Seizure Salad (~Fustercluck Epilepticus~)

Seizure Salad

A salty, sometimes irreverent account of Micah‘s surprise diagnosis with epilepsy; how it would short-circuit his world, plus the efforts to re-wire his mind (...Brain surgery?!?...) so as to build a new life. ”Seizure Boy” courtesy of Watsky and used with permission. Find more great music & poetry at https://www.georgewatsky.com/ Original logo by Alba Lopez-Najera read less
Health & FitnessHealth & Fitness
Decoding Epilepsy with Dr. Dee McKnight
May 9 2023
Decoding Epilepsy with Dr. Dee McKnight
We've talked about genomics in relation to medications, and precision medicine using DNA panels.  In this episode, we narrow it down with Dee McKnight, a genetic specialist in the epilepsy community.  Dee has been a part of the effort to bring genetic testing as a common diagnostic practice from the early days.  Enjoy this eye-opening episode, and share with everyone, as it has the possibility to save lives. Here are links to the papers Dee references in our conversation: Mostly kid's testing results: https://onlinelibrary.wiley.com/doi/10.1002/epi4.12348 Adult epilepsy study: https://ng.neurology.org/content/8/1/e650 Doctor's changes to clinical management and patient outcomes study: https://jamanetwork.com/journals/jamaneurology/fullarticle/2797510   Dr. Dee McKnight is board-certified in clinical molecular genetics by the American Board of Medical Genetics and Genomics. She has more than 10 years of experience in the genetic diagnostics field and is currently a Senior Medical Affairs Director at Invitae. Prior to joining Invitae, Dr. McKnight was the director of the neurogenetics testing program at GeneDx, where she specialized in genetic testing for patients with epilepsy and intellectual disability. Dr. McKnight earned her doctorate degree at Penn State University and completed post-doctoral training at the NIH. While at the NIH, she was a research fellow at the National Institute of Dental and Craniofacial Research for 5 years, during which she also completed her board-accredited clinical molecular genetics training fellowship at the National Human Genome Research Institute. “Seizure Salad, ~Fustercluck Epilepticus~”, is produced & hosted by Micah Ball Original Logo and Graphic Design by Alba "Lupi" Lopez The song “Seizure Boy” courtesy of Watsky, and used with permission. Find more great music & poetry on his website, GeorgeWatsky.com   Thanks for listening! Mad Gratitude, ~Micah Unexpect the Expected
Misdiagnosis Rollercoaster w/ Jesse Mercury of the Major Pain Podcast
Mar 5 2023
Misdiagnosis Rollercoaster w/ Jesse Mercury of the Major Pain Podcast
~ Jesse & I sit down to talk about his lifelong misdiagnosis of a chronic condition, his podcast & other creative endeavors, and of course a bit of off-topic banter!  Enjoy! ~ Jesse Mercury is the host & producer of the podcast, Major Pain, as well as a prolific content creator & musician. Jesse’s content library can be found on Bandcamp, YouTube, TikTok, and his website www.jessemercury.com."   Listen to Jesse's podcast, just click on his logo below! "The Major Pain podcast is a collection of interviews from people living with chronic illness and disability. Our goal is to spread awareness, empathy and community around experiences often lived through in isolation. We also occasionally hear from healthcare professionals, pain researchers and caregivers, giving us a well-rounded view of what’s happening in our healthcare system for the chronically ill. Through sharing these stories important themes have become increasingly apparent, including the dangers of medical gaslighting, the importance of self-advocacy and the fact that none of us are in this alone. You can share your thoughts, your story, or inquire about appearing on the show at majorpainpodcast@gmail.com.   “Seizure Salad, ~Fustercluck Epilepticus~”, is produced & hosted by Micah Ball Original Logo and Graphic Design by Alba "Lupi" Lopez The song “Seizure Boy” courtesy of Watsky, and used with permission. Find more great music & poetry on his website, GeorgeWatsky.com   Thanks for listening! Mad Gratitude, ~Micah Unexpect the Expected