On this episode we get an update on our lovely Debrus and how she went on her surgery day. Also sending well wishes to Deb xo
If you need someone to advocate for you and you are disabled there is the disability advocacy finder:
Disability advocacy is acting, speaking or writing to promote, protect and defend the human rights of people with disability. The Australian Government, and some state and territory governments, fund independent advocacy to help people with disability who face complex challenges or are unable to advocate for themselves, and do not have family, friends or peers who can support them as informal advocates, to access advocacy support.
To listen to Rods My FND Reality : his Caregiving story click below
https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodney
Carer Gateway is an excellent resource provided by the federal government to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :
https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gateway
For more information on Carer Gateway
https://www.carergateway.gov.au/
their phone number is 1800 422 737
also join their Facebook page to keep updated and their support groups.
For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link below
https://www.facebook.com/groups/588224248292396
For more information about NDIS checkout Carers Australia @ www.carers australia.com.au
https://www.carersaustralia.com.au/ndis-carers/what-is-the-ndis/
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts check them out!
What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :)
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0
An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!
A website for young people and families living with NEAD and neurological symptom
Amazing website with information and links to fnd
Information on Non Epileptic Seizures or NEAD
https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf
FND ORGANISATIONS:
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is
FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
A really helpful article and explanation of what FND is: '
Other podcasts/ blogs / vlogs to follow:
itsmeitsmeitsfnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
Bed Life and Beyond by Rach also a lovely FNDer
https://pandoralocksmith.wordpress.com/about/
John McLeans Fnd Journey
https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0
Lmtd Life with FND
https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos
FNDer amplified: Meg Jacks
follow on Instagram @ Meg.jacks_
TicTok: @megjacks
Instagram follow Emma’s journey :@emmas_fnd_fun
The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND
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