the inspiration behind it.   Episode Highlights: Kelly Gunnels shares her story of advocacy and activism following the murder of her brother Reco in 2017.Reco just renewed his license and when he was asked to be an organ donor, he said yes. Reco’s decision gave Kelly the confidence and comfort to contact Life Center. When Kelly was asked to speak about stopping gun violence in the community her journey of activism and leadership began.So often, in the black community, organ donation is not discussed but when Reco died, his family was able to honor his wishes and donate his organs, which helped several people in need. Kelly recalls the moments when Reco was brought to the ER, and how the hospital staff fought for his life.Kelly also experienced the loss of her husband which inspired her book; a Widows Guide. Her journey in writing made her recognize something about herself, she writes when she’s in pain. She recounts her journey through grief after losing her husband suddenly, including an investigation which enhanced her struggle to come to terms with the loss.Kelly met a fellow author who introduced her to a spiritual mentor, who helped her find faith and surrender to God's plan. 3 Key Points: Kelly Gunnels talks about the passing of her brother Reco and how the tragedy launched her journey to use her voice and talk about the reality of violence in the community and the importance of organ donation. She talks about her family’s legacy and how she started writing. The passing of her husband and the difficulty of the situation inspired her to write her book “A Widows Guide”.Organizing a blood drive and healing after loss. Tweetable Quotes: “​​We're all working to be the best that we can be.” - K. Gunnels“Everyone's not going to be a match for you. But you have to decide.” - K. Gunnels“So yes, they will fight for you, even if you sign up to be a donor they will still fight for your life.” - K. Gunnels“What I recognize about myself, is that I always write when I'm in pain.” - K. Gunnels“God shows up for us all the time.” - K. Gunnels Resources: https://lifepassiton.org/ https://lifepassiton.org/board-of-directors-leadership/ https://www.facebook.com/LifeCenterOH https://www.youtube.com/user/LifeCenterOH https://aopo.org/   https://www.amazon.com/s?k=widows+guide+journey+through+insanity   Facebook: Kelly Gunnels - https://www.facebook.com/kgunnels
The Four Year Journey Of Waiting For A Kidney Donation
Jan 16 2024
The Four Year Journey Of Waiting For A Kidney Donation
The Four Year Journey Of Waiting For A Kidney Donation   In today’s episode we want to introduce you to Carmelita C Jones. Carmelita discusses how she dealt with the realities of kidney failure, diabetes, high blood pressure, adulting, and why it is important for her to be an advocate for her circumstances. By understanding the real struggles of kidney disease and the symptoms associated she hopes to help the next generation avoid long term damage to the kidneys and help them live a better and healthier life!   Episode Highlights: Carmelita Jones shares her story of needing a kidney transplant and her passion for giving and loving othersShe shares about career changes and medical challenges after a car accidentShe talks about her diagnosis and treatment options for Kidney Failure.Life before the accident, Carmelita knew she had diabetes and high blood pressure. Carmelita discusses diabetes, the organ transplant waitlist, and the black community.“Make better choices, eat to live, not just live to eat.”She points out the importance of teaching the next generation about nutritional value because they risk making the same mistakes as the past generation.There is a rise in children being diagnosed with diabetes at a much younger ages.There are more organizations to help with better nutrition, such as fresh fruits and vegetables in grocery stores, cooking classes, community gardens, etc. that could help with the problem.Carmelita describes her dialysis routine, including early morning appointments and time spent in the bathroom. She also describes how COVID-19 affected her financial situation.Carmelita shares her struggles with kidney disease and the impact on her daily life, including the importance of regular dialysis treatments and the need for a kidney transplantCarmelita advocates for normalizing conversations about mental health and wellness in the black community, emphasizing the importance of being open and honest about one's struggles.She reflects on the importance of a supportive tribe in navigating adulting and its challenges.She provides contact information for those interested in learning more or donating, emphasizing the anonymous process and the positive impact on donors' lives. 3 Key Points: Carmelita Jones shares the reality of having Kidney Failure and how she found it out after an accident. She also shares that prior to the accident, she knew she was diabetic and had high blood pressure. Carmelita discusses a brief connection of the african american history and how we pass on the generational curse of bad choices when it comes to our health.Carmelita advocates for normalizing conversations about mental health and wellness in the black community, emphasizing the importance of being open and honest about one's struggles Tweetable Quotes: “High blood pressure is another major factor. Not to specify one particular group, but you know, African Americans suffer from high blood pressure because of our history literally on slave boats.” - Carmelita Jones“We need to teach our children first and foremost. So we don't give them our bad habits.” - Carmelita Jones“If you look at obesity, and our young people, it's off the charts. It's ridiculous. And it's because they're following our habit.” - Carmelita Jones“Adulting is hard. It requires so much patience. And a lot of times we take that time to take care of ourselves.” - Carmelita Jones Resources: https://lifepassiton.org/ https://lifepassiton.org/board-of-directors-leadership/ https://www.facebook.com/LifeCenterOH https://www.youtube.com/user/LifeCenterOH https://aopo.org/   Christ hospital call Bree @ 513-585-1427 for answers to any questions about the process of kidney donation for Carmelita   Facebook: Carmelita C. Jones - https://www.facebook.com/carmelita.c.jones
Todos Pueden Ser Donantes
May 23 2023
Todos Pueden Ser Donantes
Todos Pueden Ser Donantes   During this episode of This Thing Called Life, host Andi Johnson speaks with Courtney Schapier, a liver donor, the sister of a liver recipient, and one of the Organ Donation Coordinators at LifeCenter. Upon learning about her brother’s need for a liver, Courtney made the incredibly brave decision to make a difference. Her story is simply amazing!   Episode Highlights:    Courtney has been an Organ Donation Coordinator at LifeCenter for the past 6-7 years.Donation Coordinators handle the medical management and evaluation for organ donors.Amongst other responsibilities, Courtney plays a large part in matching organs to donors.Sometimes, organ donation acts as the silver lining to families that are going through an incredibly hard time.Donation coordination is a 24-hour job because donation does not run on a 9-5 schedule.From the time that a case opens to the time it closes, Courtney is on the clock for 36 hours.Courtney uses CrossFit and a great support system as outlets for the high stress levels of this job.With such a high-stress job, it’s no surprise that there is a high level of turnover.There have been times where the stress of the job has made Courtney question her desire to be here.COVID brought everything to a screeching halt when it first exploded back in March.The sheer amount of unknown information has made the ongoing global pandemic that much scarier.Things have finally begun to get back to normal, meaning more lives are being saved via organ donation.In 2016, Courtney’s brother discovered a huge mass on his liver that required a transplant.Unfortunately, Courtney lost her father when she was only 2 months old, so her brother acted as a father to her.Courtney was informed that she was a donor match for her brother while supporting a family that was pulling life-support.The weight of the situation started to feel heavy when Courtney sat on the pre-op table.Sitting outside the OR doors on the pre-op table, Courtney was rolled back for surgery after only 20 or 30 minutes.There were a handful of signs that something was wrong with Courtney’s brother’s liver long before the doctors caught it.After everything was said and done, it took a 10-hour procedure for Courtney to donate over half of her liver.The first thing that Courtney can remember is getting sick immediately after surgery.Courtney finally got to see her brother when she was transferred to the ICU.It was a complete shift in lifestyle for Courtney from the moment that she found out she was a donor match for her brother.Finding living liver donors is more rare than finding living kidney donors.Both Courtney and her brother fully recovered and are as healthy as they can be today.TX Jet was kind enough to donate its services to fly Courtney and her family out for surgery.After her donation, Courtney was sure that she was at the right job at LifeCenter.Courtney was comforted by the knowledge that everything in her life made her the perfect donor for her brother.This year, Courtney is focusing on being more present when she is with loved ones.The amazing thing about donation and transplantation is the opportunity to potentially save a life.   3 Key Points: Organ Donation Coordinators manage everything from the moment a donor decides to donate, to the time that the organ is sent to its recipient.It takes a very special person to not only manage the responsibilities of being a Donation Coordinator, but also the rollercoaster of emotions that come with the job.Courtney donated just over 50% of her own liver, which was oversized, to begin with, to save her brother’s life.  Resources Mentioned: LifeCenter (website) (Facebook) (Instagram) (YouTube) (Twitter)Andi Johnson (website) (LinkedIn)TX Jet (website)
May 2023 Appreciation and Community Impact Events - EP 76 Mini
May 16 2023
May 2023 Appreciation and Community Impact Events - EP 76 Mini
Episode 76: MAY 2023 Appreciation and Community Impact Events   It’s been a minute! April was National Donate Month, and we honored and celebrated our donor heroes across the region. Now sliding into May, we extend our gratitude to nurses and teachers, Happy National Nurses Week, National Transplant Nurses Week, and National Teacher Appreciation Week!  Episode Highlights: Life Center partnered with Hospitals across the region to honor donors, healthcare teams, and recipients. They also celebrated the donor heroes from 2022 with the Anual Donor Family Recognition ceremony.Life Center also partnered with the Center For Closing the Health Gap to discuss generational health and the Black Community at the Annual Health ExpoA partnership with the Cincinnati Reds also kicked off by honoring a donor hero Sliding into May, we extend our gratitude to nurses and teachers, Happy National Nurses Week, National Transplant Nurses Week, and National Teacher Appreciation week! 103,871 Men, Women, and Children need life-saving organ transplants, and 21 people will die because what they need isn’t available.Learn the importance of registering to be a donor, and why it matters!   3 Key Points: Life Center partnered across the Region to honor and celebrate donors, healthcare teams, and recipients.May will be a month of gratitude towards Nurses and Teachers!We must learn the importance of registering as a donor, why it matters, and the truth about organ donation.  Tweetable Quotes: “Today, 103,871 Men, Women, and Children need life-saving organ transplants, and 21 people will die because the organ they need isn’t available.” - Andi“Take a moment to learn why donation matters, and why registering to be a donor absolutely matters.” - Andi Resources: https://lifepassiton.org/ https://lifepassiton.org/board-of-directors-leadership/ https://www.facebook.com/LifeCenterOH https://www.youtube.com/user/LifeCenterOH https://aopo.org/
Episode 75: A Fifteen-year-old’s Decision to Become an Organ Donor and the Impact on his Family
May 2 2023
Episode 75: A Fifteen-year-old’s Decision to Become an Organ Donor and the Impact on his Family
On this episode of This Thing Called Life, Andi Johnson speaks with Aimee Cordrey. She will be sharing the gift of life that her son, Nicholas has given to many recipients and how influenced others to do the same. She will also be reflecting some light upon the life of her son and sharing her story of grief and pathway to healing. Tune in now for this special story. Episode Highlights:  Aimee Cordrey is married to Darren Cordray. They have been married for over 20 years and been together for a little bit longer than that. They met in college, and they have two sons Richard, a 19 year old, and Nick, who would be 17, but he is forever 15. Both of them are athletes, very different yet very similar in their interests and just how they approach life.In the middle of the pandemic Aimee and her family had been quarantined like everyone else for quite some time. School had just ended. Nick had just finished freshman year of high school and it was Memorial Day. Nick and Aimee went shopping that day to get some hamburgers and some vegetables and different things to grill out.Nick hadn't seen his friends because of quarantine. Aimee allowed him to go meet some of his friends at a local ice cream shop that was within walking distance of their house because one of his best friends was leaving for vacation the next day and she was going to be gone for two weeks.Nick decided to take a shower at night. All of a sudden Aimee heard the water go on and then they heard some really heavy, intense breathing, they were shocked. They thought it was our other son Richard, playing video games. She went to the basement, but it was not Richard, it was Nick.Nick loved life and he approached everything with this attitude of – "I can do it." His family really believed he was going to be okay and pull through.Aimee explains how and when they went about the conversation of Nick being an orgn donor. The hospital staff acknowledged all the protocols that they have in place, and they contacted Life Center.Nick had not yet been able to get his temps. He would have been eligible for them. The month that everything happened, he had actually registered as an organ donor.The letter that Aimee received said that Nick saved five people with seven organs, and probably impacted 40 to 50 others. The only thing Nick was unable to donate was his intestines, which they initially believed he was going to be able to do until they started doing the surgery.Aimee shares her thoughts on what it all meant to her, Darren and Richard to know that Nick helped so many people by donating his organs. “Learning that sometimes bad things happen to good people and learning to be ok with that and it is not even being ok with it, it's just accepting it- that is one piece of it. The donation piece brings that pride.” -AimeeAimee thinks that being able to talk about organ donation enables her to talk about Nick. Andi feels like Aimee is doing so much just to help people understand the magnitude of the donation and its impact.Andi asks Aimee about the project that she is working on at his school in his honor. One of Nick's friends, Grayson, started a change.org petition. He wanted to have the school board name the soccer field after Nick.There isn't a lesson here when it comes to losing a son. The only lesson that Aimee has learned is that bad things happen to good people, and she has learned that when you encounter a loss like this you integrate it into your life, you don't overcome it.Grief is something that has stages and some stages may be re-visited at times. It is ongoing.Nick loved everything. All of the time he was researching,  reading to understand deeply, caring deeply, everything was with passion, everything was with full intent. He didn't do anything without truly caring about it. If he was gonna do it, he was doing it 100% all in and that's what Nick was, and he is. 3 Key Points: Nick had a brain aneurysm that his family didn't know about. Nick did not complain of a headache that day. He didn't have any signs of anything that day. He had an amazing day, and it was that quick. They called 911. They were very quick, they took him to the hospital, his aneurysm ruptured three times. At the hospital, they did surgery on him and for 9 days his family thought Nick was going to make it. Aimee tells the listeners how Nick was able to help other people through the gift of life that he was able to give. Each one of us is different. Unique as people, Aimee thinks everyone's grief is very unique. She needed to be around other people. Aimee thinks that the donor family council is amazing. They are a source of strength. They are unshakable.  Resources Mentioned: LifeCenter | Website | Facebook | Instagram | YouTube|  TwitterAndi Johnson  website |LinkedIn Organ Donation Website
Episode 74: The Incredible Journey Of Receiving A Kidney
Apr 25 2023
Episode 74: The Incredible Journey Of Receiving A Kidney
Episode 74: The Incredible Journey Of Receiving A Kidney On this episode of This Thing Called Life, Andi is going to talk to Marty and Bonnie Garneret. Bonnie is not only Marty’s wife but his kidney champion also. Marty and his wife have been married for 41 years this month, and he says that has married an angel without wings. He shares his special journey; You don’t want to miss it!   Episode Highlights:  There are two types of diabetes, type one, which you are born with, and in that, your body does not produce any insulin, so you are on insulin shots from the time you are born. The second type comes from heredity, bad eating, lack of exercise, or all the bad stuff you do - lifestyle factors.If the doctor says you are prediabetic, that means your sugar is running high regularly, and it is destroying your body. So, you need to get to a specialist or endocrinologist.It is not a disease to be taken lightly because it leads to chronic kidney disease, which Marty has. If you don’t pay enough attention to it, then you are graded on a scale of stage one to stage five transplant material, and that is where Marty is at 70 years of age. When you first start out with  kidney disease, you are one of about 100 to 150,000 people on a list of possible recipients. Marty is lucky enough to meet a gal named Darcy Gibson, who has a foundation, a charitable organization, called Off The List, inc.To go through initial testing is a rigorous process. There are three different people you meet with. One is a social worker to check your mental capacity, the second is a nutritionist to manage your diet, and the third is a team of doctors and nurses that help you through tests.To get off the list, you have to receive a donor’s kidney, and Bonnie has done this through Facebook, through yard signs, emails, and extensive, unbelievable work this woman has done on Marty’s behalf.The list that Marty is talking about is a list to receive a deceased donor kidney. To get a living donor kidney, you must find someone willing to donate, a friend, a relative, or just a generous donor, and it is tough.It is a completely anonymous process, as someone is tested on your behalf. You would never know that because hospitals take that very seriously, and they want to ensure that the person who is doing this wants to do it for the right reasons and that there is no sense of pressure.Bonnie decided that UPPO would be perfect because people would have to ask a question and start the conversation. What is UPPO, or who is UPPO? Life for UPPO is a Facebook page, and we are working with Christ Hospital, and Trisha is the donor coordinator.The typical diabetic signs that Marty paid no attention to was he slept 12 hours and felt like he didn’t sleep 5 minutes. He drank unbelievable amounts of liquid, whether it be coffee, pop, water, and he lost a lot of weight.The diet you have to be on when looking for a kidney is extremely difficult. There are many things to avoid and take care of.There are two categories of people when it comes to the conversation about being a living donor. We need to do a better job of filling the gap of information and helping people understand this is something they can do.Children’s hospitals prefer to give it to children, and they should. But if something happened and there aren’t any children who would need it, then the adult on that list would receive a kidney.One of Marty’s dreams has always been that he would like to start in Maine and eat lobster all the way down the East Coast until they have to get an oversized bus to take him home.Marty looks good on the outside, but he’s not good on the inside, and that's what a lot of people don’t understand because he looks great. But they don’t understand that the kidney function is still going down, and you can’t see that.If people understood how grateful recipients were, it would cause a lot more people to donate because they are heroes and become angels without wings.Bonnie has read a lot on the national kidney Instagram page and other places that donors live longer than people who have not donated.   3 Key Points: Marty and Bonnie tell the listeners about the Facebook page they set up for people. The Facebook page is called life for UPPO. UPPO is Marty just because their oldest grandson when he was very young, can’t say Grandpa, and he came out with UPPO.Marty doesn’t think people understand how serious this disease is, and it will kill you. Many thousands of people die every day from kidney failure, and several things work against you.Marty and Bonnie talk about the misconception surrounding kidney donation.   Resources Mentioned: LifeCenter | Website | Facebook | Instagram | YouTube|  TwitterAndi Johnson  website |LinkedIn Organ Donation Websitehttps://www.facebook.com/life4uppoTricia Monson Christ Hospital Donor Coordinator 513-585-1440Marty and Bonnie GarneretOff the list inc, Darci Gibson
Episode 73: Why Is Kidney Disease So Prevalent In The African American Community
Apr 18 2023
Episode 73: Why Is Kidney Disease So Prevalent In The African American Community
On this episode of This Thing Called Life Podcast, host Andi Johnson is going to talk to Shelly Sherman and Stephanie Jackson. They are discussing kidney health and an exciting new project that is being launched to shed light on kidney disease as well as prevention. No doctor or medical expert will kill you for your organs; In fact, no medical professional is aware of your donor status until your death is declared. Tune in for more information! Episode Highlights:    Host Andi Johnson has a few big asks. Will you join us and be a part of this interconnected life sustaining community by registering to be an organ, eye, and tissue donor? Will you make the commitment to become more educated about living donation and championing the donation cause?Shelly is associated with the Cincinnati, Ohito chapter of The Links, Incorporated and she served as the Health and Human Services Facet Committee chair.The Ohio central chapter was granted an award by Baxter International for increasing the awareness of kidney health in the communities in which Shelly lives and primarily in the African American community.What is GFR? Shelly has been working hard in the community to make sure people know where they are regarding their GFR, which lets them know how well their kidneys are functioning and what they can do to maintain kidney health.The Links organization was founded in 1946 on the premise of friendship, and Shelly wants to uplift and elevate people by providing health information.Stephanie and Shelly first met through collaboration with The Center For Closing the Health Gap. Shelly had goals in mind based on the grant they received regarding the number of people that they needed to touch and the number of community partnerships that they needed to do.Shelly and Stephaine share the experiences they have had with training sessions and connecting in the community. They hope people will continue to listen to the podcast and continue doing some things and spreading the word in their communities.When people are ill, you can see it on their skin and eyes. You can notice the effects of kidney and liver illness on the skin and other body systems.Garlic is great for decreasing inflammation; It has Vitamin C, Vitamin B6, and Manganese, a great alternative for your seasoning. If you want to decrease your psyllium, you can add more garlic, which is great for your heart and your kidney.The one thing is to avoid canned and packaged chicken breast because those can contain sodium and other preservatives.Raising awareness and making small changes goes such a long way in promoting healthier lifestyles. There is a great ripple effect too when you share information like this with those in your family and circles.  3 Key Points: Blueberries are an important food for kidney patients. They serve as antioxidants and are very good for healing. In addition, they help your body to increase urination.People talk about dialysis and transplant, and these are things that you want to avoid. By opting for a healthier lifestyle and changes in the food you eat, you can do that. There are so many ways you can just move your body, and Stephanie always tells people 15 to 20 minutes is sufficient. Make sure that your body is doing something that it doesn’t do every day. Tweetable Quotes: “Whatever we are putting in our body, the body is going to use, and if we don’t put in things that our body can use, then our body is not going to be able to function the way it’s supposed to.” – Stephaine“Your body does need fat but only healthy fats because it helps everything stay lubricated and work well in all facets.” – Stephaine“So much of what happens to us is preventable, and a lot of it is due to a lack of information that is sometimes missed in our community.” – Shelly“Sometimes, we do have a mistrust of the medical systems, and we don’t get some of the information that we need to have, but we can share it and start to educate each other.” - Shelly   Resources Mentioned: LifeCenter | Website | Facebook | Instagram | YouTube|  TwitterAndi Johnson  website |LinkedIn Organ Donation Websitehttps://www.cincinnatilinks.org/black-kare-initiativehttps://www.facebook.com/CincinnatiLinkshttps://www.instagram.com/cincinnatilinks/https://www.yoursweetestlife.com/https://www.facebook.com/yoursweetestlifewithstephaniejhttps://www.instagram.com/yoursweetestlifewithstephaniej/