53. Lisa Salberg, Founder and CEO of the Hypertrophic Cardiomyopathy Association (HCMA), on Her Most Important Member Benefit and Self-Care for Founders

Associations Thrive

Aug 17 2023 • 33 mins

What inspires someone to start a nonprofit dedicated to a specific medical condition? How do you help patients advocate for their care and navigate the insurance system? How do you care for yourself when caring for others?

In this episode of Associations Thrive, host Joanna Pineda interviews Lisa Salberg, Founder and CEO of the Hypertrophic Cardiomyopathy Association (HCMA).

Lisa discusses:

  • What Hypertrophic Cardiomyopathy is.
  • Lisa’s own journey of having Hypertrophic Cardiomyopathy and how she no longer has the condition because of a heart transplant.
  • Why Lisa created the Hypertrophic Cardiomyopathy Association.
  • HCMA’s most important benefit: each member gets a free intake call, a book, a journal, and guidance on how to navigate the healthcare system and get the best care.
  • HCM Centers of Excellence.
  • HCMA’s goal of reaching the 85% percent of HCM patients who are not diagnosed.
  • Lisa’s advice for founders of organizations.

References: