The Dysunderstood Podcast

Ella Eastin

Dysunderstood exists to share stories and and foster community of the dysunderstood- those living with complex, misunderstood, chronic illness. The Dysunderstood podcast provides a platform to patients, providers and the community collectively working towards increased understanding of infection-associated conditions like dysautonomia, Long Covid, ME/CFS, chronic lyme, and more. Guests share their lived experience, knowledge, and hopes for the future of this community. The Dysunderstood Podcast host, Ella Eastin, created the Dysunderstood platform after her own experience with disabling, chronic illness that ended her professional swimming career and drove her to pursue a career in medicine. read less
Society & CultureSociety & Culture
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#6 – Dr. Peter Rowe- Decades of Dedication to Complex Chronic Illness
Feb 16 2024
#6 – Dr. Peter Rowe- Decades of Dedication to Complex Chronic Illness
Dr. Peter Rowe speaks about his pioneering work in identifying and treating ME/CFS, dysautonomia, and hypermobility in patients, including insights into long COVID, emphasizing his dedication to advancing medical understanding and patient care through research, advocacy, and a holistic approach to complex chronic illnesses. Want to hear more from Dr. Rowe? Dysunderstood Conference Q&A with Dr. Rowe His 170+ publications Rowe’s Research Runners Organization- created by his patients Find us all on Instagram: @dysunderstood @ellaeastin Support and stay up to date with Dr. Rowe's work: @rowesresearchrunners TikTok: @dysunderstood Contact us: hello@dysunderstood.com As always, thank you to our partners for making this possible. We tirelessly continue to elevate the voices of the dysunderstood. For a transcript of this episode, click here.

Episodes

#6 – Dr. Peter Rowe- Decades of Dedication to Complex Chronic Illness
Feb 16 2024
#6 – Dr. Peter Rowe- Decades of Dedication to Complex Chronic Illness
Dr. Peter Rowe speaks about his pioneering work in identifying and treating ME/CFS, dysautonomia, and hypermobility in patients, including insights into long COVID, emphasizing his dedication to advancing medical understanding and patient care through research, advocacy, and a holistic approach to complex chronic illnesses. Want to hear more from Dr. Rowe? Dysunderstood Conference Q&A with Dr. Rowe His 170+ publications Rowe’s Research Runners Organization- created by his patients Find us all on Instagram: @dysunderstood @ellaeastin Support and stay up to date with Dr. Rowe's work: @rowesresearchrunners TikTok: @dysunderstood Contact us: hello@dysunderstood.com As always, thank you to our partners for making this possible. We tirelessly continue to elevate the voices of the dysunderstood. For a transcript of this episode, click here.
#5 – Diana's Story
Feb 9 2024
#5 – Diana's Story
Diana, the first Dysunderstood community author, shares her life-changing journey, starting from a POTS and MECFS diagnosis during her collegiate swimming career, to pursuing her law degree and the ups and downs in between. Diana discusses the importance of relationships, advocating for herself, and balancing everything with her chronic illness. Want to hear more from Diana ? Find her Dysunderstood blog: "You're Not Alone" Find us all on Instagram: @dysunderstood @ellaeastin @dianahanson4 TikTok: @dysunderstood Email us: hello@dysunderstood.com As always, thank you to our partners for making this possible. We tirelessly continue to elevate the voices of the dysunderstood. For a transcript of this episode, click here.
#4 – Daniela's Story
Feb 2 2024
#4 – Daniela's Story
Daniela, after years of managing undiagnosed illnesses during her teen years, begins her true healing process, embracing a holistic approach and the mind-body-spirit connection. We discuss challenges and triumphs of navigating life, education, and personal growth amidst ongoing chronic illness, highlighting the importance of a supportive community and personal resilience. Want more background ? Find Daniela's Full Diagnosis and Dysunderstood Story here. Find us all on Instagram: @dysunderstood @ellaeastin @daniela.kerr TikTok: @dysunderstood Daniela's Blog: For The Healing Soul Email us: hello@dysunderstood.com As always, thank you to our partners for making this possible. We tirelessly continue to elevate the voices of the dysunderstood. For a transcript of this episode, click here.
#3 – Christine's Story
Jan 26 2024
#3 – Christine's Story
Christine Reed- Author, Adventurer, and Athlete with POTS- discusses her journey towards self-acceptance, empowerment through outdoor activities, her experience reaching a POTS (Postural Orthostatic Tachycardia Syndrome) diagnosis, and balancing different aspects of her identity. To read or listen to Christines's original story she shared with Dysunderstood, visit Keep Moving Forward. Find us all on Instagram: @dysunderstood @ellaeastin @ruggedoutdoorswoman TikTok: @dysunderstood As always, thank you to our partners for making this possible. We tirelessly continue to elevate the voices of the dysunderstood. For a transcript of this episode, click here.
#2 – Taylor's Story
Jan 19 2024
#2 – Taylor's Story
A vulnerable discussion with Taylor about defying limits and creating new dreams in the face of new challenges- living with disability, Ehlers Danlos Syndrome and POTS. Find us all on Instagram: @dysunderstood @ellaeastin @Taylor_winnett TikTok: @dysunderstood Thank you to all of our partners for making this possible. We work tirelessly to elevate the voices of the dysunderstood. For a transcript of this episode, click here.
#1 – Jackie's Story
Jan 12 2024
#1 – Jackie's Story
A heartfelt conversation with Jackie on managing motherhood, Hypermobile Ehlers-Danlos Syndrome, and POTS. To read or listen to Jackie's original story she shared with Dysunderstood, visit Awareness is the Answer. Find us all on Instagram: @dysunderstood @ellaeastin @jacqueline_mari_ TikTok: @dysunderstood Thank you to all of our partners for making this possible. We tirelessly continue to elevate the voices of the dysunderstood. For a transcript of this episode, click here.