Part Two Men's Panel --- Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support

Two episodes in one day? Why not? --- Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support

The notes are coming! Tiffany has them ready and we will update soooooooon --- Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support

. --- Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support

Shelli will update this later - she promises!!!! --- Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support

Meet Jesenia - Creator of Neurospicy Networking --- Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support

Filmed on location at the Omni Nashville on November 10, 2023 Contact LyricalShkspr at lyricalshkspr@gmail.com and purchase her books here: Linktr.ee/lyricalshkspr --- Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support

The Bendy Mommas are still on Spring Break and will return in two weeks with new episodes! --- Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support

In this mini episode, The Bendy Mommas discuss why TikTok is important for building communities. In the US, find your elected representatives: https://www.usa.gov/elected-officials Keep up with the US Government here: https://www.c-span.org/ --- Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support

The Bendy Mommas discuss the news about neurodivergence from the year 2023.  Luna and Shelli’s 2023 wrap-up has all the news you missed pertinent to ADHD and ASD. If you have any questions or comments for future episodes please send us a message (voice, audio, or video) to tiffany@hackinghypermobility.com Be sure to give us permission to use your name --- Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support

The Bendy Mommas continue the second season with a review of Zebra news from 2023.  Luna and Shelli’s wrap-up has all the news you missed pertinent to Hypermobility and the Ehlers-Danlos Syndromes. If you have any questions, comments, or suggestions for future episode topics, please send us a message (voice, audio, or video) to tiffany@hackinghypermobility.com or info@hackinghypermobility.com Be sure to give us permission to use your likeness and if you want us to use your name, photo, or voice. References Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes - ScienceDirect Multiple Sustainable Benefits of a Rehabilitation Program in Therapeutic Management of Hypermobile Ehlers-Danlos Syndrome: A Prospective and Controlled Study at Short- and Medium-Term - ScienceDirect  Full article: Pilot study of an online-delivered mindfulness meditation in Ehlers-Danlos syndrome (hEDS): effect on quality-of-life and participant lived experience Research article Folate-dependent hypermobility syndrome: A proposed mechanism and diagnosis A novel mutation in collagen transport protein, MIA3 gene, detected in a patient with clinical symptoms of Ehlers–Danlos hypermobile syndrome Ehlers-Danlos Syndrome is Associated with Increased Rates of Adjacent Segment Disease Following TLIF: A Propensity Matched Study - ScienceDirect Sacroiliac joint fusion in patients with Ehlers Danlos Syndrome: A case series - ScienceDirect Outcomes Following Anterior Cervical Discectomy and Fusion in Patients With Ehlers-Danlos Syndrome - Jialun Chi, Jon Raso, Vaibhav Tadepalli, Lawal Labaran, Eunha Oh, Jesse Wang, Francis H. Shen, Xudong Li, 2023 Mike and Sofia Segal Family Foundation pledge $6.7 million to advance research - The Ehlers Danlos Society $2.375 million pledge from InVitro Cell Research, LLC (ICR) for research in hypermobile Ehlers-Danlos syndrome (hEDS) EDS Maternity Co-created Tools | hEDS Together 2023 Diagnostic Framework for Pediatric Joint Hypermobility - The Ehlers Danlos Society --- Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support

Oh hi! The Bendy Mommas are back and we have lots of exciting things in store for 2024! --- Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support

***A Very Special Episode*** Enjoy this little treat while the Two Bendy Mommas work on their plan for Season Two! Have an idea? Send us an email - info@hackinghypermobility.com Many thanks to Dr. Rebecca Land at Kennedy Krieger's Center for Autism and Related Disorders. For direct access to the interview included in this episode, please click https://vimeo.com/813334001 For more information about Dr. Landa and Kennedy Krieger, please visit https://www.kennedykrieger.org/patient-care/faculty-staff/rebecca-landa --- Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support

NOTE: Hacking Hypermobility UNMASKED - We opted to leave all of our stumbling, umms, and off-topic squirrelling in this episode. As a result, the episode is 3 hours long!  This episode is also the season one finale. The Bendy Mommas are going to enjoy a hiatus for a little bit before we buckle down and solidify plans for season two. Keep up with us on our socials in the mean time! ----- The Bendy Mommas close out the season with a recap of the Zebra news from 2022.  Luna and Shelli’s 2022 wrap-up has all the news you missed pertinent to Hypermobility and Neurodivergence including all the new medical research in the inherited connective tissue disorders including the Ehlers-Danlos Syndromes, Joint Hypermobility Syndrome, Autism, ADHD, genetics, CRISPR gene editing, therapeutics, treatments, community and even some celebrity news. We appreciate YOU, our listeners so very much. Thank you for a successful first season! If you have any questions or comments for future episodes please send us a message (voice, audio, or video) at info@hackinghypermobility.com. Be sure to give us permission to use your likeness and if you want us to use your name or not. ----- You may find all the resources on our website under the blog:  https://www.hackinghypermobility.com/post/2022-year-in-review-of-zebra-news --- Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support

Join the Two Bendy Mommas as they answer some fun questions. Shelli's daughter joins in the fun to play MC.  --- Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support

The Bendy Mommas continue their conversation on late diagnosis. Resources and References: “Neurodivergent: What is It?” Cleveland Clinic Health Library https://my.clevelandclinic.org/health/symptoms/23154-neurodivergentCsecs JLL, Iodice V, Rae CL, Brooke A, Simmons R, Quadt L, Savage GK, Dowell NG, Prowse F, Themelis K, Mathias CJ, Critchley HD, Eccles JA. Joint Hypermobility Links Neurodivergence to Dysautonomia and Pain. Front Psychiatry. 2022 Feb 2;12:786916. doi: 10.3389/fpsyt.2021.786916. PMID: 35185636; PMCID: PMC8847158. https://pubmed.ncbi.nlm.nih.gov/35185636/Glans MR, Thelin N, Humble MB, Elwin M, Bejerot S. The Relationship Between Generalised Joint Hypermobility and Autism Spectrum Disorder in Adults: A Large, Cross-Sectional, Case Control Comparison. Front Psychiatry. 2022 Feb 8;12:803334. doi: 10.3389/fpsyt.2021.803334. PMID: 35211037; PMCID: PMC8861852. https://pubmed.ncbi.nlm.nih.gov/35211037/Glans M, Thelin N, Humble MB, Elwin M, Bejerot S. Association between adult attention-deficit hyperactivity disorder and generalised joint hypermobility: A cross-sectional case control comparison. J Psychiatr Res. 2021 Nov;143:334-340. doi: 10.1016/j.jpsychires.2021.07.006. Epub 2021 Jul 5. PMID: 34560594. https://pubmed.ncbi.nlm.nih.gov/34560594/Zoccante L, Ciceri ML, Gozzi LA, Gennaro GD, Zerman N. The "Connectivome Theory": A New Model to Understand Autism Spectrum Disorders. Front Psychiatry. 2022 Feb 7;12:794516. doi: 10.3389/fpsyt.2021.794516. PMID: 35250650; PMCID: PMC8892379. https://pubmed.ncbi.nlm.nih.gov/35250650/ , https://www.frontiersin.org/articles/10.3389/fpsyt.2021.794516/fullNorris Labs EDS Resources: https://www.thenorrislab.com/research/ehlers-danlos-syndrome/eds-resourcesHarvey Blume, "Neurodiversity: On the neurological underpinnings of geekdom" The Atlantic, September 1998. https://web.mit.edu/comm-forum/legacy/papers/blume.html https://www.theatlantic.com/magazine/archive/1998/09/neurodiversity/305909/An interview with Judy Singer: http://www.myspectrumsuite.com/meet-judy-singer/Sonny Jane Wise' website with helpful infographics and resources "The Lived Experience Educator" https://livedexperienceeducator.com/freestuff, TikTok: https://www.tiktok.com/@livedexperienceeducator?_t=8YHZdr0g03a&_r=1Essay by Ketil Slagstad, "Asperger, the Nazis and the children – the history of the birth of a diagnosis" https://tidsskriftet.no/en/2019/05/essay/asperger-nazis-and-children-history-birth-diagnosisThe Curable App: https://www.curablehealth.com/ --- Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support

A Conversation with a Late Diagnosed Woman, Interview 1 Summary: Join us for a more casual conversation to get to know your hosts of the Hacking Hypermobility Podcast. Luna and Shelli sit down to talk about their own experiences with neurodivergence. Resources and References: “Neurodivergent: What is It?” Cleveland Clinic Health Library https://my.clevelandclinic.org/health/symptoms/23154-neurodivergentCsecs JLL, Iodice V, Rae CL, Brooke A, Simmons R, Quadt L, Savage GK, Dowell NG, Prowse F, Themelis K, Mathias CJ, Critchley HD, Eccles JA. Joint Hypermobility Links Neurodivergence to Dysautonomia and Pain. Front Psychiatry. 2022 Feb 2;12:786916. doi: 10.3389/fpsyt.2021.786916. PMID: 35185636; PMCID: PMC8847158. https://pubmed.ncbi.nlm.nih.gov/35185636/Glans MR, Thelin N, Humble MB, Elwin M, Bejerot S. The Relationship Between Generalised Joint Hypermobility and Autism Spectrum Disorder in Adults: A Large, Cross-Sectional, Case Control Comparison. Front Psychiatry. 2022 Feb 8;12:803334. doi: 10.3389/fpsyt.2021.803334. PMID: 35211037; PMCID: PMC8861852. https://pubmed.ncbi.nlm.nih.gov/35211037/Glans M, Thelin N, Humble MB, Elwin M, Bejerot S. Association between adult attention-deficit hyperactivity disorder and generalised joint hypermobility: A cross-sectional case control comparison. J Psychiatr Res. 2021 Nov;143:334-340. doi: 10.1016/j.jpsychires.2021.07.006. Epub 2021 Jul 5. PMID: 34560594. https://pubmed.ncbi.nlm.nih.gov/34560594/Zoccante L, Ciceri ML, Gozzi LA, Gennaro GD, Zerman N. The "Connectivome Theory": A New Model to Understand Autism Spectrum Disorders. Front Psychiatry. 2022 Feb 7;12:794516. doi: 10.3389/fpsyt.2021.794516. PMID: 35250650; PMCID: PMC8892379. https://pubmed.ncbi.nlm.nih.gov/35250650/ , https://www.frontiersin.org/articles/10.3389/fpsyt.2021.794516/fullNorris Labs EDS Resources: https://www.thenorrislab.com/research/ehlers-danlos-syndrome/eds-resourcesHarvey Blume, "Neurodiversity: On the neurological underpinnings of geekdom" The Atlantic, September 1998. https://web.mit.edu/comm-forum/legacy/papers/blume.html https://www.theatlantic.com/magazine/archive/1998/09/neurodiversity/305909/An interview with Judy Singer: http://www.myspectrumsuite.com/meet-judy-singer/Sonny Jane Wise' website with helpful infographics and resources "The Lived Experience Educator" https://livedexperienceeducator.com/freestuff, TikTok: https://www.tiktok.com/@livedexperienceeducator?_t=8YHZdr0g03a&_r=1Essay by Ketil Slagstad, "Asperger, the Nazis and the children – the history of the birth of a diagnosis" https://tidsskriftet.no/en/2019/05/essay/asperger-nazis-and-children-history-birth-diagnosisThe Curable App: https://www.curablehealth.com/ --- Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support

In this episode, the Bendy Mommas discuss the 3rd and final criterion on the hEDS diagnostic checklist which includes 3 key points that exclude other diagnoses. --- Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support

Show Notes Episode 1.05 Diagnosis of Hypermobility / Ehlers-Danlos Syndromes: Criterion 2-3 Resources mentioned in this episode are listed and linked here. --- Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support

Show Notes Episode 1.04 Diagnosis of Hypermobility / Ehlers-Danlos Syndromes: Criterion 1: The Beighton Score Resources mentioned in this episode are listed and linked here: https://www.hackinghypermobility.com/post/show-notes-episode-1-04 --- Send in a voice message: https://podcasters.spotify.com/pod/show/hackinghypermobility/message Support this podcast: https://podcasters.spotify.com/pod/show/hackinghypermobility/support