Talk About Cancer

Serena Hu

Talk About Cancer is a podcast of stories from cancer patients, survivors, caregivers, and family members. The host, Serena Hu, talks to her guests about their emotional journeys with cancer and what happens to the relationships in their lives after a cancer diagnosis. They sometimes explore how culture and faith shape each person's experience of cancer and grief. You will find diverse perspectives, honesty, and wisdom in these stories to help you deal with cancer and its aftermath.  http://talkaboutcancerpodcast.com

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Society & CultureSociety & Culture
Health & FitnessHealth & Fitness
Personal JournalsPersonal Journals
Mental HealthMental Health
RelationshipsRelationships

Episodes

On the ride
Dec 25 2021
On the ride
Charles shared how having lost so many family members to cancer shapes how he approaches caregiving for his wife today, and how leaning into art and dark humor has helped him process and cope with it all. Check out some of Charles' recent work: Short film: A History of WorryShort story collection: Slippery When MetastasizedColoring book: Pug Monster GalleryHuffPost article about air guitar workoutYou can connect with him on his website, Twitter, and Instagram.Please follow the podcast if these stories are resonating with you. I would also be grateful if you can leave an honest rating and review so I know if I am serving the interests and needs of you listeners out there.Have topic suggestions or feedback about the show?  Contact me on Instagram or email me at talkaboutcancerpodcast@gmail.com. Thank you for listening!++++++++++++My reflections on the conversation:I was struck by the way Charles framed his caregiving experience as being "on the ride.” I never thought about my own caregiving experience this way because it sounds a bit detached or somehow not invested in what’s going on. But I knew that was not what Charles meant and when I thought more about it, I realized how helpful this framing could be for caregivers - because it takes us out of the “driver seat,” which is what many of us would try to “inhabit” in a difficult situation because we feel it’s what we are supposed to do to take care of our loved ones. But when we do that, our own needs can come to the forefront and the needs of the person dealing with cancer could get lost. This framing also acknowledges that we will not have complete control over the situation and it’s not our fault if our loved ones have to suffer. Acceptance doesn’t mean that we don’t try our best to provide support, but it takes the pressure off of caregivers to keep searching for the perfect solution when often, that does not exist.
Rebuilding life after caregiving
Nov 18 2021
Rebuilding life after caregiving
Kandis shared how she picked herself back up one step at a time after a tough caregiving experience and how she eventually found positive ways to channel her grief. Some resources Kandis mentioned: Gilda's Club Chicago Ovarian Cancer Research AllianceTherapy for Black GirlsAlso check out Kandis' article about compound caregiving on Caregiving.com. You can follow her on Instagram @kandi_koated. Please follow the podcast if these stories are resonating with you. I would also be grateful if you can leave an honest rating and review so I know if I am serving the interests and needs of you listeners out there.Have topic suggestions or feedback about the show?  Contact me on Instagram or email me at talkaboutcancerpodcast@gmail.com. Thank you for listening!++++++++++++My reflections on the conversation:Thanks to Kandis for sharing what it was like to return to work after having been a full-time caregiver for a number of years. This is another layer of complexity that caregivers have to deal with on top of the emotional turmoils that could come with grieving the loss of a loved one. And Kandis was absolutely right about feeling bad about yourself when you keep getting rejected by employers. I know that feeling and can only imagine how hard it would be to have to go to interviews when you are still trying to make sense of the traumas you experienced. Kandis’ experience reminds us how important and helpful working with a therapist can be when you are dealing with grief.
The family gets cancer too
Nov 11 2021
The family gets cancer too
Melody shared what it was like to deal with cancer during her childhood, the ways that experience has influenced different stages of her life, and the things she continues to uncover as an adult. You can follow Melody on Instagram @lunapeakfoundation, on Facebook @lunapeakfouncation, or on Twitter @lunapeakfamily. You can also find more information about the foundation at https://www.lunapeakfoundation.org/. Please follow the podcast if these stories are resonating with you. I would also be grateful if you can leave an honest rating and review so I know if I am serving the interests and needs of you listeners out there.Have topic suggestions or feedback about the show?  Contact me on Instagram or email me at talkaboutcancerpodcast@gmail.com. Thank you for listening!++++++++++++My reflections on the conversation:I’ve been reflecting on Melody’s experience trying to talk to her family members about their experience being her caregivers. As I’ve mentioned in the past, I’m a big believer in processing the challenging experiences in life. Some like me, prefer to talk about the experiences, many find creative outlets like writing, visual arts, or music. But when I heard Melody’s family members’ reactions, it made me wonder if processing is not good for everyone? Or maybe, for some the processing is so painful that they need an expert - like a therapist - to guide them through it. So nudging someone to process when they are not ready or have the adequate “tools” to do so is probably not going to work so well. This is another example of how my guests’ experiences continue to help me understand perspectives that are different from mine.
When my vagina broke
Oct 28 2021
When my vagina broke
Anna explained how cancer treatment “broke” her vagina and the challenges with dating when she took sexual intercourse off the table. Her experiences inspired her to create the Entwine dating app to help others like her find companionship with confidence. You can follow the app on Instagram, Facebook, and Twitter!Please follow the podcast if these stories are resonating with you. I would also be grateful if you can leave an honest rating and review so I know if I am serving the interests and needs of you listeners out there.Have topic suggestions or feedback about the show?  Contact me on Instagram or email me at talkaboutcancerpodcast@gmail.com. Thank you for listening!++++++++++++My reflections on the conversation:I know this episode probably feels different from the rest because Anna and I ended up going on a deep dive about her experience with vaginismus, but I thought it was important that we give space for this topic because even though Anna’s experience is specific to having vaginismus, her underlying message is relevant to anyone dealing with sexual limitations after cancer treatment. Anna reminded us that sex and intimacy can come in many forms, and when our loved ones’ sexual needs change because of serious health issues or emotional stress, expanding our definitions of sex and intimacy can give us more options for supporting each other’s needs. Thanks again to Anna for sharing her own experience with such openness and a sense of humor. Go check out Entwine so you can explore dating with more confidence again!
Talk about the elephant
Oct 21 2021
Talk about the elephant
Lauren shared what it was like to follow her daughter Melissa's lead in having open conversations about end-of-life wishes, which gave Lauren a path forward during grief and led to the founding of 13 Thirty Cancer Connect to support thousands of AYA cancer patients in her community.Find out more about 13 Thirty Cancer Connect's programs that are now available virtually and locally in Rochester NY and Syracuse NY.  Please follow the podcast if these stories are resonating with you. I would also be grateful if you can leave an honest rating and review so I know if I am serving the interests and needs of you listeners out there.Have topic suggestions or feedback about the show?  Contact me on Instagram or email me at talkaboutcancerpodcast@gmail.com. Thank you for listening!++++++++++++My reflections on the conversation:I thought a lot about what Melissa’s brother said during his graduation speech to his 400 classmates 20 years ago - that Melissa’s life was not taken away, but that it was just shorter than most. I’m astounded by how much is packed in that one simple sentence in the mind of a 16-year-old. There was a sense of defiance, meaning - don’t pity my sister. But there was also this profound wisdom about - it’s not how long you live that matters, but what you do with the time you were given. I know that losing my dad helped me better appreciate the finality of my own life and has given me focus and gratitude that I probably would not otherwise have if I didn’t go through that painful experience with him. I’m also keenly aware, however, that insights like this are often luxury in a sense. It’s a perspective that’s easier to hold when you can put the adversity behind you. For those in the thick of things, it may not be so easy. But that’s also what’s really incredible about Melissa, is that she had that clarity while facing her imminent death.
Finding post-traumatic growth
Oct 14 2021
Finding post-traumatic growth
Fabian took us back to the time when his existential crisis collided with his cancer diagnosis and how he was able to pull through 900 days of chemo with a vision to support other cancer people struggling with mental health.You can download the War On Cancer app on your phone and check out the amazing Clinical Trial Finder feature. You can also connect with Fabian on Instagram @fabianbolin.  Please follow the podcast if you are enjoying the show. I would also be grateful if you can leave an honest rating and review so I know if I am serving the interests and needs of you listeners out there.Have topic suggestions or feedback about the show?  Contact me on Instagram or email me at talkaboutcancerpodcast@gmail.com. Thank you for listening!++++++++++++My reflections on the conversation:What’s really important about Fabian’s story is that oftentimes when you get a cancer diagnosis, it doesn’t mean that whatever crisis you were already facing in your personal life just gets put on hold. As we heard, crises can have a way of amplifying each other and making the experience more complex and difficult to untangle. I was really impressed with how Fabian was able to pull apart what was helping him vs not in the middle of such an intense emotional rollercoaster. It shows how much work he has put into processing his own experiences, and ultimately, channeling the learnings towards building the War on Cancer platform to support other cancer people struggling with mental health.
Saved by activism
Sep 30 2021
Saved by activism
Laura explained how being diagnosed with cancer gave new meaning to her work as a health care advocate and that staying engaged with advocacy actually helped her push through her cancer treatment.Laura mentioned Imerman Angels, which has also been referenced by a few other guests on this podcast about the wonderful one-on-one peer support they offer. If you are interested in getting your story out for advocacy efforts, check out the resources offered by Laura’s nonprofit Health Care Voices.  You can also check out Laura's video on Now This asking Trump to not take away her health insurance by repealing Obamacare. Connect with Laura on Twitter, Facebook, and Instagram. Please follow the podcast if you are enjoying the show. I would also be grateful if you can leave an honest rating and review so I know if I am serving the interests and needs of you listeners out there.Have topic suggestions or feedback about the show?  Contact me on Instagram or email me at talkaboutcancerpodcast@gmail.com. Thank you for listening!++++++++++++My reflections on the conversation:When I first heard about Laura’s story, I didn’t understand how she was able to continue her advocacy work in the middle of her cancer treatment. As we all know, cancer treatments can be incredibly draining physically and emotionally, so going to a public meeting to challenge my senator’s voting choices would be nowhere on my to-do list. But that’s exactly what Laura did.But it all made sense when she explained - which was that as challenging as our political system is and as controversial as Obamacare is, it was still something that she had a better chance of affecting than her cancer. The juxtaposition of this says everything you need to know about the cancer experience.
Be present with the pain
Sep 23 2021
Be present with the pain
Michelle and Phil shared some of the most challenging moments, thoughts, and feelings they’ve had in their caregiving and grief process over the last three decades, and how they were able to eventually move forward from the devastating loss of their son Gabe.You can read more about their story in an article Phil had written for the San Diego Reader. Also, check out Okizu and the amazing services they are still providing to families today.  Please follow the podcast if you are enjoying the show. Would also be awesome if you can leave an honest rating and review so I know if I am serving the interests and needs of you listeners out there.Have topic suggestions or feedback about the show?  Contact me on Instagram or email me at talkaboutcancerpodcast@gmail.com. Thank you for listening!++++++++++++My reflections on the conversation:I asked Phil our recording what he meant by the following (in reference to his last moments with Gabe):  "I feel like having gotten through that moment and then having gotten through his actual death... in some way was part of what enabled me to get through the last 23 years."He explained that seeing Gabe accepting his own impending death helped Phil start to accept what was happening, and while Phil at that point had spent nearly eight years trying to save his son, the most loving thing he could offer at that moment was to help Gabe leave, and "... help his spirit be freed from this life." Listening to Michelle and Phil’s reflections on their caregiving and grief experience dusted off some of my own memories of the most intense moments I had with my dad’s cancer experience, like how my mom and I used to argue quite often because we were both stressed and perpetually sleep-deprived or having intimate conversations with each other when my dad was dying.What I did not experience though, was the decade-long heartache Michelle described. As someone who doesn’t have children, it’s impossible for me to fully appreciate how devastating the experience of losing a child must be for parents. But that’s also what’s really reassuring about Phil and Michelle’s story. While they described their experiences in different words, the underlying message was the same - that grief requires courage, honesty, and persistence, but if you genuinely put in the work, the wound will eventually become a scar. Phil also added another piece of advice after we finished recording - which is that it’s okay to ask for help, and if help is offered, it’s okay to accept it. I couldn't agree more, but I also know that we live in a culture where asking and accepting help is very hard for some to do. Just remember that dealing with cancer is often a marathon and not a sprint, so if there’s ever a reasonable time to get help, this would be it!
Check off your bucket list
Sep 16 2021
Check off your bucket list
Gaz shared how he’s dealing with a terminal diagnosis as a young adult and why for a practical person like him, living from scan to scan takes on a different meaning. You can connect with Gaz on Instagram @Gaz_Emmerson where you will see that he’s still biking to his chemo appointments and enjoy concerts with his friends. You will also find the link to his fundraiser for Sarcoma UK there, which now stands at a whopping $111K pounds!Please follow the podcast if you are enjoying the show. Would also be awesome if you can leave an honest rating and review so I know if I am serving the interests and needs of you listeners out there.Have topic suggestions or feedback about the show?  Contact me on Instagram or email me at talkaboutcancerpodcast@gmail.com. Thank you for listening!++++++++++++My reflections on the conversation:I really appreciate having the opportunity to talk to Gaz about his cancer experience, because it’s a bit like an anti-thesis to this podcast, where I promote talking about and processing the challenging emotions we have as a way for us to move forward. Gaz showed me that that’s not necessarily the right answer for everyone and that for him, taking action - like being present and making memories with loved ones and finding ways to give back to others - has been a better way for him moved forward through each setback. I thank him for that gentle reminder. Also, it was upsetting to hear that the first-line treatment for Ewing Sarcoma has not progressed in 40 years and thus leaving people living with this cancer with very few treatment options. It brought back memories of the awful countdown I used to do in my head - each time a type of therapy failed for my dad, I would panic silently in my own head about having only x number of options left. At the time, I never thought about what a luxury it was that we even had that many options to try. But again, cancer and luxury aren’t two concepts that often go together.
We were so young
Sep 2 2021
We were so young
Rachel shared some of the most intimate moments from her and her late husband’s cancer experience, including how she knew when it was time to let go. You can find Rachel’s book Wife, Widow, Now What? on Amazon and follow her on Facebook and Instagram. Also, check out CaringBridge as a resource for anyone who wants to blog about your health experience but doesn't want to deal with the headaches of set up a blog site. Please follow the podcast if you are enjoying the show. Would also be awesome if you can leave an honest rating and review so I know if I am serving the interests and needs of you listeners out there.Have topic suggestions or feedback about the show?  Contact me on Instagram or email me at talkaboutcancerpodcast@gmail.com. Thank you for listening!++++++++++++My reflections on the conversation:We covered so much ground in this conversation with Rachel, from the initial diagnosis all the way to forging a new life years after her late husband’s passing. I know the topic of end-of-life can be so overwhelming for many and I totally understand why, but for those who have to face it, a resource like Rachel’s book can be incredibly helpful. Over the past four years, I’ve thought a lot about my dad’s end-of-life process and have come to the same conclusion as Rachel, that I was able to find peace when my dad died because I knew my mom and I did everything we could and respected his wishes all along the way. In my mind, that counts way more than how we say goodbye in the end. I was rooting for the Rachel from 8 years ago when she was dancing to Joy Division and telling Grayson that he had beat cancer. Unbeknownst to her at the time, she would also eventually beat cancer, although not without some twists and turns.
Fast forward your life
Aug 26 2021
Fast forward your life
Babz walked us through how he reacted when he first got his diagnosis and how he quickly realized that dealing with cancer was mostly a mental game. You can check out Babz's Community Interest Company Freshrb, which uses video production to highlight marginalized health issues. Please follow the podcast if you are enjoying the show. Would also be awesome if you can leave an honest rating and review so I know if I am serving the interests and needs of you listeners out there.Have topic suggestions or feedback about the show?  Contact me on Instagram or email me at talkaboutcancerpodcast@gmail.com. Thank you for listening!++++++++++++My reflections on the conversation:Babz mentioned the idea of “fast-forwarding your life” a few times during our discussion, and I thought it’s a pretty succinct way to describe a critical part of people’s experience with cancer because in an instant, a cancer diagnosis forces you to answer all the major life questions you haven’t yet answered with nearly no time to thoughtfully understand the issue and think through all the options and potential outcomes. Too many have had to deal with lasting consequences because they were either not fully informed, or not informed at all. I also thought it was very interesting for Babz to share that it wouldn’t have made a big difference if his medical team was more direct in their communication while Babz was waiting for his diagnosis. I know it would have driven me crazy to have to wait six months to get a confirmation and all the while experiencing strange symptoms. But that’s also what I love about making this podcast, is that it challenges my assumption about other’s experiences and perspectives!I’m embarrassed to say that I don’t know anything about Nigerian culture even though I lived in NYC for 7 years and it has one of the largest Nigerian populations in the US. But it was so interesting to hear about the similarities between the Nigerian and the Chinese cultures, such as not talking about illnesses and being suspicious about non-traditional careers!
Secret society of caregivers
Aug 19 2021
Secret society of caregivers
Sue gave us a glimpse into the struggles of caring for a loved one who is fully dependent on her and how in an extreme situation like this, self-care may just mean grabbing a few Oreos. Please follow the podcast if you are enjoying the show. Would also be awesome if you can leave an honest rating and review so I know if I am serving the interests and needs of you listeners out there.Have topic suggestions or feedback about the show?  Contact me on Instagram or email me at talkaboutcancerpodcast@gmail.com. Thank you for listening!++++++++++++My reflections on the conversation:A big “thank you” to Sue for giving me a precious hour from her day to share her caregiving experience with us. Her situation with her husband is pretty extreme but there were actually many elements I could connect with, such as having a very short horizon and only being able to focus on getting through each task at hand or having a sense of being in a “secret society” where your own life seems so far away from “normal” that you feel like an outsider. I know Sue reminded us to not try to be superwoman or superman, but I have to say, she comes pretty close to it in my book. Navigating the bureaucratic healthcare system with the ombudsman’s office is not a walk in the park, let alone for someone who is dealing with the emotional, financial, and logistical challenges of becoming a full-time caregiver. She also talked about the importance of making therapy work for her and not accepting services that weren’t effective. Rather than giving up, she managed to tackle each of these hurdles one at a time. It’s an incredible example of how resilient we can be when we need to care for the people we love.
Find beauty in the path
Aug 12 2021
Find beauty in the path
Tara talked about the multiple transformations she has had to go through: from being a caretaker to survivor to thriver, and from natural ways of healing to eventually facing her fears of chemotherapy. You can find Tara's bestseller book Grace, Grit, and Gratitude on Amazon and connect with her on Instagram @taracoyote. Please follow the podcast if you are enjoying the show. Would also be awesome if you can leave an honest rating and review so I know if I am serving the interests and needs of you listeners out there.Have topic suggestions or feedback about the show?  Contact me on Instagram or email me at talkaboutcancerpodcast@gmail.com. Thank you for listening!++++++++++++My reflections on the conversation:Tara is the only person I’ve spoken with to date who has said “thank you” to chemo. It’s an incredible statement, especially because she’s had such a traumatic experience with her friend’s chemo treatment. It’s also a powerful example of her message to us - which is to find beauty in the path. Rather than focusing on the incredibly challenging parts of her cancer journey, she’s grateful to be alive and appreciative of the transformations the experience has brought her. As she called it - shining the diamonds of our souls.Also, I had a light bulb moment when Tara was talking about being a caretaker for her friend Deb. Tara helped me understand something I didn’t back when I spoke with Kunal in episode 22 - that it was a privilege to take care of a loved one. But Tara’s explanation of her experience as her friend’s caretaker made sense to me - that to show up for someone when they are so broken down is humbling and makes you understand how precious life is. Now I understand why Kunal referred to the caregiving experience as a privilege.
Not just a number
Aug 5 2021
Not just a number
Shoni gets vulnerable and candid about her mom’s and her own experience with cancer and why her voice as a Black woman, matters. You can connect with Shoni on Instagram @brsuga and learn more about For the Breast of Us on their website. Please follow the podcast if you are enjoying the show. Would also be awesome if you can leave an honest rating and review so I know if I am serving the interests and needs of you listeners out there.Have topic suggestions or feedback about the show?  Contact me on Instagram or email me at talkaboutcancerpodcast@gmail.com. Thank you for listening!++++++++++++My reflections on the conversation:After our recording, I thought a lot about Shoni’s experience with the receptionist at the oncologist’s office. It’s the kind of experience that is so familiar to those of us who have had to navigate the healthcare system to get care for complex medical conditions. But it is even more stressful when you know that by speaking up, you will be labeled and dismissed with a negative stereotype, like the “angry black woman.” These kinds of stressors, even if seemingly minor in isolation, add up over time, and not just in healthcare, but across all kinds of important areas in life, such as education, work, and housing. It’s therefore not surprising that minority groups have less positive health outcomes - living with cancer is completely overwhelming as it is, so some days you just may not have the energy to get over the extra hurdle thrown at you. But that sometimes can make all the difference in your trajectory.A big shout out to Shoni for bringing to life what we read about in research papers and textbooks. You are not just a number, and we thank you for helping us see you.