PODCAST

Few & Far Between

Chris O'Brien

Welcome to Few & Far Between! Chris O'Brien, CEO of Biorasi, is your host for conversations on the cutting edge - from clinical research and policymakers to rare disease advocates and industry leaders.
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Episode 20: Professor Bertil E. Lindmark MD, PhD, Author and CMO at Galecto, Inc.
Episode 20: Professor Bertil E. Lindmark MD, PhD, Author and CMO at Galecto, Inc.
May 18 2022
30 mins
Episode 20: Professor Bertil E. Lindmark MD, PhD, Author and CMO at Galecto, Inc.
Episode 20: Professor Bertil E. Lindmark MD, PhD, Author and CMO at Galecto, Inc.
What do the next 100 years have in store for healthcare and clinical research? Biorasi's Few & Far Between podcast welcomes Professor Bertil E. Lindmark MD, PhD, author and CMO at Galecto, Inc., for an in-depth discussion on the biological revolution and trends in the life sciences.
May 18 2022
30 mins
Episode 19: Leslie Michelson, Founder and CEO, Private Health Management
Episode 19: Leslie Michelson, Founder and CEO, Private Health Management
How do you obtain the best possible patient care available? On this week's Few & Far Between podcast, host Chris O'Brien welcomes patient advocacy innovator Leslie Michelson for a conversation on the importance of patient support, guidance, and healthcare accessibility.
Apr 20 2022
36 mins
Episode 18: Karen Petrou and David Brint - BioBonds
Episode 18: Karen Petrou and David Brint - BioBonds
On this week’s Few & Far Between podcast episode, Biorasi’s CEO, Chris O'Brien, welcomes Karen Petrou and David Brint for an in-depth discussion on BioBonds and how they can jumpstart funding in clinical research for rare disease and other disorders.
Mar 23 2022
55 mins
Episode 17: Amy Fenton Parker, President and CEO at Batten Disease Support and Research Organization (BDSRA)
Episode 17: Amy Fenton Parker, President and CEO at Batten Disease Support and Research Organization (BDSRA)
Why are advocacy and accessibility so important to rare diseases such as Batten Disease? On this week’s Few & Far Between podcast episode, Biorasi’s Becky Knockemus talks with Amy Fenton Parker, President and CEO at Batten Disease Support and Research Organization (BDSRA).
Jan 12 2022
39 mins
Episode 16: Dr. Alex Adjei, Scientific Advisory Board Member at Biorasi
Episode 16: Dr. Alex Adjei, Scientific Advisory Board Member at Biorasi
Welcome to a special epsiode of Few & Far Between. Our guest this week is oncologist Dr. Alex Adjei, Scientific Advisory Board Member at Biorasi, and Professor of Oncology and Pharmacology at the Mayo Clinic and Mayo College of Medicine in Rochester, Minnesota. Join our host, Dr. Dipali Patel, for an in-depth discussion on lung cancer - an urgent, global disease that requires empathy and understanding.
Dec 15 2021
58 mins
Episode 15: Dr. Terry Jo Bichell, Founder and Director of COMBINEDBrain
Episode 15: Dr. Terry Jo Bichell, Founder and Director of COMBINEDBrain
Raising awareness for rare diseases, such as Angelman Syndrome, should not be something parents, patients, and advocates have to do alone. Today's episode of Few & Far Between features Dr. Terry Jo Bichell, Founder and Director of COMBINEDBrain. Biroasi CEO, Chirs O'Brien, is your host for this discussion on biomarkers, treatment, and the rise in community collaboration across rare diseases.
Dec 1 2021
40 mins
Episode 14: Bo Bigelow, Chairman at the Foundation for USP7-Related Diseases, and Trish Flanagan, President at the Yellow Brick Road Project
Episode 14: Bo Bigelow, Chairman at the Foundation for USP7-Related Diseases, and Trish Flanagan, President at the Yellow Brick Road Project
How will a rare disease diagnosis affect your family? Today's Few & Far Between episode features Bo Bigelow, Chairman at the Foundation for USP7-Related Diseases and Co-Founder of DISORDER: The Rare Disease Film Festival, and Trish Flanagan, President at the Yellow Brick Road Project.
Nov 10 2021
46 mins
Episode 13: Kelly Franchetti RN, SVP, Global Head Patient Insights and Strategy at YPrime
Episode 13: Kelly Franchetti RN, SVP, Global Head Patient Insights and Strategy at YPrime
How has patient advocacy grown to become the driver of rare disease drug development? In today's episode of Biorasi's Few & Far Between podcast, host Marc Gas, PhD, welcomes Kelly Franchetti, RN, SVP at YPrime, to discuss where advocacy is headed and where it needs to go.
Oct 27 2021
50 mins
Episode 12: Effie Parks and Spela Mirosevic
Episode 12: Effie Parks and Spela Mirosevic
Social media platforms and podcasts are spotlighting the untold stories of rare disease patients and their families. Find out more in today's Few & Far Between podcast episode. Biorasi's Becky Knockemus welcomes guests Effie Parks, host of the Once Upon a Gene podcast, and Špela Miroševič, co-founder and president of the CTNNB1 Foundation.
Oct 13 2021
46 mins
Episode 11: Rebecca Stewart and Nicola Miller from Rare Revolution Magazine
Episode 11: Rebecca Stewart and Nicola Miller from Rare Revolution Magazine
How important is transparency to the rare disease community? Today's full episode of Few & Far Between features Biorasi's Lindsey Rios, with guests Rebecca Stewart and Nicola Miller from Rare Revolution Magazine.
Sep 28 2021
34 mins
Episode 10: Sharon Terry, CEO Genetic Alliance
Episode 10: Sharon Terry, CEO Genetic Alliance
Why is the sharing of data so crucial to #raredisease research? Tune in for today's full episode of Few & Far Between. Episode 10 features Sharon Terry, CEO at Genetic Alliance and #pseudoxanthomaelasticum (PXE) advocate.
Sep 15 2021
44 mins
Episode 9: Zogenix, Inc.'s Dawn Blessing and J. Michael Graglia from SynGAP
Episode 9: Zogenix, Inc.'s Dawn Blessing and J. Michael Graglia from SynGAP
Tune in for today's full episode of Few & Far Between. Episode 9 features Biorasi's Becky Knockemus, Zogenix, Inc.'s Dawn Blessing, and J. Michael Graglia from SynGAP Research Fund, discussing the importance of diagnosing #raredisease early and the critical step of sharing study data.
Sep 1 2021
47 mins
Episode 8: David Rose, Rare Disease Speaker and Advocate
Episode 8: David Rose, Rare Disease Speaker and Advocate
On today's podcast, speaker and rare disease advocate David Rose talks with Biorasi's Dr. Raul Silveira about occipital horn syndrome and supporting rare disease patients in the workforce.
Aug 18 2021
41 mins
Episode 7: US Congressman Gus Bilirakis
Episode 7: US Congressman Gus Bilirakis
On today's podcast, US Congressman Gus Bilirakis joins host Wayne Bowden to discuss the importance of rare disease awareness and treatment.
Aug 4 2021
38 mins
Episode 6: Dr. Mehool Patel and Dr. Dilhan Weeraratne, IBM Watson Health
Episode 6: Dr. Mehool Patel and Dr. Dilhan Weeraratne, IBM Watson Health
On today's podcast, host Wayne Bowden joins Biorasi's Omar Ibrahim and IBM Watson Health HOPE team members Dr. Mehool Patel and Dr. Dilhan Weeraratne to discuss glioblastoma and the importance of real-world evidence in clinical research.
Jul 21 2021
39 mins
Episode 5: Will Maier, VP of Rare Disease, Drug Development Sciences at ICON plc
Episode 5: Will Maier, VP of Rare Disease, Drug Development Sciences at ICON plc
On today’s podcast, host Wayne Bowden, Vice President of Partnerships and Strategy at Biorasi, talks with Will Maier, VP of Rare Disease, Drug Development Sciences at ICON plc, about clinical trial engagement in the rare disease patient community.
Jul 7 2021
51 mins
Episode 4: Marianne Clancy, Executive Director at Cure HHT
Episode 4: Marianne Clancy, Executive Director at Cure HHT
On today’s podcast, host Wayne Bowden, Vice President of Partnerships and Strategy at Biorasi, talks with Marianne Clancy, Executive Director at Cure HHT, about the foundation and their goal of reducing the number of undiagnosed cases of HHT.
Jun 23 2021
38 mins
Episode 3: Danielle Drayton, PhD, CEO of REACH Market Research
Episode 3: Danielle Drayton, PhD, CEO of REACH Market Research
On today’s podcast, host Wayne Bowden, Vice President of Partnerships and Strategy at Biorasi, will be discussing insights into market research solutions for rare diseases with Danielle Drayton, PhD, CEO of REACH Market Research.
Jun 9 2021
39 mins
Episode 2: Julie Walters, Founder and Executive Director of Xperiome/Raremark
Episode 2: Julie Walters, Founder and Executive Director of Xperiome/Raremark
On today’s podcast, host Wayne Bowden, Vice President of Partnerships and Strategy at Biorasi, will be talking with Julie Walters, Founder and Executive Director of Xperiome and the driving force behind Raremark – an innovative knowledge bank for rare disease patients.
May 26 2021
39 mins
Episode 1: Paula Evans, CEO and Co-Founder of GeneTx Biotherapeutics
Episode 1: Paula Evans, CEO and Co-Founder of GeneTx Biotherapeutics
On today’s podcast, Jimmy El Hokayem, Head of the Neurology and Regenerative Medicine Centers of Excellence and Associate Director of Program Development at Biorasi, will be talking with Paula Evans, CEO and Co-Founder of GeneTx Biotherapeutics.
May 18 2021
41 mins