MS Diagnosis Journey

Laura Kolaczkowski

In the chronic disease arena, most everyone is more than willing to share their story for their own benefit and that of others. At the core of each story is the diagnosis. Everyone has a story to tell, and every storyteller needs an audience. We invite you to join us for the Multiple Sclerosis Diagnosis Journey podcast and listen to these unique stories. There's much to learn from each other by listening to these stories of diagnosis. By sharing their experiences with others, the MS Diagnosis journey podcast will serve as a vehicle for healing and empowerment for the storyteller. Support of this project is made possible through the generosity of Janssen Pharmaceutical Companies of Johnson & Johnson. read less
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Episodes

Laura Kolaczkowski: "Don't Make It A Solo Act"
Feb 23 2023
Laura Kolaczkowski: "Don't Make It A Solo Act"
In a change to our regular broadcasting, this time around it's regular host Laura Kolaczkowski's turn to share her journey to a Multiple Sclerosis diagnosis.Despite having a family member with MS, Laura never thought that it was in her future, pushing past a number of symptoms that seem obvious in retrospect.In this interview, Laura relates her initial symptoms and talks about how it was her mother who persuaded her to follow them up. She also talks about the dramatic event which started her road to a diagnosis and how she was lucky enough to link up with a world-renowned neurologist (and former guest on the MS Diagnosis Journey podcast) at the beginning of their career.Laura is active in the national and local MS community, having facilitated patient programs including MS research and an MS Aquatics program. She is also a presence on the internet at MS patient sites. She is the Lead Patient Representative on the Governing Board for iConquerMS, The Accelerated Cure Project’s Patient Powered Research Network; she has served as a Patient Reviewer for the Patient Centered Outcome Research Institute (PCORI); the Department of Defence MS Congressionally Directed Research Program, and is certified as a PCORI Science-trained Ambassador.Read Laura's articles on MultipleSclerosis.netInterview by Steve WoodwardEdited by Steve Woodward at The Podcasting EditorPodcast artwork by Jackie Zimmerman at Queen of GSDBackground Music is “Old Photos” by Olexy Support of this project is made possible through the generosity of Janssen Pharmaceutical Companies of Johnson & Johnson.
Kathy Reagan Young: "Anything You Notice About Your Body, Don't Ignore It"
Nov 10 2022
Kathy Reagan Young: "Anything You Notice About Your Body, Don't Ignore It"
When she noticed the appearance of strange symptoms, Kathy Reagan Young put them down to being an exhausted stay-at-home mom. It was only down to the input of friends and business associates that she was able to be fast-tracked to a diagnosis of Multiple Sclerosis.Kathy recognizes the privilege and luck that played a part in her high-speed diagnosis. But since then she has dedicated herself to providing education, inspiration, and motivation to everyone dealing with Multiple Sclerosis. She does this by blogging about her own experiences, interviewing experts and other patients on her podcast, and trying to find the funny in all of it. And that even includes her dealings with US Healthcare. The name of her website? FUMS.In this interview, Kathy urges anyone who is going through their own MS Diagnosis Journey - particularly if they're used to putting everyone else's health before their own - to always follow up on any unusual symptoms. As she says, "If you notice it, there's a reason you notice it." Visit Kathy's blog and podcast, FUMSVisit Kathy's podcast and membership community,  Patients Getting Paid, which focuses on flexible, remote work possibilities that accommodate the health of people with chronic illnessesInterview by Laura KolaczkowskiEdited by Steve Woodward at The Podcasting EditorPodcast artwork by Jackie Zimmerman at Queen of GSDBackground Music is “Old Photos” by Olexy Support of this project is made possible through the generosity of Janssen Pharmaceutical Companies of Johnson & Johnson.