NORD's Rare Disease Advisory Councils

RARING

Jun 30 2021 • 25 mins

On the show today, it's all about Rare Disease Advisory Councils – or RDACs, for short. RDACs provide a platform for the rare community to have a stronger voice in state government. Joining us is NORD Director of Policy Heidi Ross, your one-stop human shop to understanding what these councils are, and how you – the listener – can take an active role in local policy changes. Long story short, RDACs can make a significant impact in your state, and you can contribute to that voice with resources from NORD's Project RDAC. NOTE: Sitting in for Matthew Zachary today is OffScrip Media Co-Founder and Chief Operating Officer Andrew MacDowell. For more information about NORD visit https://rarediseases.org.

See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

You Might Like

The Mindset Mentor
The Mindset Mentor
Rob Dial and Kast Media
Huberman Lab
Huberman Lab
Scicomm Media
Relaxing White Noise
Relaxing White Noise
Relaxing White Noise, LLC
Sleep With Me
Sleep With Me
Dearest Scooter
Become
Become
Amazon Music
Sex With Emily
Sex With Emily
Dr. Emily Morse
UnF*ck Your Brain
UnF*ck Your Brain
Kara Loewentheil
Mind Pump: Raw Fitness Truth
Mind Pump: Raw Fitness Truth
Sal Di Stefano, Adam Schafer, Justin Andrews, Doug Egge
8 Hour Sleep Music
8 Hour Sleep Music
8-Hour Sleep Music
Maintenance Phase
Maintenance Phase
Aubrey Gordon & Michael Hobbes