The Sunflower Conversations

Hidden Disabilities Sunflower

The Sunflower Conversations deliver a deeper understanding of the Sunflower's role in supporting people with hidden disabilities. The topics are often personal and explore hidden disabilities through the prism of the Sunflower with guests hosted by members of the HIdden Disabilities Sunflower team. Making the invisible, visible.

Tourette Syndrome and Brazilian Jui Jitsu with Khovan Hussein
Jun 12 2022
Tourette Syndrome and Brazilian Jui Jitsu with Khovan Hussein
Tourette Syndrome and Brazilian Jui Jitsu with Khovan Hussein“With my Tourette's, sometimes my verbal tics can be stuff like swearing, or I might say something that's offensive, but obviously I can't help it. So when I wear the badge outside, it makes me comfortable knowing that... It just shows everyone that I can't help it.”Khovan and his mum Shireen join us to celebrate Khovan’s achievement in being awarded with The Rotary Young Citizen Sporting Hero Award. Khovan is autistic, has Tourette Syndrome as well as ADHD.As a child he struggled with communication and social interaction, but since joining a Brazilian Jui Jitsu club it has been the key to his communication skills and participation, providing him with a sense of community, development and growth.Khovan explains how the martial art answers his sensory needs and how he is committed to raising money for charities, and supporting other young people and their parents through his Tik Tok account @KhovanH where he posts videos and answers questions. For supportIf you are experiencing issues discussed in this podcast contact your GP or healthcare practitioner.Tourettes ActionKhovan’s TikTok  @KhovanH Khovan’s Instagram @KhovanhnKhovan and his sisters Just Giving page for Tourette’s Action - Move for Tourette’s (ends 15th June)  Hosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.comVisit Hidden Disabilities Sunflower
Foetal Alcohol Spectrum Disorder, FASD with Tristan Casson-Rennie and Jan Griffin
Apr 17 2022
Foetal Alcohol Spectrum Disorder, FASD with Tristan Casson-Rennie and Jan Griffin
Foetal Alcohol Spectrum Disorder, FASD with Tristan Casson-Rennie and Jan GriffinTristan is the founder of FASD Ireland, a not-for-profit charity that aims to raise awareness and provide support to families in Ireland living with FASD.  And Jan is birth mum to Rossi who was born with FASD.They are both passionate about raising awareness of the dangers of drinking alcohol during pregnancy and removing the stigma associated with FASD in order that the families can seek the correct support. Jan didn’t realise that she was pregnant for 4 months, during which she consumed alcohol. It is important to point out that Jan doesn’t have an alcohol addiction and that once aware of the pregnancy she stopped, however there was never any guidance from her doctor to tell her do so.Tristan also has lived experience with his adopted son who has FASD and is campaigning in Ireland for the condition to be recognised as a disability to support the hundreds of babies born every year to parents who unwittingly don’t realise the harm that alcohol can have on a foetuses brain’s neurological pathways.This conversation is full of tips for parents, families and carers to use.When planning to have a baby, you and your partner should stop drinking to avoid any chance of the baby having FASD.For supportFASD IrelandNational FASD UK FASD Hub Scotland Dr Raja Mukherjee Hosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.comVisit Hidden Disabilities Sunflower