The Health Design Podcast

Moyez Jiwa

The Health Design Podcast brought to you by the Journal of Health Design(www.journalofhealthdesign.com). Features interviews with the world's leading health design experts including clinicians, designers, patients, authors and researchers. Better health by design. read less
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Episodes

Sharran Rouse, patient advocate
3d ago
Sharran Rouse, patient advocate
Passionate. Unique. Loyal. Resilient. These words are commonly used to describe Sharron S. Rouse. Sharron is an experienced leader with a demonstrated history of working in the education and nonprofit industries. She is skilled in program coordination, leadership, community outreach, and curriculum development. A native of the Washington, DC Metropolitan area, she has dedicated her life to influencing the world as a kidney disease, dialysis, and now transplant survivor. Sharron actively shares her story to bring hope and healing to anyone facing difficult circumstances in life. In 2022, she started SR Consulting Services LLC to provide support and guidance to educational and healthcare businesses and organizations. To expand the scope of her reach, Sharron founded Kindness for Kidneys International, Inc., a nonprofit organization committed to educating, encouraging, and empowering kidney warriors and their families. With the support of the community, Kindness for Kidneys has gained national attention for their monthly support groups, kidney education program, and annual holiday drives. Sharron remembers what it was like to be on dialysis during the holiday season, which is why Kindness for Kidneys serves over 500 kidney warriors and counting each year. Their annual Holiday Drive has been featured on local ABC and NBC news outlets. Sharron has been a guest speaker for several national and international educational and business-related conferences. She currently serves on the NIH/NIDDK Safety and Monitoring Board for the System Interventions to Achieve Early and Equitable Transplants (STEPS) study, Women of Color in Pharma – TRUST Advisory Board, Quality Insights ESRD Network 5 Patient Advisory Council, Bayer FINE-ONE Standing Patient Council, Health Union Patient Leadership Council, and the Vertex Patient Advisory Board. As an ambassador for the American Association of Kidneys Patients (AAKP) and the American Kidney Fund, she has participated in many patient panel discussions, served as a guest speaker, exhibitor, and Co-Chair for the 2019 and 2020 AAKP National Patient Meetings, was a peer mentor for dialysis warriors at Emory University Hospital, and has represented the state of Maryland for Capitol Hill advocacy days in Washington, DC. Sharron’s hard work and devotion to serving the community has granted her numerous awards including the Presidential Volunteer Service Award in 2020 and 2022, Who’s Who in American Education recognition, Honorable Mention for the Lyfebulb/CVS Kidney Care Innovation Challenge, the AAKP Support Group of the Year award, the Second Chance Show’s Prima award, and the 2023 Health Union Community Cultivator award. Sharron lives in Maryland with her husband Shawn and daughter Kyla. Website: www.kindnessforkidneys.org
Minas Chrysopoulo, Plastic surgeon
May 16 2024
Minas Chrysopoulo, Plastic surgeon
Dr Chrysopoulo ("Dr C") is a board certified plastic surgeon, breast reconstruction surgeon and microsurgeon, and President of PRMA Plastic Surgery in San Antonio, TX. Dr C is certified by the American Board of Plastic Surgery and is an active member of the American Society for Reconstructive Microsurgery (ASRM), and the American Society of Plastic Surgeons (ASPS) for which he has served on several breast reconstruction educational committees. He has authored and co-authored several book chapters and scientific articles in peer-reviewed journals on breast reconstruction-related topics, and is routinely an expert speaker at regional, national and international academic meetings. Dr C has dedicated his professional life to advocating for breast cancer patients, and strongly believes that shared decision-making between the physician and patient is crucial in achieving the best treatment outcomes. To this end, he founded Toliman Health, a digital health company committed to helping physicians, healthcare organizations, and industry improve patient experience and outcomes via empowering shared decision-making technology. Toliman’s flagship product, the Breast Advocate® App, is the world's first shared decision-making app for breast cancer surgery and breast reconstruction. Breast Advocate® provides anyone with a breast cancer diagnosis, or at risk of developing breast cancer, a much-needed voice in their breast cancer surgery decision-making. Dr C also leads the Shared Decisions and Personalised Care Expert Group at the World Health Innovation Summit (WHIS). Connect with Dr C: Website: https://linktr.ee/drchrysopoulo Facebook: https://www.facebook.com/drchrysopoulo Twitter: https://twitter.com/drchrysopoulo LinkedIn: https://www.linkedin.com/in/drchrysopoulo
Annie-Danielle Grenier, patient advocate
May 2 2024
Annie-Danielle Grenier, patient advocate
Annie-Danielle Grenier raises awareness and advocates for rare diseases, living with a few herself. She mostly does this as a writer, public speaker and through her blog turned website: Ma vie de zèbre (My Zebra Life). Annie-Danielle launched Ma vie de zèbre in 2013 because she had difficulty finding information in French on hypermobile Ehlers-Danlos syndrome, her only rare diagnosis at the time, and what little she could find wasn't relatable to her province of Québec (Canada). She wanted to changed that! Annie-Danielle is very active as a patient partner, involved in many management, education and research projects and doing things like shaping policies, educating future healthcare professionals, working in bioethics research, and much more. Annie-Danielle was a translator and editor (in French and in English) and before that worked many years in show business (on stage but also behind the scenes). She has a bachelor's degree in psychology, but also studied in Arts and literature and in event production. Annie-Danielle's atypical life experiences give her a different view on things, which she loves to share with people and, she hopes, can inspire. Her motto is that life's obstacles are not obstacles to happiness! Business and collaboration offers can go through here: Annie-Danielle Grenier raises awareness and advocates for rare diseases, living with a few herself. She mostly does this as a writer, public speaker and through her blog turned website: Ma vie de zèbre (My Zebra Life). Annie-Danielle launched Ma vie de zèbre in 2013 because she had difficulty finding information in French on hypermobile Ehlers-Danlos syndrome, her only rare diagnosis at the time, and what little she could find wasn't relatable to her province of Québec (Canada). She wanted to changed that! Annie-Danielle is very active as a patient partner, involved in many management, education and research projects and doing things like shaping policies, educating future healthcare professionals, working in bioethics research, and much more. Annie-Danielle was a translator and editor (in French and in English) and before that worked many years in show business (on stage but also behind the scenes). She has a bachelor's degree in psychology, but also studied in Arts and literature and in event production. Annie-Danielle's atypical life experiences give her a different view on things, which she loves to share with people and, she hopes, can inspire. Her motto is that life's obstacles are not obstacles to happiness! Business and collaboration offers can go through here. Annie-Danielle Grenier raises awareness and advocates for rare diseases, living with a few herself. She mostly does this as a writer, public speaker and through her blog turned website: Ma vie de zèbre (My Zebra Life). Annie-Danielle launched Ma vie de zèbre in 2013 because she had difficulty finding information in French on hypermobile Ehlers-Danlos syndrome, her only rare diagnosis at the time, and what little she could find wasn't relatable to her province of Québec (Canada). She wanted to changed that! Annie-Danielle is very active as a patient partner, involved in many management, education and research projects and doing things like shaping policies, educating future healthcare professionals, working in bioethics research, and much more. Annie-Danielle was a translator and editor (in French and in English) and before that worked many years in show business (on stage but also behind the scenes). She has a bachelor's degree in psychology, but also studied in Arts and literature and in event production. Annie-Danielle's atypical life experiences give her a different view on things, which she loves to share with people and, she hopes, can inspire. Her motto is that life's obstacles are not obstacles to happiness! Business and collaboration offers can go through here: https://www.adgrenier.com/en/
Estela Lugo, patient advocate
Mar 21 2024
Estela Lugo, patient advocate
Estela was diagnosed with a progressive neuropathy called Charcot-Marie-Tooth (CMT) at four years old, followed by her younger sister two years later. In 2002, she graduated from FIT with a Bachelor’s in Interior Design. Today, her professional background in design, marketing, trend forecasting, and creative direction brings an unexpected approach to connecting the disability community to wellness, empowerment, and health. After volunteering for eight years, Estela joined the Hereditary Neuropathy Foundation full-time in 2018 as their Program Development Manager. Later in 2018, she testified in front of the FDA on the patient experience and the importance of funding CMT studies and potential therapies. As moderator for the CMT-Connect webinar series, Estela enjoys sharing resources and expert information with the CMT community on various valuable topics. On the EmBrace It Podcast, she interviews community thought leaders and aims to empower women living with disabilities in all facets of life. Estela and co-host Lainie Isbia also provide original inclusion workshops focusing on improving advocacy & DEI through communication tools, starting with “How to Communicate with Anyone About Disability.” They’ve worked with many top brands, such as Levi Strauss, Pinterest, Lockheed Martin, The Abilities Expos, SUNY Farmingdale College, Health Union, and more. In 2019, Estela gave her first TEDx talk titled “RePurpose Your Pain” on turning adversity into life’s most beautiful work. She co-teaches inclusive and adaptive design at the Fashion Institute of Technology for their Design for Social Impact program. Estela is represented by Gamut Management, an all-inclusive talent agency.
Neilanjan Nandi, MD,  Associate Professor of Clinical Medicine
Feb 22 2024
Neilanjan Nandi, MD, Associate Professor of Clinical Medicine
Neilanjan Nandi, MD, FACP is an Associate Professor of Clinical Medicine at Penn Presbyterian Medical Center at the University of Pennsylvania. Dr. Nandi's practice focuses on the management of Inflammatory Bowel Disease (IBD, eg, Crohn's disease, Ulcerative Colitis) and recurrent Clostridium difficile infection via Fecal Microbiota Transplantation (FMT). Dr. Nandi serves on the executive council of the Philadelphia Crohn's & Colitis Foundation (CCF), the medical advisory board of the United Ostomy Associates of America (UOAA), coordinates outreach on the American College of Gastroenterology Patient Care Committee and is a founding board member of the South Asian IBD Alliance (SAIA). He also regularly peer reviews research publications and serves on the social media editorial board for the premier journals 'Inflammatory Bowel Diseases' and 'Crohn's & Colitis 360.' His research has focused on studying conditions co-morbid to IBD quality of care such as characterizing the management and consequences of iron deficiency anemia and non-alcoholic fatty liver disease in IBD patients. He has a particular interest in the diagnosis and management of refractory Clostridioides difficile infection and the application of fecal microbiota transplantation in C difficile. Dr. Nandi has helped conduct a number of clinical trials of stool derived microbiome therapies. He has also authored numerous book chapters on the diagnosis and management of various viral, parasitic, mycobacterial and bacterial infections of the GI tract. Dr. Nandi’s fervor for clinical education has been recognized with multiple teaching awards including the 2023 Sidney Cohen Faculty Teacher of the Year for the Gastroenterology & Hepatology division of the University of Pennsylvania. He was honored as the 2019 Physician Hero by the Philadelphia/Delaware Valley Crohn's and Colitis Foundation at their annual Take Steps for Crohn's & Colitis event and wields digital & social media platforms to amplify education, outreach & advocacy in IBD to clinicians and patients. He was also awarded the Philadelphia CCF’s Chairman’s Citation in 2022. He is the regular host of an academic podcast : ‘GI Insights: IBD Crosstalk’ which features high yield, evidence based medicine discussions with guests from different interdisciplinary fields critical to providing comprehensive IBD care. Dr. Nandi’s passions include fitness, cooking, virtual reality gaming, reading and dancing. Follow him on social @fitwitmd.
La Toya Luces- Sampson, OBGYN, entrepreneur, speaker, and best-selling author
Jan 25 2024
La Toya Luces- Sampson, OBGYN, entrepreneur, speaker, and best-selling author
Dr. La Toya Luces-Sampson, affectionately known as Dr. Toya on social media, is a multi- faceted individual—a wife, mother, board-certified Obstetrician and Gynecologist, entrepreneur, speaker, and best-selling author. Born and raised in Trinidad and Tobago, she journeyed to the United States where she earned both her Bachelors and Medical Degrees from Howard University in an accelerated 6-year BS/MD program. Her medical training was further honed at Pennsylvania Hospital in Philadelphia. Her medical prowess is only one side of the coin. Dr. Toya is a thriving entrepreneur, being the brainchild behind "Buy Default," a curated directory aimed at promoting Black businesses and professionals. She's also the founder and CEO of Amina OBGYN Consultants, an independent contracting company providing hospital-based OBGYN services. Dr. Toya has broadened her medical practice by embracing telehealth, now offering her expertise to the women of California and Texas. Entrepreneurship became Dr. Toya’s beacon out of professional burnout, igniting a passion for patient education. She leverages her social media platforms to embolden women, providing invaluable insights to help them take charge of their reproductive health and advocate for themselves. Her endeavors echo a central message of empowerment and education, making a meaningful impact on her followers and patients alike. Discover more about Dr. Toya’s mission and connect with her: Dr. Toya’s Website Telehealth Services: Amina OBGYN Consultants Follow her on TikTok, Instagram, Facebook and YouTube
Terri Coutee, Founder DiepCFoundation
Jan 11 2024
Terri Coutee, Founder DiepCFoundation
Terri Coutee is the Founder and Director of DiepCFoundation. She started the nonprofit organization in 2016, two years after her own successful breast reconstruction, to provide support, education, and resources for those affected by breast cancer facing mastectomy. Terri hosts the DiepCJourney podcast and the DiepC Foundation educational channel where she interviews surgeons, patients, healthcare professionals, and individuals to provide resources and lived stories to listeners. She provides written content through her blog at DiepCJourney.com. Terri is a Project LEAD graduate, an intensive six-day science course designed to train patient advocates from the National Breast Cancer Coalition. She is co-lead on the World Health Innovation Summit shared decision-making expert group. Terri is a consumer patient advocate serving on the DoD-CDMRP for the breast cancer vaccine under the leadership of the team at the Cleveland Clinic. She has co-authored published papers and assisted surgeons and researchers gathering data for on-going studies in breast cancer and breast reconstruction to improve patient experience and outcomes. Terri believes education is the key component for patients being able to have a shared decision-making conversation with their health care team. Here educational resources and social media contact information can be found here: DiepCFoundation Educational Channel on YouTube DiepCJourney Podcast We are on Spotify, Libsyn, Apple Podcasts, and Amazon Music DiepCJourney.com Blog Social Media Channels: LinkedIn: Terri Coutee Facebook: diepCfoundation.org Instagram: diepcfoundation Pinterest: tgcoutee (DiepCFoundation.org) Twitter: @6state
Sherry Yun Wang, Pharmacist
Dec 7 2023
Sherry Yun Wang, Pharmacist
Dr. Yun “Sherry” Wang is an Assistant Professor on the tenure track at Chapman University School of Pharmacy (CUSP). Her academic journey is built upon a foundation in Geospatial Science from Washington University in St. Louis, an exploration of Data Science at Monash University, and comprehensive Ph.D. training in Clinical Pharmacy. Since she arrived at Chapman in May 2021, she has established and led the "Patient Safety Lab," a research initiative driven by her profound interests in health service research and pharmacoepidemiology, with a special focus on substance users and chronic disease patients. The "Patient Safety Lab" is a collaborative effort that utilizes diverse real-world datasets to explore various projects, including "Opioid Prescribing and Overdose Deaths Before and During the COVID-19 Pandemic in California," "Utilization of Buprenorphine Treatments in California: A Real-World Assessment of X Waiver Holders and Prescribers," "Spatiotemporal Disparity Mapping of Buprenorphine Treatment," and "Treatment Adherence Disparities among Adolescents and Young Adults with Cancer." These multifaceted projects unite over ten dedicated faculty members and students, fostering collaboration beyond the boundaries of Chapman University. Dr. Wang's professional background encompasses a spectrum of disciplines, including machine learning, epidemiology, clinical pharmacy, health economics, and health service research across Asia, Australia, and the United States. Her contributions are evident through peer-reviewed publications in esteemed journals such as JAMA, Lancet, Clinical Infectious Disease, International Journal of Cardiology, Pharmacogenomics Journal, Drug and Alcohol Dependence, Pain Reports, and Neuroepidemiology. Her editorial role for the "Opioid Epidemic during the COVID-19 Pandemic" Special Issue of the journal Healthcare underscores her dedication to addressing the opioid crisis. Her research findings have garnered attention in ISPOR News Across Asia, Physician Weekly, and the COVID newsletter by the Washington State Department of Health. She received the American Association of Colleges of Pharmacy (AACP) New Investigator Award in 2022. Faculty profile: https://www.chapman.edu/our-faculty/sherry-yun-wang Google Scholar: https://scholar.google.com.au/citations?user=-RicqRIAAAAJ&hl=en
Vanessa Joy Walker, Patient Advocate
Nov 9 2023
Vanessa Joy Walker, Patient Advocate
Our guest on this episode of the HD podcast is Vanessa Joy Walker: Health Consumer Advocate, Survivorship Coach, and Founder of Living After Crisis Inc. Currently pursuing an MPH at UNC Gillings School of Global Public Health, Vanessa collaborates with esteemed organizations such as HMP Global's Psych Congress and Caelum Diagnostic Solutions. Her powerful perspectives on perseverance, patient engagement, social equity, and joy have been featured in prominent outlets like The Wall Street Journal, The Washington Post, The American Cancer Society, K-Love Radio, and Menopause Today. Dedicated to Diversity, Equity, and Inclusion, Vanessa partners with transformative educational firms like The 2043 Project and Point Made Learning, shaping her contributions through a compassionate lens. With over 12 years of experience in healthcare, impact storytelling, advocacy, and operations, Vanessa is devoted to challenging the status quo. She serves as a trusted ally in guiding diverse organizations—whether in healthcare, life sciences, or any organization that prioritizes mental health and well-being. As a published author, sought-after patient advisor, consultant, and coach, Vanessa infuses authenticity and captivating storytelling into every element of her work. From conference rooms to virtual platforms, she fosters empathetic connections through engaging presentations exploring communication's power to ignite change. Connect with Vanessa on LinkedIn @VanessaJoyWalker for invaluable insights and inspiration. For collaborations and inquiries, email vjw@vanessajoywalker.com, and join her in creating a world where health and well-being are human rights."
Nick Holekamp, Vice President and Chief Medical Officer at Ranken Jordan Pediatric Bridge Hospital
Oct 26 2023
Nick Holekamp, Vice President and Chief Medical Officer at Ranken Jordan Pediatric Bridge Hospital
Nick Holekamp, MD, is the vice president and chief medical officer at Ranken Jordan Pediatric Bridge Hospital. He joined in 2000, and for nearly two decades, he’s helped more than 2,000 children and their families transition from a traditional hospital to home after chronic illness or injuries. Under Dr. Holekamp’s leadership, Ranken Jordan transitioned from a 26-bed pediatric nursing home into a 60-bed, advanced pediatric specialty hospital that is regionally recognized as a center of excellence for the care of children with medical complexities. In 2018, he oversaw a $35-million expansion that nearly doubled the hospital’s capacity, and he continues to lead initiatives that ensure a collaborative, high-quality, patient-centered care environment. He is the chief advocate for carrying out the vision of the hospital’s founder, Mary Ranken Jordan, which was to care for kids beyond the bedside. Dr. Holekamp gives kids their best chance for recovery through Care Beyond the Bedside, the hospital’s care philosophy that melds traditional health care with playful therapies that allows for routine child development, effective rehabilitation, and social re-integration so kids and their families can prepare for successful outcomes at home. His work has helped mold Ranken Jordan into a facility that parents describe as a “seamless, yet critical transition” for their child and that is held in high esteem by medical professionals across the healthcare continuum. In 2017, Dr. Holekamp co-authored “The Effect of a Comprehensive Care Transition Model on Cost and Utilization for Medically Complex Children with Cerebral Palsy, a research paper published in the Journal of Pediatric Health Care. In October, 2018, Dr. Holekamp presented his findings at the annual meeting of the Pediatric Complex Care Association in a talk titled, “An Innovative Model of Transitional Care for Medically Complex Children.” Dr. Holekamp earned a degree in biology from Dartmouth College before graduating from Saint Louis University School of Medicine in 1987. He completed his residency in pediatric and adolescent medicine at Cardinal Glennon Children’s Medical Center. Prior to joining Ranken Jordan, he was a pediatric hospitalist at St. John’s Mercy Medical Center in St. Louis. Website: www.rankenjordan.org