Rare Genetic Diseases with Kira Dineen From The DNA Today Podcast

Causepods

Jul 25 2022 • 28 mins

Did you know that 1/10 people in the world have a genetic disorder? Today we are talking with Kira Dineen, who started podcasting in high school as a project. Ten years later, it is still going and has evolved, connecting Geneticists and people affected by rare diseases.  Most people live their life like any other normal human being. Still, a few are born with rare diseases that will impact them for the rest of their lives or, in some cases, will be with them for the rest of their lives.   We have had a few causes on the show that highlighted specific diseases. Still, as Kiri explains, the field of genetics is evolving every day. Therefore, her podcast has become a tool for her and the audience to stay updated on the community. Key Topics: ·     What impact in the world is DNA Today trying to get across (1:29) ·     What role did the podcast play in your master's program (3:15) ·     What were the driving factors that kept the podcast going (6:19) ·     How are so many able to have a disorder but do not know (8:26) ·     Since high school over ten years, what have been some of the most significant changes in podcasting (10:02) ·     What have you found has been the most successful way to grow your podcast (13:02) ·     How do you connect with a community without being overly pitchy towards your podcast (16:07) ·     What is your best piece of advice for a cause podcast just getting started (19:44) ·     Why is the National Organization of Rare Disorders vital to you (21:20) ·     What lesson could someone take away from building relationships with schools to be a sponsor of a podcast (23:38) Website link: http://dnapodcast.com/ (http://dnapodcast.com/) Podcast Links: ·     https://podcasts.apple.com/us/podcast/dna-today-a-genetics-podcast/id1209263436 (Apple) ·     https://podcasts.google.com/feed/aHR0cDovL2ZlZWRzLnBvZHRyYWMuY29tL0hMNFRSOERPZkI4Yw== (Google) ·     https://open.spotify.com/show/2TbRJMsOOeUTphJTqIYc6E (Spotify) Charity: National Organization of Rare Disorders (https://rarediseases.org/ (website)) Donation: https://rarediseases.org/donate/ (Link) Social Links ·     https://twitter.com/DNApodcast (Twitter) ·     https://www.facebook.com/DNApodcast/ (Facebook) ·     https://www.instagram.com/dnaradio/ (Instagram) Thanks for Listening! Be sure to subscribe onhttps://podcasts.apple.com/us/podcast/id1454336984 ( Apple),https://podcasts.google.com/feed/aHR0cHM6Ly9mZWVkcy5jYXB0aXZhdGUuZm0vcG9kY2FzdC1tZS1hbnl0aGluZy8= ( Google),https://open.spotify.com/show/7q9j88X29nrHElKjpV6hvS ( Spotify), or wherever you get your podcasts. And feel free to drop us a line at mathew@thepodcastconsultant.com. Follow Mathew on Social Media to stay up to date on Podcast Me Anything -https://www.facebook.com/MathewPassy ( Facebook) |https://twitter.com/MathewPassy ( Twitter) |https://www.instagram.com/mathewpassy/ ( Instagram) |https://www.linkedin.com/in/mathewpassy/ ( LinkedIn)