Your Story Our Fight by Lupus LA

LupusLA

Lupus LA enters the fastest growing media market with the new Your Story Our Fight® podcast which will give a voice to lupus patients while continuing Lupus LA’s mission to raise lupus awareness worldwide. Hosted by the Chairman of Lupus LA and lupus patient himself, Adam Selkowitz, patients from all walks of life will share stories about their unique lupus journeys. With a focus on inspiration and hope, Lupus LA’s podcast will provide support and optimism to a patient community looking for assurance that they are not alone.

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Episodes

Season 3 | Episode #13 with Artist, Mother and Lupus Advocate, Donna Jordan
Apr 9 2024
Season 3 | Episode #13 with Artist, Mother and Lupus Advocate, Donna Jordan
Season THREE Episode THIRTEEN of the Your Story Our Fight® podcast welcomes Donna Jordan. Born in the vibrant city of Newark, NJ in 1956, Donna emerged as an artist nurtured by the rich tapestry of culture and creativity surrounding her. From an early age, her parents encouraged her artistic freedom, leading her to immerse herself in every art program Newark had to offer.Donna's journey began with humble yet impactful beginnings, as she adorned church walls with thematic murals and painted holiday scenes on local storefronts, igniting a passion for visual storytelling. High school beckoned her to the prestigious Arts High, the first visual and performing arts institution in the nation, where she honed her craft in painting, photography, and design. Venturing further, she pursued formal training at the Philadelphia College of Art, delving deep into the realm of abstract expressionism, a genre that resonated with her soul. Philadelphia became her canvas, where she showcased her work in exhibitions and contributed to urban revitalization through mural commissions. California's allure drew Donna westward, where she immersed herself in the vibrant artist community while honing her skills as a designer and production manager. In 1984, serendipity intervened as she met her husband Michael, ushering in a new chapter of family and creativity. Several years later she was diagnosed with Lupus, which changed her life and her family's life forever. Amidst the joys of parenthood and the challenges of living with Lupus, Donna's art became not only her refuge but also a catalyst for collaboration. Establishing the Jordan Design Network allowed her to transcend physical limitations and unite with fellow artists in collective expression. Today, as Donna continues her artistic journey in the embrace of her beloved family and the ever-inspiring landscapes of New Jersey, she invites you to join her on a podcast where we explore the resilience of the human spirit and the transformative power of art.
Season 3 | Episode #5 with EVP of Drama Series at NBCUniversal and Lupus Patient, Cara Dellaverson
Nov 14 2023
Season 3 | Episode #5 with EVP of Drama Series at NBCUniversal and Lupus Patient, Cara Dellaverson
Season THREE Episode FIVE of the Your Story Our Fight® podcast welcomes Cara Dellaverson. Cara Dellaverson joined NBC in 2015 as Senior Vice President of Drama Development and was promoted to Executive Vice President for the network in 2018. In 2020 she was elevated to EVP of Drama Series across all platforms including NBC, Peacock, USA and SYFY. In this role she currently oversees development and current programming across all platforms and manages both teams of executives alongside co-department head Alex Sepiol. Together they are responsible for over 100 development projects and 20 current series in various stages of production and have been part of the leadership team crafting the strategy for both Peacock and NBC. Since joining the company she has helped develop hit series This Is Us, as well as The Irrational, Found, Quantum Leap, La Brea, Good Girls, New Amsterdam, Manifest, and Zoey’s Extraordinary Playlist for NBC and Dan Brown’s The Lost Symbol, Mrs. Davis and upcoming series Long Bright River for Peacock. Before her time at NBC, Dellaverson worked in currentseries and development at Lionsgate from 2008-2015 ultimately rising to Senior Vice President. During her time at the studio she was creatively involved in several series including Mad Men, Nurse Jackie, Nashville, Manhattan, and Orange is the New Black and was featured in The Hollywood Reporter’s Next Generation 35 under 35 issue as one to watch in Television.
Season 2 | Episode #24 with Lupus Advocate and Lupus Patient, Emmitt Henderson III
Jun 13 2023
Season 2 | Episode #24 with Lupus Advocate and Lupus Patient, Emmitt Henderson III
Season TWO Episode TWENTY-FOUR of the Your Story Our Fight® podcast welcomes Emmitt Henderson III. Emmitt Henderson III was diagnosed with Systemic Lupus and Lupus Nephritis in 1995 but had symptoms going back to 1980. Through the years, he has endured major complications from heart, liver, kidney and lung failures, avascular necrosis that led to a shoulder and knee replacement. He had a clinical trial, bone marrow stem cell transplant; he was on oxygen due to his lung failure and had a kidney transplant due to kidney failure. He was also diagnosed with Rheumatoid Arthritis, Sjogrens Syndrome, MTCD as well as he suffered from having a stroke, shingles, gout, chronic fevers, diabetes and hypertension. In 2019, Emmitt was diagnosed with a brain disease, that medically retired him from his career. He decided to advocate for the same disease that debilitated him since 1995 and to talk about how his mental health got him through it all. He created his organization called Male Lupus Warriors Corp to spread Lupus and Mental Health awareness. He holds a safe space for men to meet and talk about their hardships in life, he encourages everyone to not be a victim to their illness. Emmitt did an advocacy campaign in Tanzania Africa in 2022 which included climbing Mt. Kilimanjaro. During his climb, he suffered high altitude pulmonary edema and ended up going into kidney failure for the second time in his life. He is now currently doing dialysis and on the transplant list for another kidney. During this time, he still maintains his advocacy by being active on social media and facilitating support groups.
Season 2 | Episode #20 with Lupus LA Board Member, Lupus Advocate and Lupus Patient, Stacey Uberstine
Apr 11 2023
Season 2 | Episode #20 with Lupus LA Board Member, Lupus Advocate and Lupus Patient, Stacey Uberstine
Season TWO Episode TWENTY of the Your Story Our Fight® podcast welcomes Stacey Uberstine. Stacey graduated from California State University Northridge in 1990 with a bachelor of science degree in Health Administration with a computer science minor.  One of her most notable jobs was helping to establish the Industrial Care Center which is operational at San Pedro Hospital.  In 1993 Stacey transitioned into the insurance industry where she owned and operated her own State farm Agency for over a decade. Stacey was diagnosed with lupus in 1994.  She stays abreast of the disease and all related medical breakthroughs and advances in research. Stacey has been an active donor and Board member of Lupus LA. She has a passion for patient advocacy within the lupus and breast cancer communities. Stacey is an avid sports fan, and actually met her husband through her work at State Farm.  Sports seems to be a family affair, as her husband is a prominent sports attorney who has represented some of the most iconic figures in professional sports.  Her passion for sports was passed on to her twin boys, Grant and Tyler.  Grant was an avid athlete in high school, participating in lacrosse, baseball and swimming.  Tyler’s passion for baseball took him to Northwestern University, where he earned a spot in the team’s starting rotation.  He was later drafted by the Boston Red Sox. Stacey resides in Manhattan Beach, where she can be seen taking strolls along the beach.  She is an avid reader and spends a considerable amount of time supporting philanthropic causes close to her heart related to lupus and breast cancer.
Season 2 | Episode #19 with Actress, National Spokesperson for the Autoimmune Association, Author and Lupus LA Ambassador, Kellie Martin
Feb 28 2023
Season 2 | Episode #19 with Actress, National Spokesperson for the Autoimmune Association, Author and Lupus LA Ambassador, Kellie Martin
Season TWO Episode NINETEEN of the Your Story Our Fight® podcast welcomes Kellie Martin. Kellie began acting at the age of seven. She is most fondly remembered for playing Becca Thacher on the groundbreaking ABC family drama Life Goes On, for which she received an Emmy nomination. And, her portrayal of Lucy Knight, a precocious med student who met an untimely demise after two seasons on NBC’s ER, haunts viewers to this day. Kellie has been a been a regular on numerous series including, The Guest Book, Army Wives, Mystery Woman, and on Hallmark’s Hailey Dean, where she served as Executive Producer. Her television and feature film highlights include Troop Beverly Hills, A Goofy Movie, Malibu’s Most Wanted, Grey’s Anatomy, Private Practice, and Mad Men. She also served as leading lady for Hallmark’s beloved holiday movies, The Christmas Ornament and Christmas in Montana as well as rom-com favorites, Smooch, I Married Who?, and Hello It’s Me.In 1999, Kellie lost her nineteen year old sister, Heather, to lupus. So, Kellie took on a new role, one that she continues passionately to this day: national spokesperson for the Autoimmune Association. She works to raise awareness, lobbies Congress, speaks, and meets personally with patients and their families. Kellie is a Yale graduate with a degree in Art History. She co-authored a novel, Madam, which was published by Penguin in 2014. She’s currently writing on a new novel. Most recently, Kellie has been working with her Life Goes On co-star, Chad Lowe and All American show runner, Nkechi Okoro Carroll to reboot Life Goes On with Warner Brothers. She just directed Mistletoe in Montana for Lifetime and has been recording a new podcast with Chad Lowe entitled The Big Break. She lives on a suburban farm in California with her husband, Keith, daughters, Maggie (15), Olivia (5) and a bunch of goats, pigs, and horses.