Tim Sohn, a CML cancer survivor, hosts and produces the weekly live-stream show, “Showing Up: Perspectives on Cancer”.  Tim and his survivor guests prove how valuable the shared experience can be. Jill and Tim discuss the challenges of engaging in life with an “invisible illness”.Today, Tim joins the podcast and shows us his gift of making us feel like we are talking at his kitchen table.He got real with us and sharing how the survivors he welcomes to his show impact his life and perspective.Tim gives us a glimpse of his vulnerable side as he recalls the challenge of going from remission to recurrence of his Chronic Myeloid Leukemia (CML).  We are suspended in time with Tim as he recounts the uplifting and meaningful support he received from two members of his audience while sharing his personal sense of devastation with recurrence of CML on “Showing Up”.He sheds light on the inspiring aspect of the survivors supporting each other as he recounts his shift from a private cancer story private to sharing it publicly in 2021 …"Showing Up: Perspectives on Cancer," was born. “Showing Up” is a live show airing Wednesdays at 8 PM Eastern on LinkedIn, then is posted on YouTube. The show provides a safe space for cancer patients, survivors, and supporters to share their stories, fostering a sense of community and understanding. Showing Up: Perspectives on Cancer on YouTube - https://www.youtube.com/@perspectivesoncancer/featuredOn Amazon, Tim has published inspiring survivor stories, Perspectives on Cancer: Cancer Patients, Survivors & Supporters Share Their Storieshttps://a.co/d/0VSgpjmPerspectives on Cancer: Stories of Healing, Hope, and ResilienceVolume 2 https://a.co/d/dlyNrDU  Enjoy this episode as we turn the hosting tables on Tim and have him in the Everything Cancer Podcast guest seat.If you are interested in attending or supporting Tim’s Showing Up: Perspectives On Cancer In-Person Event, which is Oct. 5 & 6, 2024 email Tim at tim@sohnsocialmediasolutions.com Support the Show.Thank you for listening. We would love to hear your thoughts about this episode and learn of future topics you would like to see featured. Please email us at EverythingCancerPodcast@gmail.com The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions. Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website. Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years! www.H2Ocean.com www.Chemo-Mouth.comMouthwash https://h2ocean.com/oral-care/Here is the link for the acclaimed self-advocacy guide by Jill Squire, host of Everything Cancer Podcast "Cancer Journey Guide and Journals: Empowerment in Diagnosis, Treatment, and Beyond" Thank you.

A clinical oncology pharmacist has your back! They can help ensure you understand your treatment and how to manage its side effects.They are experts in how your treatment interacts with other medications and supplements you take.In this episode of Everything Cancer, we dive into the pivotal role of a clinical oncology pharmacist with our guest, Mark Wagner. Through Mark's insights, we gain a sense of the people-oriented nature of the Clinical Oncology Pharmacist role. Key Takeaways:Understanding the Role: Mark sheds light on why your Clinical Oncology Pharmacist is worth your time and attention.Supplement Safety: Insight into how supplements can interact with cancer treatments and the importance of informing your healthcare team about any non-prescribed substances you are taking.Immunotherapy Insights: Learn about the potential side effects of immunotherapy, how they are managed, and the importance of patient education in ensuring safe and effective treatment.Future of Oncology: Discover advancements in BITE therapy, making cutting-edge treatments more accessible in community settings.Michigan’s POEM Initiative: Mark’s investment in exceptional patient care is evident through his involvement in the POEM initiative. He invites Michigan Oncology Pharmacists to join.Survivorship Clinic Plans: The need for expert survivorship care is apparent. Mark shares his collaboration with oncology care experts and the initiative to launch a Survivorship Clinic staffed by a Clinical Oncology Pharmacist and an Advanced Practice provider.Empowering Patients: The importance of communication and education in empowering patients to take an active role in their treatment and care.Guest Bio:Mark Wagner, PharmD, BCOP, is a dedicated clinical oncology pharmacist based in Michigan. With a passion for patient care and education, Mark plays a crucial role in optimizing treatment plans, managing side effects, and ensuring patients have the information they need to navigate their cancer journey. Support the Show.Thank you for listening. We would love to hear your thoughts about this episode and learn of future topics you would like to see featured. Please email us at EverythingCancerPodcast@gmail.com The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions. Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website. Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years! www.H2Ocean.com www.Chemo-Mouth.comMouthwash https://h2ocean.com/oral-care/Here is the link for the acclaimed self-advocacy guide by Jill Squire, host of Everything Cancer Podcast "Cancer Journey Guide and Journals: Empowerment in Diagnosis, Treatment, and Beyond" Thank you.

Heather worked relentlessly to improve accessibility to and coverage of Lymphedema Treatment vastly!In this compelling episode of Everything Cancer, we sit down with Heather Ferguson, founder and executive director of the Lymphedema Advocacy Group, recently known as Lymphedema Treatment Act.org. Find out how Heather’s 13-year odyssey at the level of national legislature enabled her to change the name of her organization from “Treatment Act” to “Advocacy Group”! Heather shares her inspiring advocacy journey, spurred by her son's diagnosis and incredulity at the lack of coverage for Lymphedema Treatment over simple wording. This episode sheds light on the complexities of living with lymphedema, the importance of effective treatment, and the significant legislative triumph with the passing of the Lymphedema Treatment Act. Heather offers practical tips for patients facing insurance denials, emphasizing the importance of appealing and leveraging support from state departments and HR departments.https://lymphedematreatmentact.org/Newsletter for Lymphedema Advocacy Group https://lymphedematreatmentact.org/category/newsletter-archives/Contact Heather at info@lymphedematreatmentact.org Support the Show.Thank you for listening. We would love to hear your thoughts about this episode and learn of future topics you would like to see featured. Please email us at EverythingCancerPodcast@gmail.com The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions. Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website. Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years! www.H2Ocean.com www.Chemo-Mouth.comMouthwash https://h2ocean.com/oral-care/Here is the link for the acclaimed self-advocacy guide by Jill Squire, host of Everything Cancer Podcast "Cancer Journey Guide and Journals: Empowerment in Diagnosis, Treatment, and Beyond" Thank you.

Episode Description:In the second part of our interview with Dr. Alique Topalian, PhD in Health Promotion Education, we continue to explore her remarkable journey as both a pediatric and young adult cancer survivor. Dr. Topalian delves deeper into her advocacy work, fighting for legislative changes to support all cancer survivors. Dr. Topalian is a relentless advocate, from working to have insurance coverage for biomarker testing to pushing for transparency in copay assistance programs. Tune in for an insightful discussion on the complexities of cancer treatment and the unique challenges faced by the adolescent and young adult (AYA) cancer community.Key Topics:The financial challenges of cancer treatment, including the impact of high drug costs and the limitations of copay assistance.House Bill 177 and its significance for cancer patients.The importance of self-advocacy and understanding one's own medical needs.The unique needs and challenges of the adolescent and young adult cancer survivor community.Strategies for effective self-advocacy and navigating the healthcare system.Highlights:[00:00] Introduction: Overview of Dr. Topalian's journey and advocacy work.[00:48] House Bill 177: Discussion on the copay accumulator bill and its implications for cancer patients.[02:38] Copay Assistance Programs: The challenges and limitations of these programs, including personal anecdotes from Dr. Topalian.[04:35] Advocacy Efforts: Dr. Topalian's work to ensure copay assistance counts towards deductibles and out-of-pocket maximums.[12:11] AYA Cancer Advocacy: The specific needs of adolescent and young adult cancer survivors and Dr. Topalian's efforts in this area.[16:14] Personal Challenges: Dr. Topalian's experiences with healthcare navigation, disability, and maintaining a career during treatment.[20:33] Self-Advocacy Tips: Importance of knowing your body, recording symptoms, preparing questions, and having support during medical appointments.[24:17] Provider Relationships: The importance of finding the right healthcare provider who listens and advocates for you. Dr. Topalian’s LinkedIn LinkedIn.com/in/alique-topalian-phd-mph  Support the Show.Thank you for listening. We would love to hear your thoughts about this episode and learn of future topics you would like to see featured. Please email us at EverythingCancerPodcast@gmail.com The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions. Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website. Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years! www.H2Ocean.com www.Chemo-Mouth.comMouthwash https://h2ocean.com/oral-care/Here is the link for the acclaimed self-advocacy guide by Jill Squire, host of Everything Cancer Podcast "Cancer Journey Guide and Journals: Empowerment in Diagnosis, Treatment, and Beyond" Thank you.

Episode Description:In this first part of our interview with Dr. Alique Topalian, we explore her incredible journey as both a pediatric and young adult cancer survivor. Dr. Topalian shares her experiences with self-advocacy, the challenges of finding a bone marrow match, and her involvement in bio-marker insurance coverage legislation. She discusses her shift from psychiatry to Health Promotion Education in oncology. Tune in for an inspiring and informative conversation.Key Topics:- Dr. Alique Topalian's early diagnosis and treatment for acute myeloid leukemia.- The significance of biomarker testing in her treatment plan.- Challenges faced in finding a bone marrow match and the importance of donor registries.- The role of supportive services like The Gathering Place in her recovery.- Legislative advocacy for biomarker testing and copay assistance program transparency. Highlights:- [00:00] Introduction: Overview of Dr. Topalian's journey and the focus of her advocacy work.- [01:32] Early Diagnosis: Dr. Topalian's diagnosis with acute myeloid leukemia at age four and her treatment journey.- [03:32] Relapse and Biomarker Testing: The role of biomarker testing in her treatment after a 22-year remission.- [05:02] Career Transition: Moving from psychiatry to cancer survivorship and supportive services.- [08:32] Supportive Services: The impact of The Gathering Place and supportive services on her recovery.- [11:15] Advocacy Journey: Dr. Topalian's involvement in cancer advocacy and her legislative efforts.- [18:57] Biomarker Testing Advocacy: The importance of biomarker testing and the barriers to access she is working to overcome.Dr. Topalian’s LinkedIn LinkedIn.com/in/alique-topalian-phd-mphNext Episode Teaser:Join us for the second part of our interview with Dr. Alique Topalian, where we delve deeper into her legislative advocacy efforts, the how she has met the challenges of navigating healthcare costs and AYA cancer survivorship. Support the Show.Thank you for listening. We would love to hear your thoughts about this episode and learn of future topics you would like to see featured. Please email us at EverythingCancerPodcast@gmail.com The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions. Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website. Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years! www.H2Ocean.com www.Chemo-Mouth.comMouthwash https://h2ocean.com/oral-care/Here is the link for the acclaimed self-advocacy guide by Jill Squire, host of Everything Cancer Podcast "Cancer Journey Guide and Journals: Empowerment in Diagnosis, Treatment, and Beyond" Thank you.

Today, Jill is joined by Doreen Bridgman and Marilyn Abrahamson, the brilliant and compassionate minds behind Brain Thrive—Brain Health Coaching. These experienced speech-language pathologists dive into the realities of "Chemo Brain," a common yet often misunderstood side effect of chemotherapy. If you find mind fatigue, fogginess, and forgetfulness frustrating and disruptive of life, you're not alone. Join us as Doreen and Marilyn share their expert strategies to help cancer survivors navigate and overcome these cognitive challenges.Key Discussion Points:1. Role of Speech-Language Pathologists (SLPs):   - SLPs address language and processing, attention skills, memory, and communication, These are crucial for managing cognitive impairments.   - SLPs are vital in helping individuals with cognitive impairment caused by chemotherapy.2. Chemotherapy-Induced Cognitive Impairment:   - Affects attention, memory, word finding, organization, decision-making, and problem-solving.   - Research shows MRI-detectable changes in brain gray and white matter, validating this condition.3. Long Live Your Brain Program:   - A six-week online course focused on lifestyle choices, reducing information overload, cognitive energy management, and environmental organization.   - Emphasizes shared experiences through group coaching, fostering support, and building coping strategies.- Support from group activities helps individuals feel less isolated and more supported. 4. Strategies for Coping:   - Stop, Breathe, and Restart: A technique to reset focus and manage information overload.   - Say it and Make it So: Vocalizing actions to make routine tasks mindful and memorable   - Journal symptoms and use patient portals to communicate with healthcare providers.   - Encouragement to re-engage socially, choosing quieter, less crowded environments for better cognitive processing. - Support from group activities helps individuals feel less isolated and more supported.Contact Information:- Visit L Support the Show.Thank you for listening. We would love to hear your thoughts about this episode and learn of future topics you would like to see featured. Please email us at EverythingCancerPodcast@gmail.com The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions. Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website. Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years! www.H2Ocean.com www.Chemo-Mouth.comMouthwash https://h2ocean.com/oral-care/Here is the link for the acclaimed self-advocacy guide by Jill Squire, host of Everything Cancer Podcast "Cancer Journey Guide and Journals: Empowerment in Diagnosis, Treatment, and Beyond" Thank you.

Ford Fischer, also known as the Grammar Slammer, joins us to discuss his transformative journey as a cancer survivor. Marking five years since his diagnosis and three years of remission, Ford offers a fresh perspective on life, maturity, and the importance of asking questions, community, and practicing diligent self-care during and after treatment. In this candid discussion, Ford shares his journey through Hodgkin lymphoma, highlighting the challenges and personal growth he encountered from diagnosis to remission.Ford's advice to other young adults facing cancer emphasizes the need for hobbies and positive distraction, physical activity, being open to your family and friends for support, health check-ups, and symptom awareness.The therapeutic benefits of hobbies, working out, accepting grief of the life that was and shifting to engaging in life through treatment and survivorship.Insights for Survivors and Caregivers:Ford's story provides valuable insights into recognizing symptoms, and the importance of mental and physical health, and community support.For Healthcare Providers:This episode offers healthcare professionals a patient’s perspective on the cancer journey, highlighting the importance of empathy, clear communication, and supportive care practices that can significantly impact patient outcomes. Support the Show.Thank you for listening. We would love to hear your thoughts about this episode and learn of future topics you would like to see featured. Please email us at EverythingCancerPodcast@gmail.com The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions. Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website. Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years! www.H2Ocean.com www.Chemo-Mouth.comMouthwash https://h2ocean.com/oral-care/Here is the link for the acclaimed self-advocacy guide by Jill Squire, host of Everything Cancer Podcast "Cancer Journey Guide and Journals: Empowerment in Diagnosis, Treatment, and Beyond" Thank you.

Join us on this episode, where Dr. Rachel McCall, a Doctor of Physical Therapy and pelvic floor physical therapist, discusses how this specialized therapy can alleviate conditions that greatly affect quality of life. Rachael discusses tackling vaginal stenosis, erectile dysfunction, chronic pelvic pain, and both bowel and urinary incontinence, leading to improved quality of life,  well-being, intimacy, and self-image.Rachael introduces pelvic floor muscle function, detailing how these muscles support essential bodily functions and the common issues that arise when they are compromised.Insight is offered into how treatments like chemotherapy, surgery, and radiation can affect pelvic health and the role of early intervention.She shares with us the internal and external assessments for personalization of patient care.  She emphasizes the importance of a holistic treatment approach .Pelvic floor physical therapy is a critical yet underutilized tool that can dramatically improve the quality of life for cancer survivors. Support the Show.Thank you for listening. We would love to hear your thoughts about this episode and learn of future topics you would like to see featured. Please email us at EverythingCancerPodcast@gmail.com The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions. Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website. Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years! www.H2Ocean.com www.Chemo-Mouth.comMouthwash https://h2ocean.com/oral-care/Here is the link for the acclaimed self-advocacy guide by Jill Squire, host of Everything Cancer Podcast "Cancer Journey Guide and Journals: Empowerment in Diagnosis, Treatment, and Beyond" Thank you.

Jill covers the critical role of sleep in the healing and restoration of mind and body on the cancer journey.What you'll learn:Discover how sleep aids in combating fatigue, alleviating stress and reducing chemotherapy-induced cognitive impairment.Jill shares practical tips to improve your sleep quality including establishing A consistent bedtime routine and creating a comfortable safe sleeping environment.Jill briefly shares some of her personal bedtime habits as concrete examples and how they help her unwind and relax.Tune into the Everything Cancer podcast for insightful episodes on self-care and self-advocacy strategies. Share this episode with someone who you think might benefit from sleep trips, and subscribe for continued useful content. Good night and good sleep. Support the Show.Thank you for listening. We would love to hear your thoughts about this episode and learn of future topics you would like to see featured. Please email us at EverythingCancerPodcast@gmail.com The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions. Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website. Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years! www.H2Ocean.com www.Chemo-Mouth.comMouthwash https://h2ocean.com/oral-care/Here is the link for the acclaimed self-advocacy guide by Jill Squire, host of Everything Cancer Podcast "Cancer Journey Guide and Journals: Empowerment in Diagnosis, Treatment, and Beyond" Thank you.

Mike Herman did not just beat the longevity odds against cancer through clinical trials and self-advocacy—he's now on a mission to empower others to do the same.Mike shares his story: from his and his spouse’s unwillingness to accept what they were sure was an inaccurate diagnosis to fierce self-advocacy leading to the accurate but incurable cancer diagnosis of Multiple Myeloma. True grit helped him surpass an initial life expectancy of four years with his blood cancer, along with searching for leaders in the treatment of his cancer and engaging in clinical trials. Ten years later, Mike is going strong.Mike Herman’s story is not just one of cancer survivorship but of transformation and empowerment. Mike envisions a future where every cancer patient is well-informed, feels comfortable asking their cancer providers questions, obtains second opinions (and even third or fourth), and seriously explores clinical trials in their cancer battle. His personal trajectory underlines the advancements in cancer treatments over the years, with a shift from traditional chemotherapy to more targeted therapies like bispecific antibodies, which he gained through access to cancer clinical trials.Mike emphasizes the critical role of clinical trials in improving cancer treatment and offers insights into his positive responses to new targeted therapies that significantly improved his life quality and extended his expectancy.He discusses his cancer patient advocacy group, Speaking on Cancer Patient Advocacy, which aims to equip patients with easily accessible resources to understand their cancer better and effectively navigate their treatment options.Tune into this inspiring episode to hear how Mike not only beat the odds but also turned his battle against cancer into a mission to empower others.Access the evidence-based, credible, and informative resources Mike and his group have put together for over 20 types of cancer at: Speaking on Cancer Patient Advocacy https://www.socpanow.com/aboutMike Herman on LinkedIn https://www.linkedin.com/in/mike-herman-403225204/  Support the Show.Thank you for listening. We would love to hear your thoughts about this episode and learn of future topics you would like to see featured. Please email us at EverythingCancerPodcast@gmail.com The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions. Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website. Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years! www.H2Ocean.com www.Chemo-Mouth.comMouthwash https://h2ocean.com/oral-care/Here is the link for the acclaimed self-advocacy guide by Jill Squire, host of Everything Cancer Podcast "Cancer Journey Guide and Journals: Empowerment in Diagnosis, Treatment, and Beyond" Thank you.

Feeling like you're alone is an awful feeling.  Jill shares useful ideas on how asking for and accepting help can be so much easier. Your Crew' represents the group of people able to offer support. By matching the talents of individual crew members with specific tasks, everyone benefits. Your crew members feel fulfilled using their skills effectively, and you experience relief by having burdens eased.One of the biggest hurdles in a cancer journey can be the reluctance to ask for or accept help. Set aside this hesitancy and prioritize your well-being. Start today by allowing yourself to accept the support that is available to you.Whether it’s sorting through complex information handed out by healthcare providers, maintaining a part of your garden, organizing a room, or researching treatment options—there are countless ways your crew can assist. Leverage their skills to make your daily life and decision-making process smoother and more manageable.Having a trusted crew member by your side during medical appointments can be invaluable. They can help ensure you ask the right questions, understand the information provided, and offer moral support during those tough conversations.By understanding the potential of your support network and actively engaging with them, you can significantly decrease your stress and enhance your well-being. #CancerJourney #Wellbeing #Cancer #CancerCare #SelfAdvocacy #SupportSystem Support the Show.Thank you for listening. We would love to hear your thoughts about this episode and learn of future topics you would like to see featured. Please email us at EverythingCancerPodcast@gmail.com The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions. Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website. Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years! www.H2Ocean.com www.Chemo-Mouth.comMouthwash https://h2ocean.com/oral-care/Here is the link for the acclaimed self-advocacy guide by Jill Squire, host of Everything Cancer Podcast "Cancer Journey Guide and Journals: Empowerment in Diagnosis, Treatment, and Beyond" Thank you.

"I got my life back."Sit back and be inspired by breast cancer survivors who are destined for adventure. Join Breast Cancer Survivor Sara Hill, Breast Surgeon Dr. Kelly McClean, outdoor enthusiast and founder of Move Beyond Surviving, and Tom Tressler, Executive Director, as they share the transformative experiences of breast cancer survivors who embark on adventures with the not-for-profit outdoor experience organization, Move Beyond Surviving. Move Beyond Survival offers accessible day and half-day trips that allow survivors to reconnect with themselves and gain back their sense of self, enjoyment of life, and confidence. Move Beyond Surviving creates a safe and supportive environment for survivors to try new activities and challenge themselves. The shared experience and camaraderie among participants have been instrumental in their healing journey. Move Beyond Surviving offers a variety of activities, including rock climbing, hiking, and horseback riding, to help survivors regain their strength and confidence. Based in Cincinnati, Ohio, they welcome breast cancer survivors from anywhere.Move Beyond Surviving Website: https://movebeyondsurviving.org/Tom Tressler LinkedIn https://www.linkedin.com/in/tomtressler3Tom Tresser https://tom@movebeyondsurviving.org Support the Show.Thank you for listening. We would love to hear your thoughts about this episode and learn of future topics you would like to see featured. Please email us at EverythingCancerPodcast@gmail.com The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions. Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website. Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years! www.H2Ocean.com www.Chemo-Mouth.comMouthwash https://h2ocean.com/oral-care/Here is the link for the acclaimed self-advocacy guide by Jill Squire, host of Everything Cancer Podcast "Cancer Journey Guide and Journals: Empowerment in Diagnosis, Treatment, and Beyond" Thank you.

SummaryUnderstanding what is important to you in the short term and long term is crucial for effective self-advocacy during the cancer journey. Priorities change as life circumstances change; free yourself to adjust your priorities. Writing down your priorities and goals can help you have more effective discussions with your healthcare providers, family members, your crew.Journal and discuss what is keeping you from doing what is important to you. Keywordscancer journey, self-advocacy, priorities, goals, discussions, healthcare providers, family members, caregivers, loved ones TakeawaysWriting down your priorities and goals can help you have more effective discussions with healthcare providers, family members, caregivers, and loved ones.Communication with your crew and providers gets them in your corner. Social interactions, such as attending work, book clubs, other interactions can provide a sense of normalcy and  social support through the cancer journey.Priorities can change as life circumstances change. Be okay with being dynamic in your priorities.Journaling can be a helpful tool for organizing and documenting your priorities, goals, and talking points for discussions. Support the Show.Thank you for listening. We would love to hear your thoughts about this episode and learn of future topics you would like to see featured. Please email us at EverythingCancerPodcast@gmail.com The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions. Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website. Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years! www.H2Ocean.com www.Chemo-Mouth.comMouthwash https://h2ocean.com/oral-care/Here is the link for the acclaimed self-advocacy guide by Jill Squire, host of Everything Cancer Podcast "Cancer Journey Guide and Journals: Empowerment in Diagnosis, Treatment, and Beyond" Thank you.

Former ICU nurse, certified trauma-informed wellness coach, current RN, and AYA cancer survivor Stephanie (Stef) Gayhart shares her story of diagnosis of Head and Neck Cancer, recovery from major surgery,  and survivorship.  Stef is candid about how much harder her recovery from surgery and cancer journey are than she thought they would be.  Steph cultivates a positive attitude while acknowledging the reality of the situation, “Life is tragically beautiful.” She emphasizes the need for compassion and empathy and the value of sitting with someone in their pain without trying to fix it. She highlights the importance of finding a community of other survivors and the need for comprehensive survivorship care that starts from the time of diagnosis. Stef also talks about her advocacy work and the importance of giving survivors a voice.About Stephanie Gayhart:Stef Gayhart is a registered nurse, certified trauma-informed wellness coach, and AYA cancer survivor. She has a Master's in Healthcare Innovation  Show Links:Stephanie on LinkedIn: https://www.linkedin.com/in/stephanie-gayhart/ The Art of Happiness by The Dalai Lama https://www.penguinrandomhouse.com/books/288630/the-art-of-happiness-by-dalai-lama/   The Book of Joy by The Dalai Lama and Desmond Tutu   https://www.penguinrandomhouse.com/books/533718/the-book-of-joy-by-his-holiness-the-dalai-lama-and-archbishop-desmond-tutu-with-douglas-abrams/  Welcoming the Unwelcome  by Pema Chodron  https://www.penguinrandomhouse.com/books/603849/welcoming-the-unwelcome-by-pema-chodron/ National Coalition for Cancer Survivorship https://canceradvocacy.org/Cancer Research Institut Support the Show.Thank you for listening. We would love to hear your thoughts about this episode and learn of future topics you would like to see featured. Please email us at EverythingCancerPodcast@gmail.com The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions. Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website. Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years! www.H2Ocean.com www.Chemo-Mouth.comMouthwash https://h2ocean.com/oral-care/Here is the link for the acclaimed self-advocacy guide by Jill Squire, host of Everything Cancer Podcast "Cancer Journey Guide and Journals: Empowerment in Diagnosis, Treatment, and Beyond" Thank you.

Empower yourself with a strong pillar of self-advocacy on the cancer journey – through simple tracking…There are a lot of moving pieces in the cancer journey. Do yourself a favor and take stress off of your shoulders by jotting down things that impact your journey.Use your phone, a notebook, a binder, or Cancer Journey Guide and Journals: Empowerment in Diagnosis, Treatment, and Beyond – on Amazon, any medium to keep track of:Questions for your doctor and their answersSymptoms -anything that feels differentResearch shows the benefits of tracking symptoms are: -  potential for better outcomes-  increased satisfaction with your healthcare team-  more prompt and optimal management of symptomsLab ValuesTumor Markers Important conversations with:ProvidersLoved onesHealth insurance representativesHR/Leave administrator Your next stepsYour thoughts on decisionsTrust issues with a provider What is important to you at any given time Financial assistance received from organizationsGifts of time, meals, or tasksGiftsThank you for being part of the Everything Cancer Podcast community.Support the Show.Thank you for listening. We would love to hear your thoughts about this episode and learn of future topics you would like to see featured. Please email us at EverythingCancerPodcast@gmail.com The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions. Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website. Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years! www.H2Ocean.com www.Chemo-Mouth.comMouthwash https://h2ocean.com/oral-care/Here is the link for the acclaimed self-advocacy guide by Jill Squire, host of Everything Cancer Podcast "Cancer Journey Guide and Journals: Empowerment in Diagnosis, Treatment, and Beyond" Thank you.

"Having cancer is like being thrown out of a plane into Russia and not speaking Russian." Jen Helm, a cancer survivor, was diagnosed with breast cancer at 36.  Her kids at the time were 5, 3, and 15 months old. Can you imagine what was going through her head?Her plastic surgeon coined her as "high maintenance" for asking hundreds of questions. After treatment, they say "see you in 3 months." That feels like an eternity.  Jen felt lost, alone, overwhelmed, and living in fear. She made it her mission to  help women in their 20s who are diagnosed with cancer at 23, 24, 25 years old - some of them right off the bat with metastatic disease: all their dreams, their career, & their family hopes go off the rails -  it's a lot.Jill sits down with Jen, on this episode of the Everything Cancer Podcast, to chat about Jen's shruggles, eye-opening realities of overcoming cancer for women, how to listen and pay attention to your body, and how to find support groups designed to help you.It's extremely lonely to have cancer; you don't have to go through it alone.Young Women’s Breast Cancer Awareness Foundation https://ywbcaf.org/*Note: Please excuse the occasional echo in this episode - it is an early recording and we upgraded the equipment soon after :) Support the Show.Thank you for listening. We would love to hear your thoughts about this episode and learn of future topics you would like to see featured. Please email us at EverythingCancerPodcast@gmail.com The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions. Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website. Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years! www.H2Ocean.com www.Chemo-Mouth.comMouthwash https://h2ocean.com/oral-care/Here is the link for the acclaimed self-advocacy guide by Jill Squire, host of Everything Cancer Podcast "Cancer Journey Guide and Journals: Empowerment in Diagnosis, Treatment, and Beyond" Thank you.

An Interview with Michelle Kirschner, CRNP: Survivorship and Supportive Care LeaderIn this episode, Michelle and Jill discuss:How the Cancer Survivor Provider Network (CSPN) came to beThe need to serve survivors wellThe resources, learning opportunities, and networking provided by CSPNWhat is the National Coalition of Cancer SurvivorshipSurvivorship starts the day of diagnosisSurvivorship often includes the grief of giving up the vision of what your life wasThe acute and extended phases of survivorshipPractice self-advocacyGet your crew together and leverage their talents to take stress off youThe power of supportive organizationsThe benefits of pre-hab and rehabAn onco-generalist is a person who understands all the elements of supportive careHave your cancer team kill cancer – they are the experts; and your supportive care team deal with the quality of life issues, where they are the experts The social worker, dietitian, physical therapist, exercise specialist, and sexual health specialist can all be members of your supportive care team – the experts in supportive careJournaling for a purposeHelp your cancer or supportive care provider understand your experience with journalingThe helpfulness of phrasing your concerns in a knowledgeable way (obtain your information from credible sources) Your journaled information gives your care team something to work with Journaling helps you share with your providers what your life looks like outside of those 15-minute office visitsJournaling helps you understand how your body and symptoms change over time – you are not staticUnderstanding and dealing with cognitive changes after cancer treatmentCreate your supportive care plan from the day of diagnosis, knowing what you can do at every step to be more successful with lifestyle medicine: nutrition, optimizing sleep, exerciseYour supportive care plan helps you have a better quality of lifeA knowledgeable, supportive care team can unravel the complex issues of survivorship Support the Show.Thank you for listening. We would love to hear your thoughts about this episode and learn of future topics you would like to see featured. Please email us at EverythingCancerPodcast@gmail.com The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions. Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website. Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years! www.H2Ocean.com www.Chemo-Mouth.comMouthwash https://h2ocean.com/oral-care/Here is the link for the acclaimed self-advocacy guide by Jill Squire, host of Everything Cancer Podcast "Cancer Journey Guide and Journals: Empowerment in Diagnosis, Treatment, and Beyond" Thank you.

Salma Harfouche, A colorful and intrepid heart cancer survivor, is a branding expert (as in marketing, not cows), and cow lover (as in friends and hamburgers) also loves puns as much as you do. "If they dig you, they're totally open to having that conversation, and they're probably gonna appreciate it, honestly." Can you relate?Join Everything Cancer to be part of the conversation with Salma (Sal) Harfouche. Sal dishes on:The frustration with knowing something was wrong and not being diagnosedFacing mortalitySurvivor guilt when others did not make itBody image changes, dealing with scars (external and heartfelt)How therapy and shared experiences make a differenceDating after cancerBeing upfront with potential romantic interests about being  a survivor and the accompanying issues (such as infertility) before the first datePain with sex after cancerThe side-by-side lanes of blessings and survivorship issues, and dynamic switching of lanes, wrenching herself back into the blessings laneHow Sal came to love having cows put their head in her lap (she does not whisper to them that she loves burgers). Support the Show.Thank you for listening. We would love to hear your thoughts about this episode and learn of future topics you would like to see featured. Please email us at EverythingCancerPodcast@gmail.com The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions. Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website. Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years! www.H2Ocean.com www.Chemo-Mouth.comMouthwash https://h2ocean.com/oral-care/Here is the link for the acclaimed self-advocacy guide by Jill Squire, host of Everything Cancer Podcast "Cancer Journey Guide and Journals: Empowerment in Diagnosis, Treatment, and Beyond" Thank you.

Abby, a medical physicist with a degree in nuclear engineering, decided to skip the nuclear submarine and join the fight against cancer with her medical physics graduate degree.  She explains her behind-the-scenes role in radiation oncology and explains how radiation therapy works. The episode delves into the detailed treatment planning process (that's why it takes so long!), including the use of CT scans, the collaboration between radiation oncologists, dosimetrists, and physicists to outline treatment targets and protect normal tissue. Abby shares the importance of patients speaking up during the planning process, to ensure their position is adjusted for comfort - as they will need to lie still for some time during treatment.  The importance of and why prompt symptom reporting is explained in this conversation.  She clues us into the critical importance of quality assurance measures to ensure the safety and accuracy of radiation delivery.  Abby highlights advancements in radiation therapy, and addresses common misconceptions about treatment. She highlights the roles of all the knowledgeable, caring experts in Radiation Oncology – the “cellar dwellers”. Support the Show.Thank you for listening. We would love to hear your thoughts about this episode and learn of future topics you would like to see featured. Please email us at EverythingCancerPodcast@gmail.com The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions. Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website. Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years! www.H2Ocean.com www.Chemo-Mouth.comMouthwash https://h2ocean.com/oral-care/Here is the link for the acclaimed self-advocacy guide by Jill Squire, host of Everything Cancer Podcast "Cancer Journey Guide and Journals: Empowerment in Diagnosis, Treatment, and Beyond" Thank you.

This podcast highlights a woman’s experience in losing her ability to engage in traditional sex after radiation treatment for her cancer.  She did something about it to help prevent other survivors from having the same devasting experience. Our guest, Erin is the Executive Director of "After Cancer: Solutions for Sexual Health", which currently concentrates on provider education for sexual health and intimacy for those affected by cancer and their intimate partners.  Erin and Jill discuss the importance of addressing sexual health in cancer care, in recovery from treatment, and in survivorship. Erin discusses sexual scripts (did you know you have a sexual script??) and the need to change up the script to nurture intimacy after cancer.  After Cancer: Solutions for Sexual Health https://bit.ly/3vqgpGQ Support the Show.Thank you for listening. We would love to hear your thoughts about this episode and learn of future topics you would like to see featured. Please email us at EverythingCancerPodcast@gmail.com The information on this podcast is not intended to be used for medical advice. For any health care concerns you have please consult with your healthcare team. The staff at Everything Cancer podcast will not be answering health individual health care concern questions. Consider giving your support for ongoing content and interviews for this podcast through our Patreon Page for Everything Cancer or the Everything Cancer website. Our sponsor: H2Ocean - makers of quality sea-salt products for over 20 years! www.H2Ocean.com www.Chemo-Mouth.comMouthwash https://h2ocean.com/oral-care/Here is the link for the acclaimed self-advocacy guide by Jill Squire, host of Everything Cancer Podcast "Cancer Journey Guide and Journals: Empowerment in Diagnosis, Treatment, and Beyond" Thank you.