MitoAction Expert Series


Our monthly educational webinars feature guest speakers addressing topics important to the mito community, giving patients and families unprecedented access to leading clinical experts
Whole genome sequencing with comprehensive re-analysis in undiagnosed or unclear causes with mitochondrial dysfunction: How this can lead to improved diagnosis, treatment, and clinical outcomes.The Mito Cocktail RevisitedIntroducing the Ultragenyx LC-FAOD Disease Monitoring Programs: Our Commitment to Advancing LC-FAOD Research GloballyBack to School...IEP's, 504 Plans and More!Moving Mito Medicine: Reneo Strides StudyUltragenyx’s LC-FAOD Odyssey Study: From Patient Experience to Patient EmpowermentClinical Trials: Why you should care and why you should participate. How do we know what we know?Mitochondrial Defects May Lead to Autism - Dr. Douglas Wallace - 3/5/212021 Town Hall Meeting - 1/15/21Patients as Partners in Drug Development - Dr. Madhu Davies - 2/12/21Mito Basics: Genetics, Testing and Financial - David Keane - 12/4/20Mitochondrial Myopathy - Dr. Bruce Cohen - 11/20/2015Diet, Dysmotility, and Tube Feeding - Kristen R. Roberts - 12/4/2015PTC743 (Vatiquinone) for the Treatment of Mitochondrial Disease With Associated Epilepsy - Matt Klein & Francesco Bibbiani - 11/6/20202016 Mito Town Meeting - 1/8/2016Fatty Acid Oxidation Disorders - Dr. Jerry Vockley - 2/5/2016NORD Public Policy Team - 3/4/2016Incapacity Planning and Guardianship - Annette Hines & Mark Worthington - 3/31/2016Mitochondrial Medicine Society Update (2016) - Dr. Amy Goldstein - 4/3/2016Extended School Year and Summer Camp Planning - Annette Hines - 4/6/2016