conect4children's Podcast

PPI (Patient-Parent Involvement) acts as the link between the patients and the clinicians, researchers and sponsors, incorporating their crucial voice to make better clinical trial from start to finish. Our guests, Begonya Nafria from Hospital Sant Joan de Déu and Segolene Gaillard from the University Hospital of Lyon, take us through why it is important in this episode.

We're back with c4c podcasts! In this episode, we had the opportunity to talk to two National Hubs, BPCRN from Belgium and HELPNet from Greece. We found out the differences and similarities between the two hubs who are working together for a common goal: safer medicines for children. To find out more about these hubs visit: https://www.bpcrn.be/ and https://helpnet.gr/

We're back with c4c podcasts! In this episode, we're talking to Gilles Vassal from Gustave Roussy about how multistakeholder meetings are crucial to create a more patient-centric and science-driven paediatric clinical trial landscape.

We're back with c4c podcasts! In this episode, Mark Turner, Sabah Attar and Ricardo Fernandes take us through the transition from a publicly-funded project to a stand-alone organization.

We're back with c4c podcasts! In this episode, Mark Turner, Begonya Nafria, Donato Bonifazi, Ricardo Fernandes discuss the  Challenges and Opportunities in Pediatrics Clinical Research, - Digital Innovation & Transformation. Enjoy!

Welcome back to this new c4c podcast episode! Today, we are joined by Pirkko Lepola, Executive Secretary of Finnish pediatric research network, c4c National Hub Helsinki University Hospital, to talk about the ethical principles in paediatric clinical trials. What are the current rules? How to make sure to apply children's rights? Listen to this episode, we hope you enjoy it!

Welcome back to this new c4c podcast episode! Today, we are joined by Pirkko Lepola, Executive Secretary of Finnish pediatric research network, c4c National Hub Helsinki University Hospital, to talk about the ethical principles in paediatric clinical trials. What are the current rules? How to set up a paediatric clinical trials by following these rules? How can c4c support this process? Listen to this episode, we hope you enjoy it!

Welcome to another episode of the c4c podcast! Today, we are joined by Eva Degraeuwe, Core team Belgian National hub, Founder YIC, Tessa van der Geest Project Manager Pedmed-NL and Mark Turner University of Liverpool  Co-coordinator c4c to talk about the Young Investigators Community! What is the Young Investigators Community? c4c has established the Young Investigators Community to include young investigators and researchers from across the c4c National Hubs network. This community aims to involve individuals working within the c4c network to come together and improve collaboration, education, and networking. Learn more about this wonderful initiative and how you can join!

In this podcast episode, we are joined by Professor Franz Schaefer, Head of Pediatric Nephrology at Heidelberg University Hospital, and Saskia de Wildt, Professor of Clinical Pharmacology and pediatric intensivist at Radboud University & Erasmus MC Sophia Children's Hospital. Franz and Saskia are both involved in the c4c methodology experts’ groups, that bring together experts in different fields intending to advise pharmaceutical companies or academic trials during a paediatric clinical trial. How was this initiative set up? How do patients participate in these groups as well? What requests have been solved until now? Listen to this new episode to find out!

Kawasaki disease is an acute febrile illness of unknown cause that primarily affects children younger than 5 years of age.The clinical trial “KD-CAAP” studies the effectiveness of adding a new element to the standard treatment for this disease. What are the hopes for Kawasaki disease treatment and patients? Listen to our podcast with Prof. Paul Brogan, joined chief investigator of the KD-CAAP trial, that will explain you what Kawasaki disease is, why KD-CAAP trial is important, and what are the perspectives around this disease that affects mostly children.

Kawasaki disease, also known as Kawasaki syndrome, is an acute febrile illness of unknown cause that primarily affects children younger than 5 years of age.KD-CAAP proof of viability study assesses the effectiveness of adding steroids to standard treatment in children with Kawasaki Disease.Why is it important to improve paediatric patient’s lives? How is c4c supporting this study?Listen to our podcast with Prof. Paul Brogan, joined chief investigator of the KD-CAAP trial!

conect4children podcast is back with a new episode around Science communication! Why is Science communication essential nowadays, especially for an European Network as conect4children? How to efficiently communicate science? How to overcome the challenges around fake news? Join our Claudio Fracasso, Pediatric Clinical Director in Pfizer Pediatric Center of Excellence, and Lindsey Hunter, Network Education Training Team Manager at Fondazione Penta Onlus for an interesting conversation around Science Communication!

In today’s episode, we’re exploring what CasperCF study is. What’s the objective of this study?  Why is it important for children?Listen to the full episode with Jacob Bradbury, Graduate research assistant at Exeter University!

In today’s episode, we’re focusing on cASPerCF trial, a study that is trying to find the right dose of posaconazole for children & young people with Cystic Fibrosis and Aspergillus infectionWhy is this study important? What are the challenges? Why is c4c important for this ongoing trial?Listen to the full episode with Adilia Warris, Chief investigator of the cASPerCF trial, professor at the University of Exeter!

Episode description not available.