PODCAST

FUMS: Giving Multiple Sclerosis The Finger

Kathy Reagan Young

A podcast providing information, inspiration and motivation for living your best life with Multiple Sclerosis. Join us for interviews with doctors, research scientists, patients, legislators, insurers, neuropsychologists, authors, caregivers, and a long list of others in our pursuit of answers. Learn to speak to this disease as it deserves - tell it "FUMS" everyday!


FUMS 094 - The National MS Society's MS Navigators Program
For most of us in the US, when we join the lucky MS'ers club, the first place we turn is likely to be the National Multiple Sclerosis Society. The National MS Society's vision is a world free of MS - something which we can all get behind! But while the bastard refuses to die, they also focus on ensuring that people affected by MS can live their best lives.One of the ways in which they do this is the MS Navigator program. The Navigators exist to connect you with the help you need, wherever and whenever you need it.To tell us more, my guest today is Allison Krehbiel, the Director of MS Navigator Services Delivery. Allison provides leadership to the nationwide team of MS Navigators who receive direct referrals from healthcare providers - utilizing the power of collaboration to improve client outcomes. Allison has been with the National MS Society since 2005 when she started as a contracted Case Manager. She received her Masters in Social Work from the University of Washington and has a certificate in non-profit management and in Diversity, Equity, and Inclusion.Topics covered in this episode include:The reasons why the program was startedDo the Navigators need to have a connection to MS? Examples of the different ways in which the program can help people with MS - including disability benefits and employment issuesThe training which is involved for NavigatorsHow to connect with the MS Navigator programFull show notes and resources at https://fumsnow.com/fums094/See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Today
19 mins
FUMS 093 - Eating Healthy Over The Holidays with Alene Brennan
As the song says, it’s the most wonderful time of the year! And many of us traditionally mark the season - and please know that the FUMS Podcast is a no-shame space - by giving up on eating and living in a healthier way. But increasingly, many of us living with MS and related chronic conditions are managing our health through nutrition and lifestyle. So how do we keep this up without missing our family traditions?Luckily, Functional Nutrition Counselor and Chef Alene Brennan is on-hand to show us the way.Alene knows first-hand what it’s like to live, and rise above, a chronic illness and debilitating migraines. Following her diagnosis with Multiple Sclerosis in 2016, she now coaches individuals from around the world to manage autoimmune disease through diet and lifestyle.Listen in as she shows us that we don't have to compromise our healthy habits during the holidays to enjoy this special season.Topics covered in this episode include:Why Alene feels that it’s important to focus on what’s manageable for you to maintain a healthy lifestyle during the festive holidaysAlene’s thoughts about the different diets which are believed to help with autoimmune conditions - including the Wahls protocol, and plant-based and gluten-free diets. How should we balance out conflicting advice?Why it’s not enough to eat badly and exercise moreHow adopting a more mindful approach to your diet can help you to maintain your important family traditions and ritualsWhere to find out more about Alene and the work she doesResources for this episode (clickable links):Visit Patients Getting PaidIf you’re getting value from FUMS, please consider leaving a review wherever you’re listening nowHelp keep FUMS alive at the FUMS Podcast Patreon page - or buy FUMS MerchGet your copy of Kathy’s ebook with Erin Glace: "Bowel and Bladder Issues in Multiple Sclerosis by Two Pee Brains With Potty Mouths Talking Shit About MS"Listen to Alene’s previous appearances on the FUMS Podcast Show: Episode 061 – Essential Oils and MS with Alene Brennan and Episode 017 – Autoimmune Health Coach Alene BrennanFUMS episodes on Wahl’sTo learn more and receive free resources, visit Alene’s website at www.lesspharmmoretable.com Follow her on Instagram @lesspharmmoretable and on YouTube** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack.~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Nov 16 2021
39 mins
FUMS 092 - Music Therapy For MS with Dr. Cindybet Pérez
If you're anything like me, music is a big part of your life. It can lift me up, it can wipe me out, but it's always there. And you'll likely also have seen incredible videos which show people with Dementia or Alzheimer's responding to music when they otherwise are non-responsive.But did you ever think that music could make a difference to the health of people with MS? Dr. Cindybet Pérez is a board-certified clinical and neurological music therapist practicing in Puerto Rico. A faculty member at the Pontifical Catholic University, she also participated in a national-level project specially designed to promote health and wellness through evidence-based interventions for MS patients called MS in Harmony.In our fascinating conversation, Dr. Cindybet talks about how music therapy can help MS patients cope with their diagnosis, becoming another potential weapon in our arsenal - not simply lifting our mood but improving our movement and memory!Topics covered in this episode include:How Dr. Cindybet persevered to use her musical gift to help people, despite a lack of awareness of the benefits of Music Therapy in Puerto RicoWhy Music Therapy can be particularly effective for those newly diagnosed with MS, and how Dr. Cindybet adapts her work to the individual needs of each patientThe reasons why you should pay attention to song lyrics - evaluate the message as well as the rhythm and the feelThe power of playlistsDr. Cindybet's work on the national MS in Harmony projectResources for this episode (clickable links):Visit Patients Getting PaidIf you’re getting value from FUMS, please consider leaving a review wherever you’re listening nowHelp keep FUMS alive at the FUMS Podcast Patreon page - or buy FUMS MerchDownload Kathy’s song, “Wash Your Mouth Out With Hope”Connect with the Puerto Rico Music Therapy Institute on FacebookLearn more about the MS in Harmony projectVisit the Certification Board for Music Therapists  ** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack.~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Nov 2 2021
53 mins
FUMS 091 - Move It Or Lose It with MS Specialist Fitness Trainer Kathy Chester
“Which part of our body are you ok with losing?” - this is the question that fitness trainer Kathy Chester will sometimes ask her clients.Prior to opening Disrupt Fitness Gym, Kathy had been a leader in the fitness industry for almost a decade. However, it wasn’t until she was diagnosed with Multiple Sclerosis that she decided the time had come to take it to the next level.   Having MS while being an instructor has allowed Kathy to not only push past places she'd been told she would never physically reach but has provided her with the gift of offering encouragement while working through different adversities with her clients.And why did she choose the name “Disrupt” for her gym? Well, that’s because she’s disrupting the idea of what we can and cannot do with MS and related autoimmune conditions. In other words, she says FUMS every day!Topics covered in this episode include:How Kathy relished speaking to groups in her former life as the wife of a pastor - and why she used humor to cover her initial MS symptomsHow a huge relapse coincided with the end of her first marriage and the ways in which Kathy handled dating with MSWhy she decided to change her fitness practice to focus on helping people with autoimmune conditions - and the reason Kathy decided to stop training in other venues and begin working with clients in her garageWhy Kathy’s fitness practice is as much about emotions as it is about movementThe difficulties of running a business (and getting paid) within the autoimmune communityWhy Kathy decided to launch her own podcast and where you can find out more about her and her workResources for this episode (clickable links):Visit Patients Getting PaidVisit Disrupt Fitness Follow Disrupt Fitness on Facebook and InstagramListen to the Move It Or Lose It podcastListen to Kathy Reagan Young on the Move It Or Lose It podcast - Part One and Part TwoIf you’re getting value from FUMS, please consider leaving a review wherever you’re listening nowHelp keep FUMS alive at the FUMS Podcast Patreon page - or buy FUMS Merch** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack.~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Oct 19 2021
43 mins
FUMS 090 - Heat Intolerance and Exercise with MS Specialist Dr. Gretchen Hawley
It’s a third-time visit for MS-specialist Physical Therapist Dr. Gretchen Hawley. She began treating people with Multiple Sclerosis during her first year of professional practice. The positive results she saw in her patients led her to specialize in the treatment of MS, taking every opportunity to attend workshops and conferences dedicated to improving lives through Physical Therapy.She has previously appeared to talk about the benefits of PT for People with MS, and the launch of her online MSing Link wellness program - which coincided with the global COVID-19 shutdown. I’ve been hearing her name mentioned in lots of MS-related areas recently, so she’s back to talk about all the exciting things she’s working on now - including the launch of her own podcast, and a FREE 5 Day MS Strength Challenge!How Dr. Gretchen’s online MSing Link Wellness program has helped people all over the world - and the importance of accountability as an aid to achieving health goalsWhy heat intolerance affects so many people with MS - along with tips and tricks to help us to deal with itWhat is Neuroplasticity? And why is it relevant for people with MS?The counter-intuitive benefits of light to moderate exerciseWhy Dr. Hawley decided to start a podcastDetails about how you can sign up for Dr. Hawley’s Free 5 Day MS Strength ChallengeResources for this episode (clickable links): Visit Patients Getting PaidDr. Hawley’s two previous appearance on the FUMS Podcast: FUMS 022 – Benefits of Physical Therapy for MS with Dr. Gretchen Hawley and FUMS 074 – Dr. Gretchen Hawley Providing the MSing Link for MS with PTPrevious FUMS podcast episode about the ThermApparel Undercool Cooling Vest: FUMS 059 - A Solution for Heat Sensitivity in MS Dr. Hawley’s MSinglink websiteListen to The MSing Link podcast Learn about the Free 5 Day MS Strength Challenge Visit Gretchen on YouTube, Instagram and FacebookIf you’re getting value from FUMS, please consider leaving a review wherever you’re listening nowHelp keep FUMS alive at the FUMS Podcast Patreon page - or buy FUMS Merch** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack.~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Oct 5 2021
37 mins
FUMS 089 - MS, COVID-19 Vaccines, and the Booster Shot with Dr. Brandon Beaber
Sep 21 2021
39 mins
FUMS 088 - Psychedelic Experiences, Frogs, and MS - with Neurobiologist Caitlin ThompsonFUMS 087 - Let's Talk About Sex - and MS - with Dr. Fred FoleyFUMS 086 - Funny Shit About MS with Comedian Shari ShortFUMS 085 - Amber Tuma Talks About MS & Her Rock & Roll Lifestyle
Amber Tuma was studying for her music degree in Texas and raising two kids with her husband when MS reared its ugly head. So she says FU to MS by continuing to write and play music with her band The Gallows Crow.Hear the inspirational story of how Amber refuses to let MS get in the way of how she lives her life. Go, Amber!Topics covered in this episode include:Amber’s life pre- her MS diagnosisThe story of her initial symptoms, her quick diagnosis, and an unknown link to MS  How Amber handles the emotional and physical stresses of playing music, including the story of the gig she played shortly after her diagnosisHow Amber’s friends and family members have responded to her diagnosisAmber’s aspirations, and plans to write a song about MSResources for this episode (clickable links):Visit The Gallows Crow and follow them on Instagram and FacebookListen to Kathy’s song, Wash Your Mouth Out With HopeHelp keep FUMS alive at the FUMS Podcast Patreon page - or buy FUMS MerchSign up for the Patients Getting Paid course email waiting listGet the “Bowel and Bladder Issues in Multiple Sclerosis by Two Pee Brains With Potty Mouths Talking Shit About MS” ebook** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack.~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Jul 27 2021
22 mins
FUMS 084 - Run A Myelin My Shoes with Cheryl Hile
When Cheryl Hile’s neurologist told her to “lower her expectations”, the marathon runner showed that she was an FUMS’er to her core. Adopting the mantra “I do what I can and never give up”, she has now completed 56 (FIFTY-SIX!!!) marathons, 41 following her diagnosis.After running 7 marathons on 7 continents in 12 months, Cheryl founded the running and walking team Run A Myelin My Shoes to challenge the perception that strenuous exercise is bad for MS.Listen in as I chat with this amazing MS Warrior and even get strong-armed into taking part in the 2021 event!Topics covered in this episode include:Cheryl’s pre-MS life including running marathons on vacation with her husbandHer first MS symptoms and THAT neurologist conversationHow she founded Run A Myelin My Shoes after meeting MSers who ran or wanted to runWhy you don’t have to run to get involved with Run A Myelin My Shoes!Details of how you can get involved with the 2021 event, regardless of where you liveResources for this episode (clickable links):Visit CherylHile.comVisit the website for Run A Myelin My Shoes and get details about the 2021 RAMMS eventWatch the Run A Myelin My Shoes mini-documentaryHelp keep FUMS alive at the FUMS Podcast Patreon page - or buy FUMS MerchSign up for the Patients Getting Paid course email waiting list** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack.~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Jul 13 2021
20 mins
FUMS 083 - Don’t Just Survive - THRIVE! with Jen DeTracey
I’m sure that all of us can agree that MS sucks for a lot of the time. But having an FUMS attitude means not just surviving with MS - but THRIVING!Jen DeTracey is a certified coach and the founder of Women Thriving with MS. In 2010, Jen was a successful consultant and professional speaker when, during a speaking tour, she found she could barely walk, write or smile. 48 hours later she was diagnosed with Multiple Sclerosis. At that time, she thought she would never be able to work again.Jen has been living with MS for over 10 years and has now discovered how to thrive. And now she’s guiding women on how to empower themselves to live life better with MS. Listen in to find out how!Topics covered in this episode include:What Jen was doing prior to her diagnosis with MS - in her career and private lifeThe story of Jen’s early symptoms and MS diagnosisHer post-diagnosis struggles with mental healthHow an insurance policy empowered Jen to make a change in her careerWhy Jen started her Women Thriving with MS programDetails about Jen’s recently launched weTHRIVE membershipResources for this episode (clickable links):Check out Jen’s weTHRIVE membership programmeVisit the WomenThrivingWithMS.com website and listen to the PodcastFollow Women Thriving With MS on YouTube, Twitter and FacebookHelp keep FUMS alive at the FUMS Podcast Patreon page - or buy FUMS MerchSign up for the Patients Getting Paid course email waiting list** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack.~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Jun 29 2021
40 mins
FUMS 082 - The Natural Way to MS Health with Naturopath Elizabeth Yarnell
I hear from a lot of people with MS who have had success in treating their condition with Naturopathy and adopting an anti-inflammatory diet. So who better to talk to about this than a renowned Naturopath who also has MS?Since being diagnosed with multiple sclerosis at age 30, Elizabeth Yarnell has spent the past 20 years studying how to manage autoimmunity naturally as a traditional naturopath. Her focus is on how anti-inflammatory therapies can influence the course of MS.Through her work with hundreds of people with MS and other autoimmune conditions, Elizabeth’s personalized natural therapies have helped them slow or even reverse the course of their disease. Topics covered in this episode include:Elizabeth’s diagnosis story - and why she chose to explore natural therapiesWhat exactly is a naturopath? The tests which Elizabeth uses to find each patient’s personal inflammatory triggers - and those tests which you should avoidThe links between inflammation and digestive issuesElizabeth’s three-pronged approach to treating her patients and the results which people can expect to experienceWhat makes certain foods anti-inflammatory?Schedule a complimentary naturopathic assessment with Elizabeth at bit.ly/eyassessmentResources for this episode (clickable links):Visit ElizabethYarnell.com Connect with Elizabeth on Twitter, Instagram and FacebookSee Elizabeth’s books, including Glorious One-Pot MealsHelp keep FUMS alive at the FUMS Podcast Patreon page - or buy FUMS MerchSign up for the Patients Getting Paid course email waiting list** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack.~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Jun 15 2021
32 mins
FUMS 081 -  Butts, Guts, and MS with Neurogastroenterologist Dr. David Levinthal
As part of the rich buffet of joy that MS lays out for us, problems with your gut and pooping have to be right at the top of the charts - or the shit-list, if you will.Just to state it for the record, not everyone with MS will have these issues - as we know, MS isn’t a one-size-fits-all deal. But it is something that a lot of people deal with, which is why we’re covering it here.So my guest today is Dr. David Levinthal, the Director of the Neurogastroenterology and Motility Center at the University of Pittsburgh Medical Centre. Dr. Levinthal got his doctorate in Neuroscience and has a particular interest in functional and motility disorders of the GI tract, and GI symptoms that arise in the context of neurological disorders, including MS.So as far as gut issues and MS are concerned, it’s safe to say that he knows his shit! Topics covered in this episode include:What are the GI issues which commonly affect people with MS? How neural circuitry interacts with the gutWhy are these issues overrepresented in people with MS?Current experiments with brain stimulationNew developments, treatment options, and Dr. Levinthal’s current focusWhat on earth is the Bristol Stool Chart?!Resources for this episode (clickable links):Get your copy of Kathy’s ebook with Erin Glace: "Bowel and Bladder Issues in Multiple Sclerosis by Two Pee Brains With Potty Mouths Talking Shit About MS"Connect with Dr. Levinthal on Twitter and view his Clinical Provider PageVisit the American Neurogastro­enterology and Motility Society websiteWeb MD page about The Bristol Stool ChartHelp keep FUMS alive at the FUMS Podcast Patreon page Sign up for the Patients Getting Paid course email waiting list** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack.~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Jun 1 2021
36 mins
FUMS 080 - Your Doctor Is Your Employee
In my life, I spend a lot of time in various MS-related spaces. Having a community that understands what I’m going through, and where I can offer support, is one of the blessings in my life.But even with all of that, there are still things about these spaces which concern me. So in this solo episode, I’m getting a few things off my chest! And in all of this, I’m not trying to cause offense. I’m just saying that you should value your own health, so be careful where you get your medical advice! As always, I’d love to know your thoughts on this subject.Topics covered in this episode include:My MS bona-fides! AKA I know what I’m talking aboutThe problem I have with how some people are using online MS-related groups The real value of these groups, what they’re good for… and what they’re NOTMy current issues with the US healthcare systemDon’t be intimidated by your medical team - hold their feet to the fire! Resources for this episode (clickable links):Visit Healthline’s Living with MS Facebook pageGet Healthline’s free MS Buddy app for iOS and AndroidHelp keep FUMS alive at the FUMS Podcast Patreon page Sign up for the Patients Getting Paid course email waiting list** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack.~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
May 18 2021
18 mins
FUMS 079 - He Has MS and He’s Running 162 Miles
Matt LaFrance is a 37-year-old husband and father of three young boys from San Jose, CA. He was diagnosed with MS in 2009 at the age of 25. In May he will be running 162 miles in six days as part of the 2021 MS Run the US relay team. I’ll let that sink in. 162 miles in six days. AND he has MS! MS Run the US is the longest annual relay run across America. It’s an epic 3,260-mile run to stop MS! The relay begins in April in Santa Monica, CA and finishes in August in New York. The relay team is made up of 19 runners hand-selected from a pool of applicants nationwide.  Matt is running the MS Run The US relay to inspire those who have been recently diagnosed and support those living with MS who have not been as fortunate as him. If you're able, please consider donating to this worthy cause and supporting Matt. Topics covered in this episode include: Matt’s diagnosis story and his life since then Why he decided to combat his illness with exercise, diet, and supplements, rather than DMTs  Why Matt views his MS diagnosis as a blessing in disguise How Matt got involved with MS Run The US How you can support him in his epic run  Resources for this episode (clickable links): MS Run The US website  Matt’s fundraising profile on the MS Run The US website MS Hope website Follow Matt on Instagram, Facebook, and LinkedIn  Help keep FUMS alive at the FUMS Podcast Patreon page  Sign up for the Patients Getting Paid course email waiting list ** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
May 4 2021
19 mins
FUMS 078 - Clean Cosmetics You Can (Almost) Eat with Skincare Chef and MS Entrepreneur Natalie Schultz White
The benefits of a healthy diet and lifestyle for people living with MS have been of increasing interest over the last few years. But have you ever stopped to think about the effect of the cosmetics you put on your face? Following her diagnosis with Multiple Sclerosis, Natalie Schultz White was determined to put a positive spin on her experiences, through her website, MS Saved My Life. At the same time, she came to the conclusion that toxins in her life and the food she was eating were contributing to her illness, and began treating her MS with a real whole-food lifestyle, bypassing all traditional MS medication. After three days, she began feeling better, her symptoms began to dissipate and her energy began to return. Listen in to hear her inspiring #chronicpreneur story!  Topics covered in this episode include: Natalie’s MS diagnosis story How she chose to explore the benefits of a healthy diet with the support of her family What is clean eating? Why Natalie used the same principles to build her skin care business - “If you wouldn’t put it in your mouth, you shouldn’t put it on your skin” Get 10% off your first order at the be well company - with code FUMS10 Resources for this episode (clickable links): FUMS Podcast Episode 010: Dr. Terry Wahls On Her Diet vs. Dr. Roy Swank's Diet for MS Natalie’s website, MS Saved My Life Website for the be well company - get 10% off your first order with code FUMS10 Follow the be well company on Instagram, Facebook, Twitter and Pinterest  Help keep FUMS alive at the FUMS Podcast Patreon page  Sign up for the Patients Getting Paid course email waiting list ** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.com See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Apr 20 2021
36 mins
FUMS 077 - Tamara Sellman: Author of New MS Poetry and Prose Book "Intention Tremor"
Tamara Sellman was last on the FUMS podcast back on Episode 31 - when she was talking about sleep disorders and her professional life as a medical board-certified sleep technologist and sleep educator. It was during her training that she was diagnosed with Multiple Sclerosis. A widely published writer in the years following her diagnosis in 2013, Tamara wrote the collection of prose and poetry which makes up her "hybrid memoir", Intention Tremor, which was published in early 2021. We talk about why she writes, why she writes about MS in particular, and the difficulties of launching her first book during a global pandemic. Topics covered in this episode include: A brief recap of Tamara's diagnosis storyWhy she chooses to write about MSTamara's unusual book tour!A reading of "The Expert" from Intention TremorDetails of a special gift you can receive if you mention the FUMS podcast when buying your copy of Intention Tremor Resources for this episode (clickable links): FUMS Podcast Episode 031: Multiple Sclerosis and the Science of Sleep with Tamara SellmanFUMS Podcast Episode 055: Coronavirus and Chronic Illness: A Message for the HealthiesTamara Sellman websiteMention the FUMS podcast when you order Intention Tremor from Tamara's website to get a free USB flash driveThe Accelerated Cure ProjectHelp keep FUMS alive at the FUMS Podcast Patreon pageSign up for the Patients Getting Paid course email waiting list ** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Mar 23 2021
38 mins
FUMS 076 - How YOUR Saliva Can Help Advance MS Research
The popularity of personal DNA testing and genome sequencing has really increased in recent years. As someone with MS, have you ever thought about getting it done yourself? Patrick Short is the co-founder and CEO of Sano Genetics, a platform that helps patients match with precision medicine research and learn more through personalised reports, and other content including patient stories. The platform is patient-centric and private-by design, and through data-driven matchmaking and home genomic testing, has enabled precision medicine studies in common and rare diseases, including autoimmune and neurology (MS in particular) as an area of focus. Sano Genetics empowers people to access research, information, and their DNA through their platform. It works as a guide for people who want to take part in research and inform them of different types of research. Participants can also gain access to their DNA through some of Sano's research projects. Exclusive FUMS giveaway! You can enter a giveaway for a free Sano Genetics DNA kit through this link. You must create and validate an account in order to enter and a winner will be picked after the giveaway closes (two weeks after the episode is published on Tuesday March 9th, 2021). Topics covered in this episode include: The different types of research which Sano Genetics carries outIs MS genetic?What is precision or personalised medicine?The Sano Genetics process - and Kathy's own experienceHow can research benefit the MS community? Resources for this episode (clickable links): Visit the Sano Genetics website and the page for Multiple SclerosisListen to The Genetics PodcastConnect with Sano Genetics on LinkedIn, Instagram, Twitter and FacebookHelp keep FUMS alive at the FUMS Podcast Patreon pageSign up for the Patients Getting Paid course email waiting list ** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Mar 9 2021
40 mins
FUMS 075 - Manage Your MS With Yoga And Mindfulness With Mindy Eisenberg
My guest today is Mindy Eisenberg. Mindy is the Founder and Director of Yoga Moves MS, a nonprofit company with the mission of improving the quality of life for individuals with MS, Parkinson's Disease, and neuromuscular conditions. She is the author of Adaptive Yoga Moves Any Body and the creator of Adaptive Yoga Cards, which show daily yoga moves for all ages and abilities. Mindy has provided yoga therapy to individuals with mobility challenges for over fifteen years and thrives on building a strong, mighty community for her students and families. She is also a Qualified Mindfulness-Based Stress reduction teacher. Mindy previously appeared on the podcast in 2018 - see FUMS 019 - and is back to talk about how her practice has developed and continues to grow! Topics covered include: The story of how a family link inspired Mindy to develop her yoga practice in order to increase the quality of life for people with Multiple Sclerosis and other neuromuscular conditionsHow Mindy strives to make yoga accessible for all in her classesWhy Mindy adapted her Yoga book into instructional cardsThe importance of the support group for people who are following Mindy's Yoga classes and how this grew into the Holistic Health and Wellness ForumHow she was able to provide instruction and pivot to running the forum and yoga classes virtually during the pandemic - with a global audience!How the work that Mindy does positively impacts the MS community - and how the view of exercise as part MS of disease management has changed over the yearsThe importance of mindfulness in managing your MS Resources for this episode (clickable links): A performance of "Wash Your Mouth Out With Hope", the theme to the FUMS podcast showMindy's previous appearance on the FUMS Podcast Show: FUMS 019 – Adaptive Yoga, Mindfulness, and Meditation with Mindy EisenbergVisit the Yoga Moves MS website and Yoga Moves MS instructional productsVisit Yoga Moves MS on YouTube, Instagram and FacebookHelp keep FUMS alive at the FUMS Podcast Patreon pageSign up for the Patients Getting Paid course email waiting list ** Sign up for The FUMS 6-Pack here: The FUMS 6-Pack. ~ Special thanks to my podcast editor Steve Woodward. Do you have a podcast or are you interested in starting a pod? **GREAT way for a Patient to get PAID!! I HIGHLY recommend adding Steve to your team. Find him at PodcastingEditor.comSee Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.
Feb 23 2021
32 mins

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