The Bladder Cancer Canada Podcast

Bladder Cancer Canada

Thanks so much for joining us during Bladder Cancer Awareness month! There are over 80,000 Canadians currently living with a bladder cancer diagnosis and 13,400 more will be diagnosed this year. That means 37 people a day will be affected by the 5th most common cancer.

At Bladder Cancer Canada, we are doing everything we can to increase awareness of this devastating disease to as many Canadians as possible. For more information, visit our website at www.bladdercancercanada.org.

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Health & FitnessHealth & Fitness

Episodes

Could a lifelong need for catheterization have led to bladder cancer?
May 11 2022
Could a lifelong need for catheterization have led to bladder cancer?
That’s one topic discussed by Bladder Cancer Canada’s Tawny Barratt and cancer survivor Angela in this podcast. In the podcast, Angela tells Tawny she was born with spina bifida. “My spine was on the other side of my back in a sack the size of an orange. I needed surgery to fix that and there was a lot of nerve damage.” Among other things, her brain wasn’t communicating with her bladder. “There was never a signal saying, ‘it’s time to go.’ My parents were told I would need to be catheterized every day of my life.” With each catheter costing about $10 and the procedure needed up to 10 times a day, costs mounted. “Medical staff taught my mom how to sanitize them so they could be reused. As I got older, I would stretch out my reuse of catheters as much as I could.” Perhaps it was the reuse, the number of times needed, or the inflammation from having to do it at all, that led to another medical issue. Angela began having frequent urinary tract infections (UTIs). “Sometimes I could flush them out with water or drinking lots of fluids, but I was also on antibiotics for years. This is something very common for people with spina bifida.” In her late 30s, though, another health problem developed: bladder cancer. “In August of 2018 I noticed large blood clots in my urine. I immediately made a doctor's appointment because I'd never seen that before. It was first treated as a UTI but I had chronic pain in my bladder and kidneys, so I went back to my doctor.”Listen to Angela talk about how her non muscle invasive bladder cancer quickly progressed to muscle invasive and after numerous forms of failed treatment, she had her bladder removed in May 2021.She shares how the Bladder Cancer Canada website and patient guidebooks provided the information and support she needed when fighting an aggressive cancer that no one in her life knew much about.This podcast is generously sponsored by Coloplast Canada. BCC note: Using a catheter does not mean that you will get bladder cancer. Catheterization is widely recommended and recognized by urologists and nurses. If you need to use a catheter, it’s recommended you learn more about their use and proper sanitization.
Celebrating Mothers and Caregivers with Lisa Garland
May 6 2022
Celebrating Mothers and Caregivers with Lisa Garland
Join us for this very special podcast on Mother’s Day as we talk to mom Lisa about her experience being a caregiver to her two sons, Matteo and Nicco, while they both battled cancers at very young ages.In this unbelievable story, Lisa talks candidly about her experience when Matteo, who is turning 14 years old next month, was diagnosed with bladder cancer when he was only 16 months old. Matteo would then have his bladder removed when he was 2 and a half years old after scans showed that his bladder cancer had become very aggressive.“I found out from a friend that works in the surgical unit at the hospital that 21 surgeries were cancelled the day that Matteo had his bladder removed,” recalls Lisa. “They wanted as many surgeons as possible to be available during the surgery because no one had done this type of surgery on someone so young.” In a shocking turn of events, Lisa shares that Matteo had just finished his treatments and protocol when, 6 months later and at the age of 2, Nicco was diagnosed with leukemia. Nicco’s protocol would last almost 4 years and by the time he was finished, Lisa had spent a total of 8 years supporting her sons and advocating for them to get the best care possible. Lisa also talks about what it was like for her as a young mom and the anxiety she faced as she juggled spending full days in the hospital with Matteo, dropping off and picking up her oldest child and daughter Jayden at daycare, and then rushing home to breast feed Nicco. “One of us still had to work and pay the bills,” she remembers. “My husband would work all day and then go to the hospital to be with Matteo so that I could spend time with our other children at night. How would I take care of myself during all that?” Lisa wonders, as she talks about her anxiety, panic attacks and the medication she took for years just to cope. Lisa’s piece of advice for other caregivers or mothers going through something similar is that it’s a nightmare that you will get through, adding that, “You never know how strong you are until you have no other option – you’re stronger than you think.” Be sure to listen to the podcast and don’t miss the special guest that makes an appearance part way through the podcast – another bladder cancer patient with an ostomy pouch that helped turned things around for Matteo and helped him understand that he wasn’t alone.This podcast is hosted by Tawny Barratt, Director of Communications at Bladder Cancer Canada.