This week we're talking about FCCM or, Familial cerebral cavernous malformation, with Megan. [FCCM is] ..." a rare, capillary-venous malformations characterized by closely clustered irregular dilated capillaries that can be asymptomatic or that can cause variable neurological manifestations such as seizures, non-specific headaches, progressive or transient focal neurologic deficits, and/or cerebral hemorrhages". (credits: GARD)
Megan is a mom to twins — identical 17-year-old girls — and a 13-year-old son. She, her husband, and kids live just outside of Phoenix. She is a writer, caregiver, and mom.
Maybe most importantly, Megan is also an advocate for rare diseases and rare disease parenting.